Alcohol. : Discovering alcohol does not go down... - PMRGCAuk

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Alcohol.

Rocketronzy profile image
28 Replies

Discovering alcohol does not go down well with pmra. Or arthritis

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Rocketronzy profile image
Rocketronzy
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28 Replies
SheffieldJane profile image
SheffieldJane

All things in moderation Rocketronzy.

Valnvaughan profile image
Valnvaughan

I only drink alcohol for a treat when I have "been good".

Perhaps we could help more if you stated your alcohol intake and prescribed meds doses.

From my hospital bed after right hip replacement at 9pm yesterday! Valerie

stellafmdm profile image
stellafmdm in reply toValnvaughan

All the best Valerie, and make sure to do your excercises as the Physios advise. If you do the outcome should be the best!

in reply tostellafmdm

😮 hope it is going well. In the community I live in at present. Two ladies one with total knee and the other hip. Well the hip is doing great and it is less than 6 weeks as she did all her excercises and lives upstairs. Whereas the other one with knee is still having a lot of issues but we all know she is afraid of being in pain or uncomfortable and is now using a walker and it is sad to see. Get well soon and be brave and have 🥃🤔

Linda

Constance13 profile image
Constance13 in reply toValnvaughan

Cooo! I could drink it all day then, because I am always “good”.😂😂

peace_lover profile image
peace_lover in reply toValnvaughan

So glad it all went as planned. Heal quickly. X

Hollyseden profile image
Hollyseden in reply toValnvaughan

Oh all the best. Get well soon and take it easy

PMRpro profile image
PMRproAmbassador

Oh dear - it was one of the few things that kept me going with untreated PMR!

KinnearD profile image
KinnearD

Just two months on this PMR journey and abstained initially addressing dietary changes and reducing carbs. Now that the fear of massive weight gain is less, I'm enjoying a glass of nice red wine again several times a week. A simple pleasure restored amidst the loss of many activities that I used to take for granted. I think there are lots of variables on this road.

nickm001 profile image
nickm001

I beg to differ. Glass of wine or two with dinner is my religion. Night cap shot of brandy helps me relax and sleep better. The only time I had problem drinking was when my hands hurt so much that I could not open the bottle :).

PMRpro profile image
PMRproAmbassador in reply tonickm001

Funny - I remember that!

Angiejnz profile image
Angiejnz

I too found alcohol didn't go well with pmr or fibromyalgia......but it's ok, I persevered! Now I can sit blithely in pain but well oiled so don't care. 🤣

Hollyseden profile image
Hollyseden in reply toAngiejnz

🤣😂 love it!

powerwalk profile image
powerwalk

Yes unfortunately - I too have a very bad time if I have some wine - even very small amounts. I only have it now maybe once a month at a push or if I go out for an occasion I might have a glass of wine. But it does NOT like me at all!!!!! I pushed the boat out recently and had a bit extra for a very special occasion and the results were bazaar to say the least. People would not believe that such a small amount could produce the hangover I had for the whole day - really bad. But I am suffering very badly with the fatigue of this whole PMR thing so I kind of have a head start in the feeling rotten bit!! Definitely would not be able to drink even small amounts on a regular basis. Another little joy taken away!! I do still love the look of a glass of wine!!

SheffieldJane profile image
SheffieldJane in reply topowerwalk

You just described me! So it’s not all in my head.

powerwalk profile image
powerwalk in reply toSheffieldJane

No - certainly not!!!!

Sandy1947 profile image
Sandy1947

Stopped drinking upon diagnosis of PMR (6/17)...don’t need all the sugar.

Never missed it. Down to 4 mg Pred, didn’t blow up, have 2 squares of dark chocolate every night and put my calories into bread on occasion and sometimes cake. Initially afraid of connection between various food and inflammation but let that so after I got used to living with the illness.

in reply toSandy1947

I gave up alcohol immediately upon diagnosis of PMR/GCA. I wanted to give my body the best chance possible to heal, and to protect my liver. Living in wine country it has been a sad loss from my lifestyle but once my mind was made up, that was it, now I don't even think about it. IF I recover from all the treatment and the diseases I'll go back to enjoying wine, scotch and gin! In the meantime, tea for me.

Rocketronzy profile image
Rocketronzy in reply toSandy1947

You did well boos dose us no favours.

kulina profile image
kulina

Yes, I thought it was all my head. I'm a social drinker, a drink or two on the week-ends and if I had a margarita, I'd wake up very achy the next day. So, I cut out mixed drinks and drank a beer but the same thing happened. Now, I drink half a beer and I feel fine. It's not in my head, I know it affects me. By reading the other posts it looks like we are all very different.

Cyclegirl54 profile image
Cyclegirl54

Found out that PMR and prednisolone definitely don’t like me and alcohol so gave up rapidly! One less thing to worry about!

Err! Any evidence for this Rocket?

fmkkm profile image
fmkkm

Hi Ronzy,

I used to LOVE wine💕💕💕. I find now that if I drink a couple glasses of red wine my GCA is tweaked the next day and sometimes for two days. I was constantly finding this pattern with a couple other things so I went to a nutritionist. After some testing she suggested a tyramine sensitivity. If I pay attention to what I eat and drink I feel a whole lot better. No peer reviewed paper to report just what makes me feel better from trial and error.

PMRpro profile image
PMRproAmbassador in reply tofmkkm

I avoid a lot of red wine - almost no problem with whites. If it is a red wine I'm not really familar with I either avoid it or take antihistamines. On the advice of an immunologist...

fmkkm profile image
fmkkm in reply toPMRpro

I do occasionally have a white and it doesn’t seem to affect me as much. Great tip taking antihistamine though, might try that sometime.

PMRpro profile image
PMRproAmbassador in reply tofmkkm

The immunologist said it had all the hallmarks of a food allergy but we could spend the next 20 years trying to identify it! So - take an antihistamine! So I said "But it says not to mix with alcohol..." "Pffft - it's fine!" was her reply ;-)

Marilyn1959 profile image
Marilyn1959 in reply toPMRpro

My kind of immunologist!!!

fmkkm profile image
fmkkm

The take away from this is, we all have a chronic inflammatory disease right now on this forum and anything that causes your particular body inflammation, avoid it! It’s different for everyone.

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