Posts - PKD Charity for Autosomal Dominant PKD | HealthUnlocked

PKD Charity for Autosomal Dominant PKD

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Tolvaptan

Hi everyone. Recently been diagnosed with ADPKD. Just wondering if Tolvaptan i...

New here curios and confused lol

Hi my name is Rick I was diagnosed with adpkd on 5th jan 2022 I have never had a...

New person alert!

Hello. I’m new here. Just thought I would introduce myself. I have a daughter wh...
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New here!

Hello! I’m Naomi, 24 in London, diagnosed with PKD not long ago and trying to le...

Manuka Honey - PKD

I will be 73yrs in January and I was diagnosed with PKD earlier this year altho...

Kidney Ultrasound

Hello all, God bless everyone on this sight. I just have a quick question. In la...

Deroofing of cyst

Hi. I am 37 and diagnosed with ADPKD. Is there anyone here who got deroofing of...

Genetic test Renasight

Hello, I have a question. I’m 54 year old male about 2 years ago I had a routine...

Gross hydronephrosis

I'm really sorry if I offend anyone by joining this community when I don't actua...

Genetic testing in the UK

Hi. I'm recently diagnosed. Aplologies in advance for asking too many questions ...

New ADPKD member saying hello...

Hi - I'm Mike. Pleased to meet you! Aged 60, born in Birmingham in the UK, now ...

Update on family

Hi all, so now my kids have grown up and have been tested for PKD . 3 of the 4 h...

Follow up question on test

Hello everyone. Hope everyone is well. I have a follow up question. I had a kidn...

HAPPY NEW YEAR EVERYONE!!!

Its been a while since I've been on here, since I have been taking Jynarque I ha...

Need information please

Hello I’m new to all this. I’m 54 yo man. No known family members have pkd. In A...

New to PKD

I was diagnosed with PKD in August 2020 following a CT scan after suffering week...

Gout pain

Hi Everyone Totally new on this page. I was just wondering if anyone stuffers ...

Hyperinflated lungs and PKD

Hey guys hope everyone is safe,now just a question about hyperinflated lungs do ...

feeling useless

hello to every body .Feeling awful the last few months .as i have not being able...

Drop in kidney function

Hello I have PKD and I’m 60 I was diagnosed at 16 but in general great healthy t...

BPH + PKD Effect on Creatinine

Can BPH lead to elevated creatinine in PKD patients? If so, is a procedure to ...

Creatinine Spike After Exercise

My blood test showed a spike in creatinine one hour after I played tennis. Anyo...

New Kidney

Just recovering from getting new Kidney, at second call-in. Was EGFR 7 so was ...

Running and PKD

Is running bad for us? I have read that vigorous exercise can cause creatinine t...

Advice for mums with children that have ADPKD

Hi All, I’ve been a member here for a year, and not written anything, Not sure ...

It’s Been A While

Hello my warriors, its been a while since I’ve been on here, My Jynarque journey...

Living on a narrowboat

I am likely to start on dialysis some time this year and was going to opt for pe...

PKD diagnosis + aortic dissection

Hello, My partner (33) underwent emergency surgery following an aortic dissecti...

New here

Hi all, new here. Just wondering are you automatically referred to a specialist ...

Keto diet research

Hope every one is keeping safe and sane in this crazy time. Just wondering if an...
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