Bad week: Started feeling cold "inside", which... - PMRGCAuk

PMRGCAuk

21,227 membersβ€’40,248 posts

Bad week

Constance13 profile image
β€’61 Replies

Started feeling cold "inside", which proceeded continuous shaking. Couldn't get warm even with a bathrobe and double duvet over me. Needed to go to the loo - got up and collapsed. Then the difficulties really started. I couldn't get up, husband couldn't move me. We tried to get me to toilet, or at least back to bed. Not possible! Twenty-five minutes later decided to ring 116/117 (equivalent to 111 in England (I believe)! First thing they asked "have you been to a doctor (I'm on the floor remember). It's now 12 noon and the say "it is our lunch break now"!?!

Tried again to get me up. Eventually had to ring for Paramedics. They came within 8 minutes.

Long story short! Paramedics were fantastic - took me to toilet, helped to change my clothes, got me back to bed. Said I should go to hospital (by this time "exhaustion" wasn't in it) I refused (who goes willingly to hospital in these troubled times)?

One week later I'm still in bed but much improved. Kidneys were very painful. I'd fallen on my very arthritic hip so movement was very difficult, but it wasn't broken.

Nothing to do with PMR/GCA but just wanted to report how wonderful the Paramedics were.πŸ‘πŸ‘πŸ‘πŸ‘

Written by
Constance13 profile image
Constance13
To view profiles and participate in discussions please or .
61 Replies
β€’
SheffieldJane profile image
SheffieldJane

Sending gentle hugs. What was it? Kidney infection?Get well soon! 🌷

Constance13 profile image
Constance13β€’ in reply toSheffieldJane

Thanks Jane. It is a kidney infection, yes,

DorsetLady profile image
DorsetLadyPMRGCAuk volunteerβ€’ in reply toConstance13

My sympathies- I had kidney infection when I was in my early twenties - thought I was going to die! .. bit dramatic but at 2 o clock in the morning you think all sorts of things! And yes, extremely painful πŸ˜–

Get better soon. ❀️

Wcg1 profile image
Wcg1β€’ in reply toConstance13

Take very great care, I had an episode like this a few years ago, a kidney infection which developed into sepsis. Are you on antibiotics? I ended up getting to hospital where I promptly collapsed and ended up in hospital on intravenous antibiotics for a week. I do hope you feel better very soon. πŸ’

Constance13 profile image
Constance13β€’ in reply toWcg1

I've had sepsis so I was very aware of what I had to look for. I suppose I should have had antibiotics but didn't want to go into hospital. I just upped the Pred for a few days and then "waited to see".

Gradually getting back to normal, thank goodness.

πŸ’

MrsNails profile image
MrsNails

Oh Constance, have you been in touch with your GP? Are you feeling any better?

Sending Love & Hugs πŸ’

Angela xx

Have you had a Covid Test?

Constance13 profile image
Constance13β€’ in reply toMrsNails

Feeling much better now Angela, thank you. To both questions 'no'. Doctor doesn't do house calls at the moment. Wouldn't be well enough to go for a Covoid Test. Husband looking after me much more than the help I would get in hospital.

MrsNails profile image
MrsNailsβ€’ in reply toConstance13

Glad you are feeling better πŸ™πŸΌ sounds like a nasty bug or virus.

Continue to get well

Keep Safe Both of You πŸ™πŸΌ

Angela xx

Constance13 profile image
Constance13β€’ in reply toMrsNails

No - it was definitely a kidney attack. I've landed up in hospital three times already over the last five years) so I know the drill and just 'couldn't' go through with it at the moment.😏

MrsNails profile image
MrsNailsβ€’ in reply toConstance13

I can imagine, keep safe & well xx

Dambusters profile image
Dambustersβ€’ in reply toConstance13

I feel so lucky. When I was really ill, the doctor came out looking like a spaceman....but that was before we went into Tier 3.I do hope you're better soon.

Constance13 profile image
Constance13β€’ in reply toDambusters

Thanks Dambusters. Sometime this drafted disease (Covoid) will be over. I think we have learned a lot about behaviour (good and bad). I hope we will be wiser and more understanding in future.

123-go profile image
123-go

You poor soul! What a horrible experience! If the kidney pain returns, hopefully not, do seek advice.Paramedics are wonderful; I haven't had any personal experience but others close to me have and give them high praise.

Rose54 profile image
Rose54

hope you are feeling better

Constance13 profile image
Constance13β€’ in reply toRose54

Thank you! I'll get there. 😊 🀢

PMRpro profile image
PMRproAmbassador

I know, got a tame one - but naughty Constance is going to get a telling off from me again: FIRST call in a situation like that is 112. I'm younger and fitter than you two and I couldn't get anyone up from the floor on my own. Messing about for that long could have been the difference between HAVING to go to hospital once they arrived.

Your GP is a bit pathetic - ours has been doing house calls for those that need it all along and OH has had a couple of hospital trips in the last month, one just a visit, then an out-patient procedure a few days later and then a couple of days inside.

BTW - I was wondering where you were, I had noticed you were rather quiet ...

Constance13 profile image
Constance13β€’ in reply toPMRpro

Last sentence! I thought you would - and I fully accepted/awaited my usual telling off as far as doctors/hospitals are concerned.πŸ˜‚πŸ˜‚πŸ’₯

PMRpro profile image
PMRproAmbassadorβ€’ in reply toConstance13

:) :) :)

But I really am totally serious - please promise it will be 112 immediately next time. And if 116/7 REALLY answered like that - I'd be putting in a complaint.

Constance13 profile image
Constance13β€’ in reply toPMRpro

They really did!! David was furious.I've ordered a Johaniter Notfall Armband. They will look after us in future.

It was the 'hospital' I was afraid of - that's why I didn't want D to ring them!!

Thanks for your care. πŸ‘πŸ€Ά

Constance13 profile image
Constance13β€’ in reply toPMRpro

Just asked D if he wanted a roll with lunch. He answered "no leave it till nearer teatime"!!! I thought he'd lost the plot somehow - until I fell in myself.

Really - at his age!?!πŸŽ…πŸΌ

GOOD_GRIEF profile image
GOOD_GRIEFβ€’ in reply toConstance13

'Tis the season...

PMRpro profile image
PMRproAmbassadorβ€’ in reply toConstance13

Apparently never too old ... ;)

GOOD_GRIEF profile image
GOOD_GRIEFβ€’ in reply toConstance13

For some reason, Rockin' Around the Christmas Tree has been worming my ear all afternoon having read this....

yogabonnie profile image
yogabonnie

so sorry you went through this! Bravo Paramedics.

Kendrew profile image
Kendrewβ€’ in reply toyogabonnie

HI YOGABONNIE. Just thought I'd catch you as I saw you here! I've sent you a couple of private messages and wondered if you'd received them as they seem to keep disappearing into the ether!! Initially they're visible as being sent and then I can't find any trace of them!! Most strange! Everyone else .......please forgive me for hijacking this post!

yogabonnie profile image
yogabonnieβ€’ in reply toKendrew

HI. I did see them and answered! these chats are bizarre. and Yes ANYONE who wants to join is welcome!! you can give them the link or have them email or message me! I think one person did. And I emailed! thanks

Kendrew profile image
Kendrewβ€’ in reply toyogabonnie

Oh dear. Not sure what's going wrong as I didn't receive any replies. No worries. Looking forward to seeing you again Thursday. These sessions have been brilliant. Thankyou so much. Xxxx

PMRpro profile image
PMRproAmbassadorβ€’ in reply toKendrew

Report the problem to HU.

Kendrew profile image
Kendrewβ€’ in reply toPMRpro

Done.........automated message came back saying either messages not recognised so probably in my spam folder (they weren't!) or they've been blocked. Another member had similar issue whilst trying to message yogabonnie so maybe problem is yogabonnie's end.

Longtimer profile image
Longtimer

Oh dear, what a dreadful response you got, a complaint is needed!Glad though that you have it sorted and at least know what is wrong.....hope you feel better soon.....πŸ™

Suffolklady profile image
Suffolklady

Get better soon πŸ’•

Marilyn1959 profile image
Marilyn1959

Hope you improve soon. Thinking of you and sending virtual hugs. Xx

Kaaswinkel72 profile image
Kaaswinkel72

Send them a donation with your thank you card. They usually don t get those nice thank u... only human!!

greengages profile image
greengages

Hope you are feeling better very soon. Prone to kidney infections most of my adult life so my heart goes out to you. They are the thing I dread coming down with the most. Sending hugs, stay warm and safe xx

Constance13 profile image
Constance13β€’ in reply togreengages

Thanks greengages.πŸ’ Even worse for me this time as I am having bowel difficulties too - pain all the way!😏Must keep my pecker up though - there are so many far worse than me around.

greengages profile image
greengagesβ€’ in reply toConstance13

Double whammy just what you don’t need! I hope you pick up soon and are able to enjoy xmas. Take care, I hope the pain eases soon x

York54 profile image
York54

Hope you are feeling better Constance, take care xx❀️

Kendrew profile image
Kendrew

What a dreadful situation to have experienced. Very pleased you're on the mend........Oh!!!!......and your husband's 'cheeky quip' really made me lol too....and reminded me so much of something my husband might say! It's good to laugh.

prunus profile image
prunus

Very very sorry to hear of your troubles. It is not possible not to have problems at our age and we are older than you. I had to call the paramedics out on one occasion when my OH had sat on the edge of the bath and slid backwards into the bath. Neither of us could do anything. They came with an ingenious device which they managed to get under him and then kept pumping air into it so he slowly rose up. I found it amusing but very clever. We've had the paramedics out more than once with the lockdown to him but he too has turned down going to hospital in the present circumstances. Hope you're well on the way to recovery now.

Constance13 profile image
Constance13β€’ in reply toprunus

The joys of getting old??? One doesn't realise how very dedicated most of the paramedics are until something so trivial as picking someone off the floor (out of the bath) just help with a smile. They have seen sooo much, a lot of dreadful things and they don' turn their noses up at helping in small ways.πŸ‘πŸ‘πŸ‘πŸ‘πŸ‘

prunus profile image
prunusβ€’ in reply toConstance13

Couldn't agree more because by comparison a couple of years ago one came when he was on the floor in the bathroom and almost immediately diagnosed sepsis and it was. On that occasion I had called out the emergency doctor on the two previous days and all they had done was change his antibiotics! He was immediately taken to hospital by the paras needless to say.

Constance13 profile image
Constance13β€’ in reply toprunus

And now-a-days if the paramedics come they don't insist on taking you to hospital (as they used to).

PMRpro profile image
PMRproAmbassadorβ€’ in reply toConstance13

A positive of Covid I suspect ...

prunus profile image
prunusβ€’ in reply toConstance13

No they don't. In fact when they have come they are putting the onus on you far more to make the decision. On one occasion they were in contact with a doctor for ages in their vehicle when my OH had said he wanted to stay at home.

PMRpro profile image
PMRproAmbassadorβ€’ in reply toprunus

You do have to remember that if he had stayed at home, deteriorated further and died an inquiry would have been held and the paramedic's career would have been on the line. They have a duty of care, like all medical professionals, but they also have strict limits relating to their own capabilities. A paramedic may well be working with a technician who is earning more than them because of length of service - but the paramedic holds the responsibility for any decisions made by the technician. If a paramedic advised me A&E was the best place to be - I'd go with them.

Constance13 profile image
Constance13β€’ in reply toPMRpro

I know this was meant for prunus but just wanted to add - the Paramedics asked both me and my OH If we thought going to A & E would be best. We both answered it was entirely our wish to stay where we were. We had been through it all before and told them if there were any difficulties we would get in touch immediately. Lot's of people say this at the moment- and I am sure they made a note "at patient's request".

prunus profile image
prunusβ€’ in reply toPMRpro

That is very interesting information. Many thanks for that. I learn as I go with medical information. Are they rolling out Covid 19 vaccine with you? My friend and her husband up in Wellingborough were getting theirs today. We here have heard nothing as yet inspite of my OH in the highly vulnerable group.

Constance13 profile image
Constance13β€’ in reply toprunus

I live in Germany and they haven't started vaccinating yet - at least I don't think so. Someone will probably let us know when we are supposed to get the vaccine.

PMRpro profile image
PMRproAmbassadorβ€’ in reply toConstance13

Not approved here yet - next week maybe???????

prunus profile image
prunusβ€’ in reply toConstance13

Yes I know you live in Germany that was why I asked you. I see Angela Merkel has done more champing down because of the severe rise in the number of cases.

Constance13 profile image
Constance13β€’ in reply toprunus

They have started the vaccinations now.Yes, AM has at last managed to get all the 'states' to listen to her - thank goodness.

prunus profile image
prunusβ€’ in reply toConstance13

The problem is more acute for the places where people live in close proximity to one another. Having said that my next door neighbour, who was having carers, died from it in May. My elder son came and told me a colleague's son has tested positive. That was last night. Not very comfortable. It is the first time my OH has not bought me a Birthday Card through it, but I have had a lovely basket of flowers delivered.

PMRpro profile image
PMRproAmbassadorβ€’ in reply toprunus

Not until mid-January and even then our region gets about 27,000 vaccines for the first batch for half a million people. Not holding my breath! I think the priorities here are care home residents/staff and medical staff.

prunus profile image
prunusβ€’ in reply toPMRpro

That is the same as here. I'm wondering if my friend is lucky. My friend's daughter is quite high up in the nursing profession and I think she administered it to them.

Oumaof2 profile image
Oumaof2

Hi Constance, hope you're on the mend... Hats off to all Paramedics, they truly are 'Angels'... Love your and your husband's GSOH🀣🀣. Hope you're up and about soonest πŸ’

Lena x

Telian profile image
Telian

Sorry to hear you’re so unwell Constance. I’ve had the same and it does make us more ill as we get older.

Keep the fluids up and contact GP at least to update him.

Thinking of you. 🌹 x

Constance13 profile image
Constance13β€’ in reply toTelian

Will be seeing a new doctor on Thursday. Time to have a doctor nearby in future.

Whitner profile image
Whitner

Hi Constance13. I hope you are feeling better soon! I reread above and it appears you are not on an antiobiotic, is that true? Sure seems like that's what you should be doing as well as drinking lots of water. Just my two cents worth.

MaryA_ profile image
MaryA_

So sorry Constance13, this has happened to me also. Muscles are so weak just cannot get up. Legs seem to just collapse , so now I’m living with Son. Afraid to climb the stairs to bedroom.

MaryA_ profile image
MaryA_β€’ in reply toMaryA_

My bedroom at my home, theirs is on one level. It’s scary

Constance13 profile image
Constance13β€’ in reply toMaryA_

Thanks Mary. I'm improving nicely now, able to walk around the flat and do a little tidying up. Age takes some getting used to!!! πŸ˜‚πŸ‘΅πŸ»πŸ‘΅πŸ»

Not what you're looking for?

You may also like...

Feeling wierd

Hi, sorry it's me again, I had a really funny turn last night, I decided to take my pred a bit...
Poppylop profile image
β€’

Another Thank You.

On New Years Eve I wrote a post about pains I had in my calf. Several people advised me to get it...
ChrisinNam profile image
β€’

Hi All

I'm new to all this, I was diagnosed with PMR in April 2015, It was caused by an allergic reaction...
Lorraine21 profile image
β€’

Excercise for old ladies

I did say "old"! Struggle to edge of bed - swing your legs, wiggle your toes, wait a couple of...
Constance13 profile image
β€’

Misdiagnosis and confused

hi bit of a long story but in jan/feb 2016 noticed that I was having trouble lifting my feet to put...
Sutony57 profile image
β€’

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.