Posts - PKD Charity for Autosomal Dominant PKD | HealthUnlocked

PKD Charity for Autosomal Dominant PKD

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HAPPY NEW YEAR EVERYONE!!!

Its been a while since I've been on here, since I have been taking Jynarque I ha...

Need information please

Hello I’m new to all this. I’m 54 yo man. No known family members have pkd. In A...

New to PKD

I was diagnosed with PKD in August 2020 following a CT scan after suffering week...
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Gout pain

Hi Everyone Totally new on this page. I was just wondering if anyone stuffers ...

Hyperinflated lungs and PKD

Hey guys hope everyone is safe,now just a question about hyperinflated lungs do ...

feeling useless

hello to every body .Feeling awful the last few months .as i have not being able...

Drop in kidney function

Hello I have PKD and I’m 60 I was diagnosed at 16 but in general great healthy t...

BPH + PKD Effect on Creatinine

Can BPH lead to elevated creatinine in PKD patients? If so, is a procedure to ...

Creatinine Spike After Exercise

My blood test showed a spike in creatinine one hour after I played tennis. Anyo...

New Kidney

Just recovering from getting new Kidney, at second call-in. Was EGFR 7 so was ...

Running and PKD

Is running bad for us? I have read that vigorous exercise can cause creatinine t...

Advice for mums with children that have ADPKD

Hi All, I’ve been a member here for a year, and not written anything, Not sure ...

It’s Been A While

Hello my warriors, its been a while since I’ve been on here, My Jynarque journey...

Living on a narrowboat

I am likely to start on dialysis some time this year and was going to opt for pe...

PKD diagnosis + aortic dissection

Hello, My partner (33) underwent emergency surgery following an aortic dissecti...

New here

Hi all, new here. Just wondering are you automatically referred to a specialist ...

Keto diet research

Hope every one is keeping safe and sane in this crazy time. Just wondering if an...

Foaming urine

Hi everyone, It’s been a while,hope you’re all keeping safe . Please does anyone...

Work question

I have pkd 25percent kidney function how do I get a isolation note for work my b...

To help pass the time

Hello everyone, I myself received the dreaded NHS text yesterday tho didn't rea...

ITS BEEN A WHILE

I haven't been here in a while, dealing with extreme fatigue, I was being tested...

Coronovirus and pkd

Hello, does anyone know if pkd puts us in the 'high risk' category of contractin...

New drug compound could tackle major life-limiting kidney disease - ADPKD

https://www.sciencedaily.com/releases/2019/06/190618103723.htm

Blood in urine

Hi everyone. Still new to all this. Just wondering if it is common to have whit...

I am Coming Along

I shared in my last post about me being extremely fatigued, I ended up in the Er...

Status Udate

In my last post I shared how I have not been feeling well, to date there has bee...

Back In The Bed

I have been feeling great for a while but that came to an end, I spent all of la...

Doctor Visit Today

I like so many of us chronically ill persons suffer with depression and anxiety,...

First Box Down

Today is i complete my first box of Jynarque, my last blood work and urine came ...

Tolvaptan and PLD

Hi My nephrologist is consider starting me on Tolvaptan. Has anyone heard of the...
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