Hi everyone, I have been reading posts on here for a few weeks now and have found them very helpful, so I thought I would share my experience. It started last summer in August, I have suffered with low back pain over the years, if I did too much gardening or too much lifting at work, but the pain became more constant and started to travel down the backs of my legs, as if I had pulled all the muscles. To sit down or to stand was so painful, the Doctor suggested Physio and to cut a long story short I was off work for about 5 weeks, went to Physio, Bowen, Chiro and had Acupuncture. Nothing really helped, but eventually the pain subsided in my legs, but I still had the lower back pain, I'm 60 and have always worked, had a Hotel for over 25 years, bed making cleaning etc, you just think wear and tear, age etc so just take pain relief. Around late October time I started to wake up with a stiff / painful arm, like I had slept awkwardly on it, during the day it would wear off. Then it was both arms, and I started to find lying on my side ( shoulder area ) very uncomfortable. Eventually I couldn't lift my arms above my head, it felt like they were super glued to my body, I couldn't dress myself /shower / do my hair properly. In bed at night I couldn't turn over, would end up crying in pain and frustration and started sitting in a chair in the middle of the night to try to get relief. The Doctor didn't know what the problem was, I thought it might be related to my back problem ? or trapped nerve ? so she sent me for Xrays and keep taking Ibuprofen. They did blood tests but nothing showed up. I eventually went sick at work, I just couldn't understand what was the matter with me, felt so tired and weepy. I started to google my symptoms and eventually found PMR which I had never heard of. In early December I phoned my Doctor and suggested I might have PMR she said it had not showed in the blood tests but that it didn't always show up and that sometimes they prescribe Prednisolone to see if it helps your symptoms. After all the weeks of agony I would have tried anything ! In just 2 days of 15mg per day all my pain was gone, it was like a miracle cure. It was just before Christmas and I felt so much better. After only one month on 15mg the Doctor suggested reducing to 12.5mg which I was on for 8 weeks and although I do not have much discomfort in my arms, my low back pain seems constant if I am standing/walking and I do not feel as well as I did. I go down to 10mg today and am hoping I will be ok. The recent blood tests show the inflammation is coming down, I do still feel overwhelmingly tired some days and weepy and bad tempered. I find the steroids make me feel bloated and have painful wind also leave a horrible taste in my mouth. I have to take Alendronic Acid tabs once a week and the Doctor has just prescribed a 'Tummy Protector ' which I pick up today. I have been off work for almost 4 months and can not imagine returning while feeling like this. I think it is hard for others to understand what you go through with this disease and how long it takes to recover. I will keep you posted.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.