13 December PMRUk Voices discussion on Zoom missed, anyone attend?

[Bennijax]

I missed the PMR Voices Zoom Monday evening. My wc sprung several leaks and I was notified water was leaking to the property below. I had to go into action to turn off water and call emergency plumber and mop up. Did anyone attend? How was it? I was very sorry to miss it.

[herdysheep]

Sorry, can't help, but hope you got things fixed. The sort of stress one could do without! (As is most stress, but you know what I mean)

[piglette]

I had not heard about it.

[Bennijax in reply to piglette]

I'm surprised - here below, the link from the research facility's coordinator Amy Rebane, running this workshop for people living with PMR:

"I have also attached our guidance for online meetings and the plan for the workshop. Please do take the time to read through the plan, as it'll give you a good idea of what's in store for the session.

The workshop will be recorded so we can focus on the discussions and reflect upon them when compiling the report. No-one will be specifically named in the report, it'll be a summing-up of the discussions and conclusions. Consent will be asked for before recording.

We look forward to seeing you then and if you have any queries or can no longer make this session, please do let me know.

Best wishes,

Amy

Amy Rebane

Patient and Public Involvement/Engagement Manager

NIHR Leeds Biomedical Research Centre (BRC)

Chapel Allerton Hospital | Chapeltown Road | Leeds | LS7 4SA

T: I am working from home, phone calls can be arranged via email

E: [e-mail]

WEBSITE: leedsbrc.nihr.ac.uk

SUBSCRIBE to the BRC mailing list here: leedsbrc.nihr.ac.uk/keeping...

[PMRpro Ambassador in reply to Bennijax]

When did you get the email? I don't remember seeing it but then - I've had other things on my mind!

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

I didn’t see anything…but no reason why I should! But thought it might have been on here or on charity’s Facebook page.

[PMRpro Ambassador in reply to DorsetLady]

I get other stuff from Amy - but maybe I don't count as a patient

[Bennijax in reply to PMRpro]

I'm surprised too and therefore have no idea how I got to learn about it.....

when I receive the results of the workshop I'll share. I am so annoyed I couldn't attend it Monday evening

[Rugger in reply to Bennijax]

I'm assuming you will have been invited because you responded to the PMR Voices questionnaire.

[Rugger in reply to PMRpro]

It wasn't an open 'workshop' as such, but a follow on from the 'PMR Voices' questionnaire that was sent out several weeks ago. It was 'by invitation' effectively, for those who responded and chose to go further by contributing to a series of Zoom discussion groups. I'm sure it all coincided with your husband being very ill or even since he died.

I'm certain Sarah and Amy would not miss you out of anything!

[PMRpro Ambassador in reply to Rugger]

I suspect I know when it happened - I was too late! The groups were very highly oversubscribed.

[Highlandtiger]

It was part of the follow up to SheffieldJane 's post from a couple of months ago. It was more of a focus group style thing with small breakout groups discussing certain things that a facilitator directed us to rather than a webinar as such. The one on 13 December was the final one in a series as I understand it.

healthunlocked.com/pmrgcauk....

[Bennijax in reply to Highlandtiger]

I received this this morning but the screenshot definition is very poor, mention of a further Zoom in January

Can’t yet see it as this info box is obscuring it!

[Benos123]

Ah yes I can see how you might have otherwise been BOGGED down!

[keeptalking]

I hadn’t heard about it but would have loved to have taken part. All too late now.