It will be 2 weeks tomorrow since my father in law passed away from this cruellest of diseases. We had a beautiful service for him on Thursday and I vowed to him that I am ready to fight the NHS as to why they refused CHC. I have already made a formal complaint about the new community nurse and they are taking my complaint seriously. My Father in Law donated his brain and spinal cord to research and with God's holy help maybe a reason or a cure for this disease can be found through this selfless act. It is a great comfort to us that his suffering may not have been in vain I fell I need to fight this battle in his name and get the NHS to understand that people with PSP need nursing care to help them and their carers live out this disease in comfort and dignity either in their own homes or in care homes.
Last edited by capsey31
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