Hi.....I was diagnosed in July this year age 52, although I have been suffering for a lot longer 😩 I was originally put on 15mg pred and reduced to 12.5mg after 4 weeks,, this triggered a flare so doc put me back to 15mg. I am currently on day 11 of another flare where my days consist of dragging myself out of bed, showering and then being able to do nothing only sit. My doc has increased the pred to 20mg (on Monday) and referred me to a Rheumatologist, the original appointment was 22nd October but hospital rang yesterday to say they had a cancellation for this Saturday at 12!!! how lucky am I? Has anyone else not found relief with the steroids? I did originally, within a day, but now they seem to be doing nothing only giving me the side effects. Doc wonders if he was barking up the wrong tree with his diagnosis..........but what else could it be I ask?
Maybe I will find out more at my Rheumy visit.....
One of my main concerns at the moment is how do you hold down a full-time job when you can't function? I work in a nursery and I'm finding it really difficult, I've had more days off than I've worked in the last 2 months, does anyone else struggle to work? if you've had to give up work how can you cope financially....it scares me just thinking about it 🙈🙈🙈
Thanks for taking the time to read
Love Karen x