Posts - PKD Charity for Autosomal Dominant PKD | HealthUnlocked

PKD Charity for Autosomal Dominant PKD
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Blood in urine

Hi everyone. Still new to all this. Just wondering if it is common to have whit...

I am Coming Along

I shared in my last post about me being extremely fatigued, I ended up in the Er...

Status Udate

In my last post I shared how I have not been feeling well, to date there has bee...

Back In The Bed

I have been feeling great for a while but that came to an end, I spent all of la...

Doctor Visit Today

I like so many of us chronically ill persons suffer with depression and anxiety,...

First Box Down

Today is i complete my first box of Jynarque, my last blood work and urine came ...

Tolvaptan and PLD

Hi My nephrologist is consider starting me on Tolvaptan. Has anyone heard of the...

I'ᗰ Oᑎ ᒍYᑎᗩᖇᑫᑌE 👏🏽👏🏽👏🏽👏🏽

ITᔕ ᗷEEᑎ ᗩ ᗯᕼIᒪE ᔕIᑎᑕE I'ᐯE ᑭOᔕTEᗪ ᗩᑎYTᕼIᑎG, I ᕼᗩᐯE ᗷEEᑎ ᗪEᗩᒪIᑎG ᗯITᕼ ᗪEᑭᖇEᔕᔕIOᑎ...

Please Help Me

I’m sorry if this is the wrong forum, I just picked the first one because I’m in...

Ruptured cyst

Hi I have PKD and PLD. A recent ultrasound showed up a cyst has been bleeding. I...

1st appointment questions

Hi I’m about to go for my first appointment with the nephrologist (UK on NHS) I ...

Concerned about large kidney cyst.

Hi all, I’m not sure if I’m in the right community but wonder if anyone has some...

Checking In

I haven't been on here much lately, trying to deal with depression and anxiety w...

Just diagnosed with PKD

I’ve just had my first diagnosis and waiting to get results on the stage it’s at...

Polycystic liver

Hello I have pkd and also polycystic liver, I recently under went an attempted l...

Health Insurance

Dear All, I have been diagnosed with ADPKD recently. Iam 31 years old and a...

Tramodol

Just been given tramodol for chronic back pain

Update

Hello beautiful people, I haven't been on here lately its because I have been bu...

Found cysts on MRI

Had a lower back MRI back in April and cysts were found on my kidneys!! I knew ...

PKD to PLD

I was diagnosed with pkd about 19 yrs ago and it’s laid pretty dormant but about...

Feeling worried....

Having PKD for aslong as i can remember it's never affected me that much, until ...

Kidney removal?

Hello. I was wondering if anyone in this group has had a transplant where your ...

MY LIFE IN PKD📸

Let me state firstly this is my journey and i am just sharing my experience. A m...

Travel insurance with pkd

Hi, both myself and my 9 month old son have recently been confirmed to have Pkd,...

Saturday IR Update

Hi guys, I hope this day is meeting you guys in no pain. I seem to be doing grea...

Pkd.

I am 37 years old,pkd patient.numbness in hand shortness of breath,anemia....wha...

My Life I Pkd📸

I have been having a fever after the procedure so I thought this just an after e...

MY IR PROCEDURE

MY LIFE IN PKD📸 I live my life in pain so much its become normal, however it c...

INTERVENTIONAL RADIOLOGY

So people, in 2017 I had two cysts drained intervention radiology on my left kid...

Happy Friday!

I am having a wonderful week and day in spite of me feeling tired. I can no lon...
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