Update on what was thought was PMR

[Charlieanna12]

He'llo everyone , I first posted on hear after my gp said he thought I had PMR. I took 20 mg of pred for 10 days. No improvement so more blood tests, and finally I had a Cervical spinal MRI in January. This has revealed some issues with Spurs on some vertebrae and general wear and tear.However te MRI picked up issues in my thoracic spine. Vertebrae T3 & T4 aren't right. As I understand it the disc between T3 & T4 has bulged.

Now in waiting to see the Neurosurgeons. I don't know if they will operate. Im playing the waiting game again.

Aside from all that I still have the most unbelievable fatigue,, muscle pain and daily headaches.

I'm hoping that very soon I will have all the answers.

Thank you all for your kind support.

[DorsetLady PMRGCAuk volunteer]

I hope you get answers as well, in the meantime have you been prescribed any pain medication?

[Charlieanna12 in reply to DorsetLady]

Hi, I was given a Retelans Transdermal patch yesterday and oral morphine as a back up. I used morphine after the car accident in 2015 so I'm reluctant to use it again. But I guess needs must. I have also been told to use paracetamol in the first instance.Unfortunately I am allergic to anti inflammatory medications. I have another blood test on the 6/3. This time to look into the constant fatigue and also my CD4 white blood cells because I have lymphopenia.

There's a lot going on but for now I am doing what I can and resting whenever. I have 3 dogs, 2 x 19 mth old shihtzu's and the 3rd is another shihtzu's. He's almost 14.

I do feel guilty when I can't get them out

but they will quite happily rest with me, as long as its on my bed with me.

I hope you are as well as possible and thanks for your support.

[DorsetLady PMRGCAuk volunteer in reply to Charlieanna12]

Oh a dear, yes that is a lot going on…so sorry to hear that.. sure your dogs give you plenty of love…

All the best…

[Charlieanna12 in reply to DorsetLady]

Thank you. It is a lot going on plus I have urticaria, COPD, acid reflux and arthritis in both legs, feet, hands and petechiae.I think my doctor was right when he said i'm a bit of a "Medical Mystery"

[DorsetLady PMRGCAuk volunteer in reply to Charlieanna12]

I know we ladies like to be a mystery sometimes…. But there can be too much of a good thing!

[piglette]

Did they consider fybromyalgia?

[Charlieanna12 in reply to piglette]

Hi its been mentioned. I have a blood test next Wednesday to check for reasons why I'm so lethargic. I have researched it and I think it might be. My youngest son has it.

[piglette in reply to Charlieanna12]

Hope they can diagnose what is wrong.

[PMRpro Ambassador]

Hope they find an answer - diagnosis and suitable treatment. Do let us know what transpires.