Finally, I've seen a consultant who seems to understand this wretched illness and the difficulty of reducing steroids without causing a flare up. He knew what I was talking about when I said I was trying to follow the Kirwan reduction plan, deplored the fact that not much research is being done on PMR/GCA and most important for me, he confirmed the diagnosis of GCA which my GPs have been havering about since July - despite putting me on 30mg pred to hedge their bets. I've had bloods taken and he's seeing me again when results are through. It's such a relief to feel that I'm not out in the wilderness anymore, trying to organise my own care with my only -albeit invaluable - support and information coming from this forum for which I am so grateful.
Interesting that he is not a rheumatologist but a neurologist!