So this past weekend brought very unpleasant pain back, my scalp began hurting but nothing as bad as before and didnt last to long but for the past three days my neck is so stiff and achy as is my groin. What a shame that I had been feeling so good before the taper two weeksa ago and never got back to that feel good state since the Dr. put me back on original 10 mil dose of pred. I have the neuro opthmologist on the 16th of this month so I need to wait it out.
I'm just so upset that the pred isnt working now like it did, I probably need a higher dose.
I told my Rheumy today that if does not treat me as if it is pmr at least until the 18th when I see the eye Dr. and help me with the prednisone then I will go elsewhere. He looked at me like I was insane. I told him that he is not understanding all that I have read here and elsewhere and since he won't try to do as the guidelines say I will be forced to keep searching for a Dr. who will at least hear me out and not shut me up.
This may be a risk for me but I have no other choices at this point, I'm at a loss as to how I can make him see the pain I'm having now after I was pain free. Something is wrong with his form of treatment and I need to find out why this is happening.
Is it possible for pred to just stop working? Is it possible that the lower does is not working and it needs to be higher until I feel good again? Or is it possible that something else is going on but all of my other tests didnt prove that.
Tender scalp, stiffness in neck, shoulders and groin, all of this sounds like pmr & gca which has me far more worried.
TY to all who read this I feel like everyone here knows what I'm going through and understand more than any Dr. I've seen.