We've been back from our 2 week UK trip for 8 days and I am almost recovered. Not PMR wise but just tired from the amount of travelling (2000kms) and stimulation from contact with so many people.
Today is 3 years since mum died and I was recalling how stressful the build up to getting to the UK for cremation was and how I was juggling my steroids. I'd only been pseudo-diagnosed for 6 weeks and was on 15mgs....I cannot now remember but I think I took some extra during the UK week.
Now, 3 years on, I am on 8mg. I took 7mg last Weds and not sure I noticed the drop...although I have been suffering with lasting effects of travel sickness which reared it's ugly head on our last Friday. I spent 3 hours sleeping in darkened hotel room missing my planned visit to lunch with my sister. This meant adding more into Saturday, visiting 3 people and doing our UK grocery shopping....an amazingly I felt fine. A little tired afterwards but normally tired. Had I still been full on PMR, one or 2 of those would have been pushing it.
I am waiting for the post lady with my blood results, I am pretty sure my CRP will be down again....I am not feeling PMRy at all. I worry though that I could have the rug pulled from beneath me and have a flare.....but making the most of feeling well. Have been weeding this morning, not loads as I get back ache and have to sit to restore it every 20 mins. Was even able to get out and supervise mon amour before he strimmed. He's a slash and burn gardener and I lose important things if I don't preempt him.....it's amazing having the energy to do that
As I am sure you can imagine it was lovely spending quantity and quality time with Thea. We spoke on Skype yesterday and she wasn't bothered to come and see us much.....that pleases me, as I believe it's because we're not so 'strange'now
For those of you at the beginning of your journey, there is light at the end of the tunnel. I wish all of you good health and peace.