Hi, my name is Cindy. My first post here. I've been looking and ....then I go away. To find anyone out there that knows what I'm going through is at once uplifting, and then very sad that there are so many without relief. I hope to share my story soon. I have new insurance starting soon that I selected based on the Dr I wanted to see for my hypothyroidism. I experienced sudden blindness (both eyes) in the fall of 2016 that lasted for approximately 12 hours. I say approx. because I woke up blind. I never knew there were so many corners in my room as I felt my way about, trying to get out! The blindness I had was bright, intense white. Not dark. This was the beginning of a journey of learning about about GCA. I know that the vise that's on my head is not a simple muscular headache! One Dr actually told me to rub my temples for relief! Anyway, I hope I can add positive experiences along with some laughter, my pain reliever of choice. So, Hi. Btw, anyone also have visible CMs or Arterial Venous Malformations/Capillary Malformations? My family's AVM/CM gene is passed on through female progeny only. This past week has been one of the worst for me. The pain was so so intense. My family and friends are great but they don't know how frustrating and painful this is for me and quite frankly I hide it from them. I live over 1500 mile away. Love to you all!!!