I have not posted for a while, not been feeling too good. I have been gradually reducing the preds. I am finally down to 5 mg a day, I was on 60 mg last December. The withdrawal has been a nightmare of side effects, pain, depression and work, just kept going with the aim to get of the steroids.
My dr has now referred me for a knee replacement, which is great. Originally wouldn't until I was 70. I am 61 and was very healthy and active until diagnosed with both Gca and PMR dec 2014
Rheumy says the Gca has burnt itself out from the results of the biopsy
I have also seen an eye specialist and the pressure was really high in both eyes, I now have eye drops that seem to be helping
They don't feel like they are going to burst all the time now.
Now 2 days on 5 mg and just feeling tired and a bit head achey not too bad though. Next drop will be in 1 mg at monthly intervals so hopefully be off the preds in 5 months. Can't wait to get off them. All my blood tests are coming back normal which is great.
The Drs surgery has contacted me for my flu jab, does anyone know if this is likely to affect anything to do with Gca or PMR as I would prefer to know before I get it done, I have asbestosis as well, so flu is a serious issue for me, last time I got flu I ended up in hospital with pleurisy.
Anyone got any ideas on when I should start loosing some weight my dr has given me a diuretic but not seeing much change so far