Birthday greetings

Hi Alana,

happy 50th birthday to you. I hope you can make some time to do something really special for yourself today, despite all the obstacles.

Thinking of you.

Hugs,

Lois

[suziewong]

Wishing you an extra special Happy Birthday. Thinking of you and sending my love.

Suzie xx

[jillannf6]

i sned my best wishes too. have a great day

lol jill

hugs and xxxxx

[gmunsot]

Hola Alana:

Today is 6.00 a.m. in Mexico City and just know that is your birthday. I wish the best birthday for you and many gifts.

From my country I send to you my congratulations.

In Spanish we say:

¡FELICIDADES!

Guadalupe

[jimandsharynp]

ALANA

HAPPY BIRTHDAY!!!

Jimbo

[zjillian]

Happy Birthday! 50 is a good year...I (now 68) remember that my life only got better at 50.Or maybe I got smarter about what was important and what wasn't worth worrying about. Really, I was calmer and wiser (about time!).

Buy something wonderful for yourself and enjoy.

Jill

[MOMBCD1]

happy birthday

[SharonAB]

T H A N K Y O U !!!!!!!!!!!!!!!!!!!

[jillannf6 in reply to SharonAB]

hi alana=

i hope you had a really good day for your 50th

it only comes alone once sand then it is gone and the next one is 60 (which was a great birthday 4 me)

so again a happy birthday to you and many more or as the spanish say "y mucho mas"

lol jill

hugs and zxxx and to your daughter too

[SharonAB]

I give my story to offer an appreciation of how neurological diseases can dramatically alter lives....Yesterday was the strangest of days. And why on my 50th birthday only the powers to be will ever know.

To handle PSP (or whatever it is my husband has) has required that all available assets we had be turned into liquid cash to feed this insidious disease. Fortunately for Chloe and I it meant until now we still had a home. That is until it became very clear our health was being compromised so yesterday I signed forms for the majority of proceeds from its sale to be relinquished, and for the two of us to truly start again.

I also signed forms of what others consider are appropriate for our daughters well-being – That is Chloe must and will only be spending time with her father and extended family every Sunday afternoon for four hours (unless John or his family do not wish to or he wants to watch a football game), that I am to have sole parental responsibility for our daughter, and Chloe is to have no other contact with her father unless it is on the phone and she initiates the call.

I will feel differently..... But for the time being I feel ????? (I can’t think of an apt description – yes – me lost for words.....) -– for what is happening– works against my views of relationship building, care, love and appreciation for one another. In the end I guess I just have to acknowledge we are all different – and there are just some parts in our lives that are set to test....

Regards,

Alana – Western Australia

NB: Yes – I will celebrate my 50th birthday in style, It’s just postponed for a little

[Hidden in reply to SharonAB]

I dont fully understand whats happened to you and why, but you seemed to have been forced to make very difficult decsions. I do hope for the best for you and all your family. Back here in UK, I was lucky enough to work for long enough as a government scientist to get a reasonable pnesion so at 57 we have a nice but small ground floor flat and yes the NHS does support us. My son is over in Australia visitng his school friend who lives and works in Brisbane. They will travel the country over a month. He sends a text as he is getting on the plane. We will leave him alone until he gets back in a months time, during which time this horrible illness in my wife will have moved on again. We took the decsion not to involve the boys (aged 26/30 now) heaviy in the day to day care of their mums illness. Theyve got to gt on.

with all best wishes

jmb

[Hidden in reply to SharonAB]

Hi Alana,

what terribly difficult decisions you have made in the endeavour to make life better for you and Chloe. I can't even begin to imagine how vulnerable this makes you feel. I hope that this fresh start brings you the peace you need to map your new path ahead.

Thinking of you both

Lois

[wifemo in reply to SharonAB]

Hi Alana -

Just picked up this thread - belated birthday wishes, and I do hope all turns out well for you and Chloe. She is a lucky girl to have you looking out for her and from your posts is a well-adjusted young lady considering what life has thrown at her so far. Together you'll make a good team.

Having just sold our wheelchair-converted vehicle to a PSP-er, I too am closing one door and opening another, and wish you well on your brave new journey.

Mo

[marytea13]

Happy Birthday Alana I have been thinking of u as I remember Kermode told me years ago that I had an extrapyramidal disturbance he has never confirmed PSP as my diagnosis neither did Rick Stell who just said there is something wrong but he did not know what it was, I have been rather ill - don't know if it was anti depression tabs but have stopped them although had very bad diarrhea much better now. I do hope u did celebrate - we are going to Italian in Bennett street for husband's birthday next week. Cheers Mary