I think I said I’d do that if I was osteoporotic.
Saw consultant today and my T scores are 0 and 0.5 (spine/hip). So that’s my answer to the AAcid sorted 😀
Blood tests all normal, CRP less than 1. ESR 8 I think she said. Which is fine and dandy, as ‘the steroids have inflammation under control’.
We went through my records of pred dose, she agrees at 10mg I had a flare, via 15 now at 12. She told me to SLOW DOWN! 1mg per month, no faster, some people just can’t reduce as fast. (All my own fault NEEDING to get to 10, half of my starting dose!) Methotrexate was mentioned IF I can’t get lower, but she already guessed my reaction to that without asking.
On the down side I showed her my BP readings which vary from left to right arm, and she’s sending me for an urgent CT with contrast to check my aorta and arteries. Repeat ANA, ANCA and immunoglobulin today. Also a C3 and C4, shall have to look those ones up unless anyone can enlighten me? I know I had ANA, IG and rheum factor done in September, so assume they were OK then. So I shan’t panic, this seems like a responsible thing to check. She also asked about any GCA symptoms, fleeting temple pain and jaw stiffness, but not for months, no crashing headaches, so fingers crossed.
Oh and in passing she said that PMR is the mild end of the vasculitis spectrum, so all in all I’m impressed with her knowledge and attitude. Poor love did seem to be somewhat stressed/hurried, but did ask if I had anything else to ask her. No registrar working with her.
Back again in 4 months. Now to de stress!