The nurse came yesterday to got through stuff with me and I administered my first injection, which was all fine.
But they obviously didn’t know anything about what I should be doing re the prednisolone and dosage.
I am taking 30 mg at the moment. I was originally on 40mg and the consultant tried to get me to go to 25mg but my symptoms returned and so I went back to 40mg and have reduced it since Christmas.
I emailed the rheumatology nurses after they left who got the consultant to ring me.
She wants me to reduce the dose by 5mg each week until I get to 15mg and then keep there.
Does that sound like the right thing to do? She always talks about how my CRP and ESR are normal now as if that should be it, but in fairness to her I did ask what I should do if I get more symptoms coming back, and she said to increase the dose by 5mg. I don’t have a lot of faith in her as I know she never really reads my notes and gets a lot of stuff wrong, and I always feel she is desperate to get off the phone and so it’s after that I think of things.
I also believe that Actemra can take a while to kick in.
The other thing I wanted to ask is, if I forgot to do it on the correct day will the following day be ok?
I am forgetful at the best of times, hence having Mon-Fri medication dispensers, but obviously this is different.
A huge thanks in advance.
I love this site and all of you on it, invaluable to me.