forgotten

[kentish61]

I’m away at my sons in Buckinghamshire and for the 1st time I’ve forgotten to bring my pred with me. I’m only on 4half msg and it’s only todays and tomorrows I’ll have missed because I’m home tomorrow evening. Will it be ok?

[123-go]

Oh dear! I wouldn’t risk going without for two days. Have a look here for suggestions (found in related posts) as to what you might do now: healthunlocked.com/pmrgcauk...

[DorsetLady PMRGCAuk volunteer]

Bit of a risk… and 123-go has given link which suggests getting an emergency stock..

[PMRpro Ambassador]

This was asked just a few days ago - and really, no it isn't OK. You could set off a real flare but two days of no pred after a long time on it and your adrenal glands are probably doing very little at present is very risky.

These 2 posts cover the options and how it was solved.

healthunlocked.com/pmrgcauk...

healthunlocked.com/pmrgcauk...

I just went straight to a pharmacy, explained what had happened to the PHARMACIST (not counter staff) and got a week's worth of pred as emergency supply in case I was delayed getting back to my own supply in a couple of days.

Or you can call 111 and they will sort it but that may mean long waits on a Saturday.

[kentish61 in reply to PMRpro]

Thank you for your reply x

[PMRpro Ambassador in reply to kentish61]

Do let us know how you get on.

[kentish61 in reply to PMRpro]

I rang 111 they got me an emergency prescription as the pharmacy I went to wouldn’t give me any.

Lesson learnt, keep some spare in my handbag. Still can’t believe I forgot them.

[PMRpro Ambassador in reply to kentish61]

What grounds did the pharmacy give you? That is very bad.

I know - I have NEVER forgotten mine before! I usually check a dozen times ...

[kentish61 in reply to PMRpro]

Just that they wouldn’t do it without approval from 111. I even had my most recent prescription with me which I keep in my purse and they still wouldn’t do it.

[PMRpro Ambassador in reply to kentish61]

That isn't true - they are supposed to "rescue" long term pred patients. You were unlucky there.

[Hugh_Marc in reply to kentish61]

It’s easily done. I have logged all the various meds on the health App on my phone to prompt me to take them. However I had left home early one morning recently & was 10 miles away when I realised I’d forgotten to take my Pred. Before I was home that day I definitely felt sore & groggy.

[PMRpro Ambassador in reply to Hugh_Marc]

I always carry a dosette box with one days medication with me when I leave the house. It lives next to my phone!

[herdysheep]

I have just got down to 5mg (again) and only realised I had missed Mondays dose on the Tuesday. I was as stiff as a board and familiar pains knocking at the door, so I would say, def do not miss 2 days or even 1. Interesting coincidence with a difficult call from different gp who said to get off pred pdq - been on it too long! She was not at all interested in what I saw as evidence the pmr is still alive and kicking after 12+ years!

[Oh-my]

I bought myself a tiny titanium pill pot key ring that holds an emergency dose. It’s on my key ring so when I go out it goes out with me.

[Gimme in reply to Oh-my]

I have a small cosmetic bag in my handbag with essentials like lip salve, tissues, inhaler and I also carry a spare strip of pred, as I am a bit prone to going out for the morning and then realising I forgot to take my pred before I rushed out the house. That means I always have spared meds with me.

[kentish61 in reply to Gimme]

I rang 111 and got a supply for 2 days thank goodness. In nearly 3 years I’ve never forgotten to bring them with me.

Lesson learnt keep some spare in handbag.

[Tiggy70 in reply to kentish61]

Pleased to hear you got it sorted!🌸

[Tiggy70 in reply to Gimme]

I always carry a days supply of my meds, extra Pred and some paracetamol in a small zip lock bag in my handbag. It’s easier for us ladies who carry handbags but not so easy for the men!

[Tiggy70 in reply to Oh-my]

Great idea thanks. I’ve just ordered myself one off A****n. 🌸

[Pixix]

I take about 25 pills for my range of diseases, & keep a days worth hidden in the very bottom of the glove compartment in the car! I also have a small zip bag of ‘handbag pills’ that travels everywhere. You just have to remember to use the hidden ‘stashes’ & replace them at times or they will be past their expiry date!!

[pammy_hyland]

Go to their local chemist they will sort it for you and give you tablets I did the same a couple of years ago

[PMRpro Ambassador in reply to pammy_hyland]

Her update was that the pharmacy she went to refused without approval from 111.

[pammy_hyland in reply to PMRpro]

Why can't she get approval from 111? ...not good...She needs to go to another pharmacy then because they can easily do it ..

[PMRpro Ambassador in reply to pammy_hyland]

She got it via 111 in the end. The trouble is, 111 can take AGES, But that pharmacy needs a talking to!

[pammy_hyland in reply to PMRpro]

I agree they really do need a talking to....

[PMRpro Ambassador in reply to pammy_hyland]

The endos introduced the new red steroid card to reduce such events. Trouble is - the people whould SHOULD know about it and for whose benefit it was developed don't ...

[CRYSTAL11]

no go to a local chemist to get some to tied you over