June 20th my world changed as the body aches I'd been experiencing for years escalated to a point beyond belief, I starting running a fever and the vision in my right eye got weird. After multiple blood tests, two emergency visits and a visit with my GP which resulted in a third emergency room visit I was admitted to hospital. My CSR was over 70, c-reactive protein was 19 and the diagnosis came thru. After five days in hospital, steroids intravenously and many more tests the diagnosis was confirmed.
The relief after the first dose of steroids was unbelievable! Wow. I was sent home on 60mg a day, plus low dose aspirin and percocet for pain. Now that i've had a chance to rest and get my brain unscrambled I am so appreciative of this site. Great information, wonderful to know I'm not alone, sad that the USA doesn't have this kind of support.
In the middle of all this my GP closed his practice so I had to find a new one, which I did and she's wonderful, and trying to get an appointment with a rheum is quite a challenge.
I'm now weaning back, first day at 50, then one week at 40 then back to the GP on the 24th and finally to the rheum on 7/28.
Thanks for listening!