Have had PMR since Jan 2015. Started on Pred 20mg and from Mar supposed to decrease by 1mg/month per GP. My rheumatologist preferred I try reducing more aggressively and said if I found it problematic to do an every other day routine with each decrease. For some reason I can't get down past the 10 - 11mg dose. Also in the past few months my hips have been painful and walking is unsteady. My GP says that it may be the Pred but I think it is the PMR. Desperately want to reduce dose because of hair thinning and wt gain. I know the pain relief is the first priority but I watch every morsel I put in my mouth, can't sleep and hair is falling out. It so frustrating that most MD's don't know as much about PMR as this forum!!! Has anyone found if Biotene (sp?) helps with hair loss?
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