I’ve had little PMR pain for the last 9 months. Have been slowly reducing Pred, though regular step backs with illness but down to 4.5. Smugly I thought my PMR had gone and all I needed was to watch out for adrenal problems.
Then, while in process of moving house with some major headaches, husband taken in to hospital with sudden onset dementia symptoms…
he’s home and doing well but still waiting for MRI on brain for diagnosis. Heart breaking.
Twice weekly training sessions including boxing have really helped emotionally.
BUT (and this may come as no surprise to you wise people) stiff neck, back and hips have now been joined by the good ol’ shoulder/upper arm pain not shifted by paracetomol ☹️ Have upped Pred to 10 and hoping will settle- plus cancelled training sessions for moment. Aaarrrgh! I really thought I’d seen the back of it (**************!) Add your own expletives!
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Enfin
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Ugh! So sorry to hear about your husband. That all sounds like a ton of stress - more than enough to have it all kick back in. I gotta tell ya, this stuff sucks!!!
Unfortunately - or fortunately maybe - even 1mg of pred can be plenty to keep PMR symptoms under wraps! 4.5mg is LOADS! Sorry to hear the reason - totally "get" it, husband ill, my PMR goes mad!
I’d wear out my f key filling in all those *! What huge stress. I don’t doubt the PMR has sent you a reminder it’s still there, but I would also be wary of such intense upper body work. Of course I don’t know how you built up to it, but perhaps twice a week meant your muscles couldn’t recover. At the low doses I found my upper body musculature was really flakey and if I upset them with a bit too much of something they would become very sore and it could take a few weeks to get back to normal.
you've got to take it out on something. Sorry for relapse but keep pummeling if it keeps you sane. Hope symptoms are not too serious for husband. Won't say don't worry because you can't help it just do your best.
I feel for you, I really do. The prednisolone is giving me extra energy and little or no pain. Last night I had 5 hours uninterrupted sleep, the most I've had for months and months. I felt really good this morning, went on our usual walk around the village, came back and decided to clear up next door's garden as the owner is coming on holiday tomorrow (we live in Cyprus). Within moments of finishing, the aches and pains started to return, a reminder that PMR is still lurking beneath the surface. I should have know better. So sorry to hear about your husband, that stress alone will increase the pain and you also had a house move - lots to take on board. Sending you and your husband very best wishes.....
So sorry to hear this . This it my second time round on Pred. The first time i thought id cracked it, My husband got ill again, he has heart problems. I had a huge flare and really wished i had not come off them. Im back to square one and so much harder to reduce this time. So sorry about your husband, and yes ive become an expert at swearing !
Sorry to hear about your situation, but the underlying moral to your story and many others on this forum is that AN AUTOIMMUNE DISEASE IS NOT JUST FOR XMAS BUT FOR LIFE and you can never say never with any of 100+ of them! (aarda.org/diseaselist/)
So sorry to hear about your husband. Unfortunately, there are stresses in our lives that come out of nowhere and we have no control over them. I am 5 years into PMR because life has thrown me into a new stressful situation, always involving loved ones. I have found all you can do is start again at a dose that suits and try to take care of yourself while the situation settles.
So sorry to hear your news. My husband is early stages of Alzheimer's so fully appreciate what you are going through. It sounds as though you need to take care of yourself - reduce exercise perhaps. I know that if I do too much one day I suffer the next. Best of luck!
Sounds just like me, I was off Prednisolone ( nearly a year) but taking Voltaren. I have been reading everyone's symptoms and treatment as I'm now having a major flare. My neck has been painful for 8 months, which I didn't think was linked to PMR, then PLANTAR FASCIITIS for the last 4months( caused by walking on firm sand). Trying to be fit and healthy 😄. Now I've finally come to terms with this disease and realise it's not going away. So I'll except what amount of prednisolone I need to give me back some quality, of at least feeling healthy. 🤸💃
If Voltaren helped it does suggest a lot of it may not be directly PMR - NSAIDs will help with myofascial pain syndrome even when it is part and parcel of the PMR.
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