Alcohol : Does anyone have the odd glass of wine on... - PMRGCAuk

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Alcohol

Uglow profile image
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Does anyone have the odd glass of wine on steroids. Thanks

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Uglow
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116 Replies
Sharitone profile image
Sharitone

Yes. Just the very odd, very small glass. And nothing terrible has happened. But what a treat!

jayemmemm profile image
jayemmemm in reply to Sharitone

I usually have a gin before dinner and a glass or two of red wine with dinner. I have two days a week free of alcohol and I find I don't sleep at all well on those days.

Since this thread is about alcohol I'd like to share a poem I wrote a few years ago which hopefully will amuse. Thanks to Andrew Marvel for the inspiration:

Come drink with me and we will prove

life's pleasures rest not just with love,

but in the quaffing of a quart

of foaming ale lies true delight.

The heady brew of hop-filled beer

will leave us yearning, never fear,

not for that which never cloys,

(that tiresome thing 'twixt girls and boys)

but rather, once the first draught's swallowed

why then! it should be quickly followed.

More and more until the chime

of landlord's bell sounds closing time.

Then would I say to thee 'My dear,

now that we've had our fill of beer;

Can we postpone our lovers' tryst?

For now I fear I'm far too tired and emotional'.

I hope Fran doesn't tell me off!

Sharitone profile image
Sharitone in reply to jayemmemm

Bravo! (I hope she doesn't either!)

Wcg1 profile image
Wcg1 in reply to jayemmemm

Ah, that gave me a real laugh - thanks 🙃

meelfyn profile image
meelfyn in reply to Sharitone

I Never have an odd number always finish drinking on an even number👍

Koalajane profile image
Koalajane

Yes, I have the odd glass of red wine. I had read somewhere that it was good for blood sugar, I am type 2 diabetic, and it hasn’t done me any harm

cycli profile image
cycli in reply to Koalajane

:-)

Nextoneplease profile image
Nextoneplease

Only the very occasional small glass - that’s all I’d have anyway as alcohol tends to give me headaches. I haven’t noticed any difference since being on steroids…

PMRpro profile image
PMRproAmbassador

Of course - maybe more than the odd one, But not more than 1 small one with dinner these days (100ml)

SnazzyD profile image
SnazzyD

Under 20ml Pred I had 2-3 units of alcohol a week. The alcohol content of wine varies so I took the amount that corresponded to that.

Kendrew profile image
Kendrew

Yes, definitely, but usually just one.

fmkkm profile image
fmkkm

I have a glass every night, a little larger than a restaurant serving 😉!

PMRpro profile image
PMRproAmbassador in reply to fmkkm

Is that a UK restaurant serving or an Italian one ... ;)

fmkkm profile image
fmkkm in reply to PMRpro

It’s all about the glass you choose to use!

piglette profile image
piglette

The glasses of wine I have are not at all odd, but very normal in my opinion!

Kendrew profile image
Kendrew in reply to piglette

😄 Haha! Thst made me laugh.

Doraflora profile image
Doraflora in reply to piglette

The same here, Piglette!🤣. And I’m still breathing

scrambledegg profile image
scrambledegg

Yes I have half a bottle 3 or 4 nights a week. No adverse effects.

Carriemetz profile image
Carriemetz

A glass abt 125 cl of dry white fizz every other evening at dinner. And do I look fwd to it! 🥂

Kendrew profile image
Kendrew

My hubby buys me those little bottles of wine (187ml/75cl) just enough to satiate my palette but not enough to paralyse me!!😂 Cheers my friends. 🥂

PMRpro profile image
PMRproAmbassador in reply to Kendrew

Which? Mini-bottle or proper bottle (75cl is 750ml)? A proper bottle does me a week :) Much cheaper ...

Kendrew profile image
Kendrew in reply to PMRpro

Oh heck!... no good at maths or conversions!.....or maybe I'm just too intoxicated?? 😄 Miniature bottle says 187ml. It's a plentiful glassful though! I don't drink enough to finish off a whole bottle...even over a few nights. Occasionally fancy a glass once in a while.

PMRpro profile image
PMRproAmbassador in reply to Kendrew

Which is 18.7cl. I get mini-prosecci, but they are 200ml here and that gives me a Sunday afternoon glass and a glass with dinner. And then a bottle of rose with a single "Esso" glass per night does the rest of the week. Anyone else remember the "Esso" glasses? While we were living in Germany in the 80s Esso petrol would do promotions, collecting vouchers for "free" glasses. I managed to get 12 during a trip to and all around the UK - over the years I have acquired cast-offs so even after 35 years I still have a matching set of 6! They fit in the dishwasher perfectly ...

Lochy profile image
Lochy in reply to PMRpro

Collected the Esso and the Shell glasses! Nice roomy tumblers, perfect for my wine 😉

PMRpro profile image
PMRproAmbassador in reply to Lochy

Don't think I ever saw Shell ones. OH's favourite G&T glasses were freeby "cut glass" tumblers, Esso as well I think. I have beautiful real cut glass wedding presents - almost never used ... Dates me I suppose ;)

My favourite wine glasses are the enormous ones we get here (with 100ml in them!) but they are so impractical - don't fit in my dishwasher ...

borednow profile image
borednow in reply to PMRpro

Time for a new dishwasher, methinks!!

PMRpro profile image
PMRproAmbassador in reply to borednow

It would have to be a bar-style one for the glasses I mean!

Constance13 profile image
Constance13 in reply to PMRpro

Wow! I've never heard of Esso glasses and I have lived in Germany nearly 50 years!?!

PMRpro profile image
PMRproAmbassador in reply to Constance13

Probably why - they were a promotion for Esso fuel in the UK, mostly in the 80s.

Thelmarina profile image
Thelmarina in reply to PMRpro

As I seem to spend my life dropping things I am deeply impressed with the intactness of your vintage glasses! 🥇

PMRpro profile image
PMRproAmbassador in reply to Thelmarina

I dropped and broke SOOOOO much in the early years of PMR! Including quite a few of them. Really upset me as I didn't break things - not like mum's sister who broke stuff left right and centre because she was always so slapdash!

Predderman2020 profile image
Predderman2020 in reply to PMRpro

I broke the iphone and iPad with sheer PMR clumsiness. T

PMRpro profile image
PMRproAmbassador in reply to Predderman2020

No - nothing that expensive ;) Thank goodness ...

Constance13 profile image
Constance13 in reply to PMRpro

I agree - more expensive, but mini bottles are better for me. If I open a large bottle I have to throw half of it away. I'm a "sipper" rather than a drinker. I even sip beer (to the unbelievable looks I get from my husband and SIL).

Rather have a nice liquor any day.

Viv54 profile image
Viv54 in reply to Kendrew

Cheers ! enjoy🙂

cycli profile image
cycli

whisky mac most nights when I've had enough and a glass of wine or beer with meal 3-4 times a week. hezunt dunnme aneeharrm yut

Constance13 profile image
Constance13 in reply to cycli

I'd like that too but can't get the mac.🤨

cycli profile image
cycli in reply to Constance13

i'll send you details. We have to order by the case on line as can't get it in shops now Green ginger Crabbies is the only one that is right for this. a proper beverage.

Constance13 profile image
Constance13 in reply to cycli

By the case??? I'm82 - I don't think I'd be able to drink it all in the time I have left!?!?!

PMRpro profile image
PMRproAmbassador in reply to Constance13

Defeatist ... ;)

Constance13 profile image
Constance13 in reply to PMRpro

😂😂😂👵🏻

123mossie profile image
123mossie in reply to Constance13

My solution is to buy a wine box, no pressure then to finish a bottle. Downside though is it’s too easy to have that 2nd...& 3rd

cycli profile image
cycli in reply to Constance13

2 parts mac to 1 part whisky. You'll manage Constance

Constance13 profile image
Constance13 in reply to cycli

😂😂😂💥

Constance13 profile image
Constance13 in reply to cycli

Found Mac on Am.de to my surprise.💥💥

Bcol profile image
Bcol

Very definitely a glass most nights.

SheffieldJane profile image
SheffieldJane

Check all your meds it is a definite no no with some. Just to kill the mood of joy. It is a very useful muscle/ relaxant/ pain killer moderately taken. Seems ok with Pred unless you have a tender digestive system. Our livers have to work hard. I do think psychologically it is pleasant though and that matters too.

cycli profile image
cycli in reply to SheffieldJane

good points SJ.

Pome profile image
Pome

I have a few G and T's every week, no problems.

Mary63 profile image
Mary63

I have a LOT of wine on Sat nights. Love it! Nothing much for the rest of the week.

in reply to Mary63

Roll on Saturday 🥂

whitefishbay profile image
whitefishbay

Not the odd. I have wine at the weekends.

Red wine and G&T just not together and not every day! No point in feeling deprived If I don’t have to!

Gardendaffodil profile image
Gardendaffodil

I switched from wine to G&T. Made a huge difference on the reflux. So keep off acidic wines from now on 😊

Suet3942 profile image
Suet3942

Oh yes!! And I'm on methotrexate. I have 3 glasses a week and so far no adverse effects. Every time I have a blood test I'm a bit nervous but so far so good. X

Jayveedee profile image
Jayveedee

Yes definitely, it’s what’s helping me get through this.

Poshdog profile image
Poshdog

Oh yes. Most evenings and liver tests are normal. My wonderful grandfather was a whiskey drinker and used to tell me - I'm not under the affluence of incohol, some thinkle peep I am. Cheers

Seekingasolution profile image
Seekingasolution

I usually drink white wine or anything fizzy with no ill effects. Recently had a lovely large glass of red with Sunday lunch and was dead achey and had that ‘unwell’ feeling the next day. As a result I’ll be sticking to white !

Carriemetz profile image
Carriemetz in reply to Seekingasolution

Me too. I have no problem with fizz - champagne best of course but bog-standard cava or prosecco is my usual mark and much appreciated too! 🥂

Thelmarina profile image
Thelmarina in reply to Seekingasolution

A nutritionist once told me to stick to gin and spirits rather than wine as being purer…I do like gin…🥳

Mai45 profile image
Mai45

For what it’s worth, nobody knows better than my GP that I’m on steroids, as she’s the one prescribing them. Asked her 2 weeks ago if I should give up red wine, and she said “if you are getting 5 glasses out of a bottle, one glass a night is fine”. But to be fair I’m on a lower dose now - took years to get down to 2.5 mgm but now sadly back up to 4. I’ve actually switched to a box. I know they traditionally had a bad reputation but my favourite house red / vin ordinaire is now also in 2.25L, slightly cheaper and a lot more planet friendly. Lasts 6 weeks, and I seem to be ok with sticking to about the same size glass. Aiming for 2 wine free days per week - sometimes I even manage it!

2013mayo profile image
2013mayo

Hi, Well I certainly did when first diagnosed, I was in such a state of shock I used to drink 2-3 glasses of wine mostly every night.

I’ve calmed down now, but that’s 2 years later.

I think there are some medications that state you should not drink any alcohol but I’ve never read any adverse effects with prednisolone.

Cheers 🍷

HeronNS profile image
HeronNS in reply to 2013mayo

Adverse effects could occur for someone on prednisone as it has to be converted by the liver into prednisolone. I think.

SusyTe profile image
SusyTe

I have ditched alcohol for the timebeing. I drink Real Kombucha which is delicious and reminds me of champagne - plus it is great for the gut. And Sea Arch instead of gin - a Sea&T instead of a G&T. I really don’t miss the alcohol at all, which surprises no-one more than me! 😳 When out I find that most places have Seedlip so I have that with tonic.

PMRpro profile image
PMRproAmbassador in reply to SusyTe

I wish I could get any of them - this being Italy, I was looked at as if I was an alien when I looked for some!!!!

SusyTe profile image
SusyTe in reply to PMRpro

I also tried a Peroni Libera - which I guess you have - although I am not a lager drinker normally. Very refreshing. It is slowly catching on - even Nicolas in France have started stocking non/low alcohol wine, apparently.

PMRpro profile image
PMRproAmbassador in reply to SusyTe

I have a couple of bottles of Chill Lemon from Peroni that the girls bought when here the other week - not a beer drinker at all but I could enjoy that in small amounts I think, it's 2%. I did develop a taste for Chinese beer when there - in self-defence, there is only so much water you can drink without getting bored!!!!

SusyTe profile image
SusyTe in reply to PMRpro

No need for self-defence. 😊😉 I would find it far more difficult if I hadn’t found alternatives. I now also have bottles of Pentire, Lyre’s and Three Spirit in the cupboard. I have to say I do feel better without the alcohol - less “inflamed”. Just hope it helps me to get to remission.

SID3 profile image
SID3 in reply to PMRpro

Sanbitter rosso?

PMRpro profile image
PMRproAmbassador in reply to SID3

Never tried it - love Campari, love Aperol but the low alcohol version has a strange taste.

Thelmarina profile image
Thelmarina in reply to PMRpro

You really shouldn’t wave your antenna…😅Ps that was in relation to your comment about being an alien in case you thought I was bonkers!

🤣

Hildalew profile image
Hildalew in reply to SusyTe

Thank you so much for introducing me to Sea Arch and Seedlip. I had never heard of either of them. I have just been on a wonderful internet search journey looking for more information which ended up with 'natural' paint. (The company shares it name, Bulmer, with a familiar cider maker which is how I got there.) The internet is a wondrous thing!

SusyTe profile image
SusyTe in reply to Hildalew

My pleasure! And it is worth having a look at Three Spirit too. Their Social Elixir and The Livener give you a natural “high” and Nightcap soothes you ready for sleep.

Thelmarina profile image
Thelmarina in reply to SusyTe

Seedlip looks very interesting - thanks for the tip!

SusyTe profile image
SusyTe in reply to Thelmarina

It is good because a lot of restaurants etc stock it now, but for taste I really prefer Sea Arch for a “G&T” at home.

Thelmarina profile image
Thelmarina in reply to Hildalew

Sounds so Shakespearean…😀

Pixix profile image
Pixix

Strange answer of the day...no, I don’t like wine!! But I have a Baileys about once a month. I’m on other tablets that don’t really allow it, but I don’t miss it now. If you’re worried, why not ask your doctor this morning, as I know you’ve been on Tramadol & other strong painkillers, where it may not mix well!!

York54 profile image
York54

Love my occasional glass of red or G&T. The G&T is easier on the reflux 😀

Loyd profile image
Loyd

Haha! You are all so good!! George and I share a a bottle every night! Sometimes a wee port too. No adverse affects what so ever. 👍👍

cycli profile image
cycli in reply to Loyd

port, now there's a proper drink. Just got one bottle of 1980'2 Grahmas vintage left, bought a case for our wedding as a present to wife.

Uglow profile image
Uglow in reply to cycli

My husband’s favourite

petros31 profile image
petros31

Never a problem with several glasses of wine with a meal but after covid one glass is enough and two is too many, straight to the head

Carriemetz profile image
Carriemetz in reply to petros31

Straight to the head is what I look for! 😉Head just needs to forget abt PMR/GCA sometimes!

Crommie profile image
Crommie

My rheumatologist informed me it was ok to drink alcohol when taking prednisolone. Only one drink fir 5 out of 7 nights.

ImC_ profile image
ImC_

Yes, I drink wine pretty much every evening. I didn't change my drinking habits when I started Pred, there's nothing in the leaflet about it. I eat very healthily though! I suppose if Pred was affecting your mood, up or down, you would not want alcohol to exacerbate that.

Benos123 profile image
Benos123

I find the odd ones ok and it's the even ones in between that seem to cause the problems!

Not to worry as the homebased research is ongoing!

Cheers!

Gardenbay profile image
Gardenbay

I have had wine, beer including Guinness,whisky and G&T without any problems.

cycli profile image
cycli in reply to Gardenbay

In what order or do you vary it according to mood?😂

Gardenbay profile image
Gardenbay in reply to cycli

If I am out for a meal, I may have a beer before the meal and a wine with the meal, I just carry on as though I don’t have pmr.

Lookingforideas profile image
Lookingforideas in reply to cycli

😂😂😂😂😂

Suedeshayes profile image
Suedeshayes

Yes, more than the odd glass with no bad effect that I can notice.

Barbaracole profile image
Barbaracole

Yes after three years on steroids , enjoy a glass of white wine with my meal I probably shouldn't !

Slowday profile image
Slowday

Haven't tried wine yet Uglow - I'm still working my way through Guinness, beer, lager, whiskey, gin, vodka, rum etc. I'll be taking my last steroid next week after two and a half years and I was on 60mg per day at the start. No ill effects to date!!

autumnlass profile image
autumnlass

I wish that I could! Alcohol now gives me such a headache even after a Prosecco! I’ve found Tesco does a No Alcohol GnT which I like. The no alcohol Prosecco is rank!! 😛. It’s the BP meds that I have to take that interacts with the alcohol, 😕 that causes the headache 🤕 so not worth it!

Roy46 profile image
Roy46 in reply to autumnlass

I’ll not go into the amount that I drink; too embarrassing. My main issue is that it makes me pee to excess. So a prob when out and sitting on a train praying for next stop to come soon. Fortunately my underground station has a loo on the platform. Bliss

Harrywogan profile image
Harrywogan

Uglow. That's a huge YES YES always at weekend and always a few lol 😆

V1a4 profile image
V1a4

What a great question - and answers! Weekend wine is good, as is a wee nightcap sometimes in the week. Going towards 79 years old a little of what you fancy .....! Healthy eating though is a must.

Noosat profile image
Noosat

Yes, and not o odd. :)

Bcol profile image
Bcol in reply to Noosat

No, mine are very even!!

cycli profile image
cycli in reply to Bcol

i'll bet 😈🤣

Bcol profile image
Bcol in reply to cycli

Can only count in two's!!!!

Coco63 profile image
Coco63

I was getting very worried until I saw the post from Loyd - I share a bottle of wine with my husband every night with dinner and I feel totally fine on it but who knows? 🥂🥳

PMRCanada profile image
PMRCanada

Yes!! Not often, but yes. 🥂🍷🍻🍺🥃🍸🍹🧉🍾 This might change if/when I start Methotrexate.

Boss302Fan profile image
Boss302Fan

Usually not wine, but an Amaretto or Whiskey sour, Margarita, or a Liqueur straight-up. Usually has 1-1/2 oz liquor rest mix. Maybe one once every couple of weeks using 2 hrs separation from meds after a meal. In addition to Pred I’m also on a low dose of blood pressure meds. I cleared it with my GP. She said once in awhile is fine.

Skysey profile image
Skysey

Hi Uglow. No I haven’t had any alcohol for the past two years. I am on leflumonide and can’t drink as it can cause liver damage. I definitely miss a glass of mulled wine at Christmas. 🙁

agingfeminist profile image
agingfeminist

Sorry to go against the majority. I gave up all alcohol as soon as I went on 60mg of steroids for GCA. Both can affect gastrointestinal issues, diabetes, osteoporosis. I decided my occasional glass of wine could go. No problem. I am determined to emerge from this as healthy as possible.

HeronNS profile image
HeronNS in reply to agingfeminist

I think the occasional serving of alcohol is probably ok, I prefer beer to wine and probably share a can or bottle of beer with someone else about six times a year, max. Sometimes I have a tiny glass of sherry. But I was never much of a drinker. Uglow

Joni21 profile image
Joni21

Cheer up Wine a little …Absolutely drink a small glass occasionally and same with beer it just determines what I make for dinner. However, during the holidays when my adult girls are here it’s a totally different story - then we’re talking shots (I only take a sip from husband’s to be part of merriment), Moscow mules, Margaritas, Mimosas, etc., but limit my intake and DO NOT keep up with them! During Lent Season I give up all adult beverage and have done so for years! ✌🏼

Tiggy70 profile image
Tiggy70

I enjoy a weak G&T and a glass of red wine with my evening meal Friday, Saturday and Sunday. I then go alcohol free Monday to Thursday. I haven’t noticed any adverse effects🍷🤪

123mossie profile image
123mossie

No problem with wine but for me, but 1 glass = 1lb weight gain next day. Only on 2.5mgm pred too but it ramps up the weight.

CrazyRunner profile image
CrazyRunner

Beer and wine regularly. I find that beer does not help the weight control since the pred makes me want to eat everything that doesn't eat me first. Dry wine, either white or red, is all I do since the carbs are lower.

CrazyRunner profile image
CrazyRunner

Thanks. I'm doing the best I can but the PMR is kicking my butt when it comes to running. I used to do about 40 miles a week and now I'm happy to get in a mile or two a day just walking and occasionally slow jogging. The energy and aerobic capacity are virtually gone. I'm doing the best I can and I'm not quitting.

Thelmarina profile image
Thelmarina

Couldn ‘t survive without it! 😅

asoth profile image
asoth

GOOD GOD YES! I have a sensible glass of white or red every evening at 5.OO ! Actually my doc has never said not to?! I cannot say I have noticed any BAD effects - but it does make me feel a lot BETTER! I am on 15mg Pred. a day by the way.

winfong profile image
winfong in reply to asoth

My dad used to tell stories about being in hospital and a drinks cart coming around at cocktail hour!

PMRpro profile image
PMRproAmbassador in reply to winfong

When OH had cancer 26 years ago there was a cocktail cart on the oncology ward - which his teetotal consultant disapproved to the extent he didn't get included! They also had one on the cardiosurgery unit in Edinburgh - said a tot the night before surgery saved them scraping patients who were up to hi-do off the ceiling ...

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