My Father in law has advanced PSP and can no longer do anything for himself. His wife is his main carer with the help of 2 calls a day to get him up washed and dressed and another call to put him to bed.
He has refused to be PEG feed and now can only eat things like mousse even his meals liquidised causes him to choke, He is losing weight and spends most of his day with his eyes closed and we never know if he is sleeping or awake. He can no longer have a conversation with anyone and even watching TV is out. I think it is totally unjust that he has been refused CHC on the grounds that his community nurse says he is in a stable condition, Our community nurse is new to the area and only called twice before giving her professional opinion having never heard of PSP before!!! . I had letters from his GP, SALT OT and social worker all saying that he needs CHC. Any advise on what to do now would be appreciated.