Just a quick note to wish all improvement and acceptance in the coming year.
May we all be vigilant and great advocates for what we need. One of toughest things to develop for me is making my patience a stronger part of me. Do I know much exactly?~~NO~! But I do know I have a chronic condition, I need to speak up to make myself comfortable, give myself time to rest and TIME.... and patience to allow all these changes to take place in my body.
One thing I have learned, some the hard way, that though I am on steroids and Actemra~~I have a collection of other health conditions which must be considered in managing my steroid and interlukin....those drugs affect the effectiveness of my other medications. Some health conditions have been ressurected by the abundance of steroids....and med dosages changed. There are a few conditions I don't want to see return.
That is where the patience comes in....and I'll be working on it. The pred has ramifications throughout our bodies and doesn't just zero in on our PMR/GCA. iT IS A CHALLENGE, FOR SURE, but with the help of this forum....we will make it. You have all lit the fire of hope under me....and (for now) there are simple indulgences which are incredible!!
My best to all....xo M