Genetic Testing for PKD1 vs PKD2
wirivergirl12 days ago
Has anyone gone through genetic testing to determine whether you have the PKD1 vs. PKD2 mutation? My nephrologist is thinking about requesti...
Rash and hot flushes
Stinkydog17 days ago
I was diagnosed with pckd back in 1987 and have had little quirky pains on and off for years. Blood pressure well controlled and been seeing...
Pkd urine infections and lower back pain.
Pld3023 days ago
I was diagnosed with pkd age 23 now I am 30 I get alot of lower back pains alot. I have urine infections every month which makes me so weak ...
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dominiquegreena month ago
hi my name is dominique greenidge and i wanted to know would i get pkd , my mom had got it after she had me, what does tgat mean for me
Christine501a month ago
Hi, EGFR now dropped to 11, and PD catheter being fitted next week, followed by a Fistula soon after. Any advice on coping with Peritoneal ...
going on vacation- any advice?
JoanneManning2 months ago
just a short jaunt to the Florida Keys but I am worried about following the low sodium diet while there....I am pretty strict with myself ab...
Was Diagnosed at age 20 with PKD I’m 53 now
bonneville2 months ago
Hello members, my GFR is at 23
The cysts are going up my liver and Pancrease, it’s a hit and miss with pain, doctors don’t seem to get it ...
Liver cyst drainage and de-roofing
1234322 months ago
I have pkd which has also lead to liver cyst. I am due to have a huge liver cyst drained next week and wondered if anyone has had the proced...
athenat2 months ago
Just wanted to know, has anyone been able to secure life insurance with a diagnosis of this disease? Just curious...
I'm so confused about this disease
hello everyone! I am hoping someone can shed some light on this for me. I was diagnosed with ADPKD possible type 2 about 6 months ago. As fa...
8 Replies1 Like
athenat3 months ago
I have been just been diagnosed with PKD. I'm 46 yrs old with 2 kids, 19 and 11 yr old autistic son. My GFR turned up at 52 last month that'...
Polyanthem4 months ago
Is anyone on toplaphan. I have been advised to have this and I have concerns on its side effects. Can anyone help.
USE OF NSAID MEDS IN PKD
terrysinclair3112944 months ago
HI there. I’m now 23 and have been diagnosed with PKD since being 14 years old. Currently at eGGR 23 and as a result at stage 4 renal failur...
I'm old but I'm new to this site......
MrsKoch4 months ago
Well, not that old, I just turned 50 and was diagnosed with PKD/PLD at 21. It ran in the family so it wasn't a shock. At 47 I found out my...
Are these pains normal?
tob395 months ago
Hi, my 11 year old has early onset PKD. She has been complaining of backache and lower abdominal pain for a few days. No sign of her feeling...
Polyanthem6 months ago
I have 2large cyst on my right kidney and one large cyst on my left. I’m in such discomfort. I have been swimming today and seemed to have t...
DeanSamson6 months ago
Hi guys just got some test results back for my pkd can anyone shed any light on them???????
New link for my blog
JDelve7 months ago
If any of you fellow PKDers are interested I have a new link to my blog.
Hope all you anxious and frightened rec...
11 Replies5 Likes
Worried about mum.
alison19817 months ago
My mum and sister both have PKD. I have just been told in the last week that I also have cysts in my kidneys and liver. (I'm gutted because ...
I am still emotionally destroyed after my Dx, any tips?
Theskewer7 months ago
I was diagnosed back in December during and ultrasound for something else. Now I have more information since then. My eGFR is 100, m...
4 Replies2 Likes
zlmlm7 months ago
大家好hello everybody 祝大家健康快乐Wish you all healthy and happy 很高兴可以进来I'm glad to come in. 我是钟腊梅 I'm Zhonglamei 我是多囊肾患者I'm a polycystic ki...
ADPKD and enlarged kidneys - newborn
Stan877 months ago
Hello everyone. I've just become a father and unfortunately our daughter got PKD from my wife so the "bad" 50% have played in our case. My w...
3 Replies1 Like
Is pkd autoimmune disease
LADscape8 months ago
It has many common things with other autoimmune diseases such as increased CRP, inflammation, nodule or cysts with clear liquid, gradually i...
PKD and Vitamins
DeanSamson8 months ago
What's everyone's thoughts on taking a multi vitamin with pkd.
I used to take Centrum and wonder woukd it be ok to take again?
Thanks for r...
Hundreds of cysts & enlarged kidney
Jerseyladu8 months ago
Hi, I'm new on here. I had an ultrasound around 4 years ago for a hiatus hernia. Sonographer was concerned as there were a 'number of cysts'...
PKD how many types are there?
LADscape9 months ago
I have read that PKD is hereditary. My husband has PKD but nobody else in his family has the condition. They were tested as soon as he was d...
DeanSamson9 months ago
Does pkd have to run in the family none of my parents or grandparents have to condition I have 4 brothers and none have the condition?
Just got my results back from my 4th Mri scan in 4 years. It's said the there has been no significant change in my kidneys and are dischargi...
dhillasam9 months ago
Hi PKDians ,
It's a poem I wrote after pkd
Struggles trains us to learn and survive
And bring life into different vibe
Perils and problems are n...
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The link between PKD and brain anerysms
tillymint1610 months ago
Finding it difficult to find others who have PKD and brain anerysms that are linked with this disease. I’ve been on the Headway sight but...
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