My wonderful Father in Law passed away this morning

Sadly my father in law's battle with this terrible cruel disease finally ended this morning with his devoted wife Barbara holding his hand. He was a wonderful man and will be so missed by all of us. Even thought he is no longer with us I am still going to pursue the NHS's decision not to give him CHC.... it may help someone else who applies for this help...May he rest in peace.

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22 Replies

  • I'm so sorry for your loss capsey but you know your father in law is now free from all that is PSP. Some how my husband managed to get continuing health care funding, for which we are very grateful and I wish you very best wishes as you continue the fight. As you say, it may help others.

    You and your family will be in my thoughts and prayers during this difficult time.

    Nanna B

  • Thank you Nanna B for your kind words.


  • Thank you Peter for your kind words.

  • Please accept my condolences at this difficult time. Love and prayers being sent to you and your family.

  • Thank you Shsron

  • Dear Capsey,

    May you and your mother in law Barbara have the strength and support of family and friends to retain wonderful memories.


    Alana - Western Australia

  • Thank you Alanna.

  • Dear Capsey

    I am really sorry to hear about your father in law, but at least he now has peace away from this awful disease and more importantly, away from our absolutely terrible NHS! They are a disgrace to the people (us) who pay their wages! On behalf of the decent people of our country, I apologise for their total lack of care and help that they didn't give to your family, when you needed it most!

    My thoughts are with you all at this terrible time, may you find the strength to help Barbara and the rest of the family get through this final part of PSP!

    Lots of love


  • Thank you Heady for your hind words. I am sure the news that no extra help was available to Barbara influence him to give up on life. I am trying not to be angry but giving thanks to have meet and loved this amazing man.

  • jillannf6

    hi capsey

    so sorry that your f in l ha s passed away and without GETTING THE CHC he so deserved

    good of you to fight for those of us left

    (when you have the energy that is)

    LOL jiLL

    HUGS AND XXXX to you and barbara

  • Thank you Jillann

  • Hi Capsy, I am so sorry for the loss of your father-in-law condolences to your Mother-in-Law and all the family. I am also sorry to hear about your fight for CHC. I had a bad experience with the NHS as well over this, after a long fight to be awarded CHC, taking up a lot of my time that should have been spent with my husband he was finally awarded it in September 2013, however the money was not released until the 4th December, 2013 the night before my husband passed away so he only had one nights care when it was too late. I do hope that you get some answers to why he was not awarded CHC. My thoughts and prayers are with you.

  • Good morning Daparose Thank you for your kind words but it makes my blood boil that CHC is so difficult to get for people suffering from this terrible disease. If sufferers of this illness cannot get this funding who can? My thoughts and prayers are with you also.

  • Hi I was so sorry to hear about your father in law

    It's so sad you didn't get him CHC.

    Why do we have to fight for this and why is there not many doctors who understand this illness

    I think they all need retraining

    My dad died died 4 months ago from PSP

    I break my heart everyday thinking about him and this cruel illness

    But I get comfort knowing he isn't suffering anymore

    My thoughts are with you and your family

    X x x x

  • can rest assured that your Father in law is now FREE...last summer my brother passed away from prostate cancer...the week B4 we spoke on the phone and he had to take another call,that was the last time I spoke with him. Approx 10 days after his passing ,after a horrible 2 nights of little sleep as Madeline was having terrible days I looked up and said God ,here I am taking care of your child,for 10 years or so,I,m burnt out to the bone,You take my brother,is there really anything to Your story or are we all a step above nothing ,I said I need a sign that all is not in vain or i,ll not get through !!!! Now for the other part of the story,when I was 8 years old my brother ,who was a flyer in the RCAF would tell me when he would be coming back from Bermuda and to sit outside as he would buzz the house with the plane..a lancaster,you can imagine the noise ,.it would always send chills up my spine ...! that was 60 or more years ago, that was the last low flying plane over this house .One hour after I was outside and I heard a noise,an airplane buzzed the house low enough to see the pilot..3 times,that night my brother,s daughter called to tell me she had a dream her dad ,my brother had told her to call me and look for a sign involving 3 things...he,my brother and mom and dad whom had passed many years ago would be the 3 things...3 passes pretty hard to ignore that,may you and family be able to put it all together,sorry for your loss,Rollie,nova scotia canada

  • So sorry to learn of the loss of your father-in-law who was obviously a great and much loved friend. Perhaps there is some small comfort to be gained that he is no longer having to live with PSP, particularly knowing the distressful decisions this was forcing on the family. My kindest regards to you all, Jerry.

    I hope you get some satisfaction from your enquiries into the reasons for being refused CHC. Highlighting the issue may ultimately bring some consistency into the decision making which, in some cases, appears to be based on the opinion of poorly informed, or inappropriately motivated, assessors. An appeal system is fine for sorting out the odd anomalies but not if it is used as a strategy to delay payments. J.

  • Capsy, when was he diagnosed and when did the first symptoms appear? Thanks, my thoughts are with you and the family. Jimbo

  • Hi Jim he was only diagnosed in September 2012 but we believe he had22 that the disease

  • Wow, that is a short length of time. Bless you and take care of yourself.

  • Hello Capsey31 -

    So sorry to hear of your battles, and wish you well as you continue the hunt for "justice".

    Your father-in-law will still be there, guiding your hand.







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