I am new to this forum and have just read PMRpro Vounteer's comments on this subject. I would appreciate his/her views on my experience.
I have had 5 courses of prednisolone in the past 10 years each time reducing to zero.
2006 PMR - started on 20mg in January gradually reduced to Zero in November;
2007 Giant Cell Arteritis - started on 20mg in March, reduced to zero in September:
2008 In August had painful right shoulder and right leg - referred for physiotherapy and had cortisone injection in shoulder. December feeling very lethargic and prescribed 20mg pred. reducing to zero in September 2009. During this period I was continuing to have shoulder and leg pains and difficulties getting out of bed - treated by painkillers, muscle relaxants, physiotherapy, cortisone injections. November 2009 x-ray of shoulder and hip showed that there was no soft tissue in the joints. ESR was 95. Started on 30mg pred. Had very successful hip replacement operation. Wouldn't operate on shoulder as pain not severe enough. Pred stopped in December 2013. May 2014 read that treatment for joint problems is vitamins C and D Zinc and Manganese. Started taking multivitamin tablets daily; now pain free and strength returning to arm. GP said should consider having a basic therapeutic level of Pred. in view of history of PMR but he retired before setting this up. New GP reduced it to zero in August 2015.
2015 September more muscle pain and lethargy. Started again on 20mg.
Other relevant information. Had a fall in March resulting in a wedge fracture of a disc. Put on medication for osteoporosis; bone density test showed bones fine and medication stopped.
Since 2002 have been under the care of a haematologist for paraprotenemia with blood test at least every 6 months - no problems detected.
I am 91.
What level of Pred. should I tell my GP I should be taking to, hopefully, avoid a recurrence?
Does PMR tend to affect men and women differently?