Hi everyone, it’s been a while since I have posted on here. Diagnosed PMR in Dec 15. I had my gall bladder removed last January and was doing well reducing Pred and weight loss before that. Rheumy suggested I go up a little, while having/recovering from surgery, which I did. Had a bit of stress last year, with selling house of 27 years and down sizing. Sorting and getting rid of lots of furniture etc. Then our buyer dropped out two months into the sale and we lost the house we were buying. Then My Son had an accident, to cut a long storey short I am still on 5mg of Pred. Feeling very tired most days, hips back hurting and not easy to walk far most days, have gained weight again too. When I try to reduce I get the aches in my arms ( it started with this and I couldn’t lift them at all ) I thought it would be so easy to just keep reducing till I didn’t take them anymore ! It doesn’t work like that tho ! We have now moved to a lovely little house with beautiful rural views. I am very lucky. I realise stress has a lot to do with this disease, I know that I stress and get very anxious about things I would not have given a second thought to years ago. I would love to hear of anyone that has beaten this and how long it took to do so. I feel most people do not realise how you are feeling / coping with PMR as you look ok on the outside.
We must try to look for the rainbows in our life and be more tolerant and listen to our bodies and not feel guilty that we can’t do things as we used to.