Was Diagnosed at age 20 with PKD I’m 53 now
bonneville2 days ago
Hello members, my GFR is at 23
The cysts are going up my liver and Pancrease, it’s a hit and miss with pain, doctors don’t seem to get it ...
Liver cyst drainage and de-roofing
1234324 days ago
I have pkd which has also lead to liver cyst. I am due to have a huge liver cyst drained next week and wondered if anyone has had the proced...
athenat10 days ago
Just wanted to know, has anyone been able to secure life insurance with a diagnosis of this disease? Just curious...
I'm so confused about this disease
JoanneManning15 days ago
hello everyone! I am hoping someone can shed some light on this for me. I was diagnosed with ADPKD possible type 2 about 6 months ago. As fa...
8 Replies1 Like
athenata month ago
I have been just been diagnosed with PKD. I'm 46 yrs old with 2 kids, 19 and 11 yr old autistic son. My GFR turned up at 52 last month that'...
Polyanthem2 months ago
Is anyone on toplaphan. I have been advised to have this and I have concerns on its side effects. Can anyone help.
USE OF NSAID MEDS IN PKD
terrysinclair3112942 months ago
HI there. I’m now 23 and have been diagnosed with PKD since being 14 years old. Currently at eGGR 23 and as a result at stage 4 renal failur...
I'm old but I'm new to this site......
MrsKoch3 months ago
Well, not that old, I just turned 50 and was diagnosed with PKD/PLD at 21. It ran in the family so it wasn't a shock. At 47 I found out my...
Are these pains normal?
tob393 months ago
Hi, my 11 year old has early onset PKD. She has been complaining of backache and lower abdominal pain for a few days. No sign of her feeling...
Polyanthem4 months ago
I have 2large cyst on my right kidney and one large cyst on my left. I’m in such discomfort. I have been swimming today and seemed to have t...
DeanSamson4 months ago
Hi guys just got some test results back for my pkd can anyone shed any light on them???????
New link for my blog
JDelve5 months ago
If any of you fellow PKDers are interested I have a new link to my blog.
Hope all you anxious and frightened rec...
11 Replies5 Likes
Worried about mum.
alison19815 months ago
My mum and sister both have PKD. I have just been told in the last week that I also have cysts in my kidneys and liver. (I'm gutted because ...
I am still emotionally destroyed after my Dx, any tips?
Theskewer5 months ago
I was diagnosed back in December during and ultrasound for something else. Now I have more information since then. My eGFR is 100, m...
4 Replies2 Likes
zlmlm5 months ago
大家好hello everybody 祝大家健康快乐Wish you all healthy and happy 很高兴可以进来I'm glad to come in. 我是钟腊梅 I'm Zhonglamei 我是多囊肾患者I'm a polycystic ki...
ADPKD and enlarged kidneys - newborn
Stan876 months ago
Hello everyone. I've just become a father and unfortunately our daughter got PKD from my wife so the "bad" 50% have played in our case. My w...
3 Replies1 Like
Is pkd autoimmune disease
LADscape6 months ago
It has many common things with other autoimmune diseases such as increased CRP, inflammation, nodule or cysts with clear liquid, gradually i...
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PKD and Vitamins
DeanSamson6 months ago
What's everyone's thoughts on taking a multi vitamin with pkd.
I used to take Centrum and wonder woukd it be ok to take again?
Thanks for r...
Hundreds of cysts & enlarged kidney
Jerseyladu6 months ago
Hi, I'm new on here. I had an ultrasound around 4 years ago for a hiatus hernia. Sonographer was concerned as there were a 'number of cysts'...
PKD how many types are there?
LADscape7 months ago
I have read that PKD is hereditary. My husband has PKD but nobody else in his family has the condition. They were tested as soon as he was d...
DeanSamson7 months ago
Does pkd have to run in the family none of my parents or grandparents have to condition I have 4 brothers and none have the condition?
Just got my results back from my 4th Mri scan in 4 years. It's said the there has been no significant change in my kidneys and are dischargi...
dhillasam7 months ago
Hi PKDians ,
It's a poem I wrote after pkd
Struggles trains us to learn and survive
And bring life into different vibe
Perils and problems are n...
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The link between PKD and brain anerysms
tillymint168 months ago
Finding it difficult to find others who have PKD and brain anerysms that are linked with this disease. I’ve been on the Headway sight but...
123Ange8 months ago
Right told today i need to get started on Tolvaptan. Got the script and now have the drugs.
I was told to start it this weekend so i can gt ...
Pain and pain management
Catherinejohnson19748 months ago
I am 44 and was diagnosed at 30 , my dad has it and has had two transplants with the successful
One holding when I was 19 ..
my pain In my ba...
Theskewer9 months ago
I have reading about dieting and PKD and I was wondering what everyone recommends. Should I go vegetarian? Alkaline? Vegan? I...
I am having a hard time accepting that I have this, I am so scared
I am 29 years old, diagnosed 3 years ago by accident, during a stomach ultrasound, but somehow I blocked it after the nephrol...
KA239 months ago
Hi, I would really appreciate some help and advice .
A few weeks ago I had a abdominal scan for bloating. The doctor called me last week to ...
Stronger10 months ago
Hi, I'm wondering if anyone out there had a cyst drained and then burned. I had the procedure a week ago...I'm wondering what to expect?
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