Posts - PKD Charity for Autosomal Dominant PKD | HealthUnlocked

PKD Charity for Autosomal Dominant PKD

1,162 members • 263 posts

All posts for April 2019

Happy Friday!

I am having a wonderful week and day in spite of me feeling tired. I can no longer to much, I do a little then I am tired anyone else having this problem. I...

I am having a wonderful week and day in spite of me feeling tired. I can no lon...

PaigeyPaigeForLife

•5 years ago

Kidneys function to diaylsis time

How long it's takes from a 47% kidneys function to diaylsis level, I mean years?

How long it's takes from a 47% kidneys function to diaylsis level, I mean years?...

•5 years ago

Been Away

Hello fellow PKD peoples, I haven't been on here in a while, its been one thing after the other with me. It started with my kidneys then I was diagnosed with...

Hello fellow PKD peoples, I haven't been on here in a while, its been one thing ...

PaigeyPaigeForLife

•5 years ago

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Update on my PKD

Hello all, been a while since I’ve been on, well had my appointment with my Gen and my GFR is at 18 with high creatinine level, just got my 3 rd blood pressure...

Hello all, been a while since I’ve been on, well had my appointment with my Gen ...

•5 years ago

Brother/ Sister

I am AKPKD, my brother and Sister are above 50 years old and has done their Sonography, they don't have PKD but can their children have it because of my mother...

I am AKPKD, my brother and Sister are above 50 years old and has done their Sono...

•5 years ago

Hi Everyone!!!

Hi everyone, extremely happy to be the member today and indeed there are useful information

Hi everyone, extremely happy to be the member today and indeed there are useful ...

•5 years ago

Hi Its Snow Castles Here after 3 years.

Lots has happened in the last 3 years since I was last on here. Thought I'd write again just to let on where I am in my life living with APKD. I still have...

Lots has happened in the last 3 years since I was last on here. Thought I'd writ...

•5 years ago

having 2 large PKD cysts drained on Friday.

Hello! I am so happy to have found this group. When I tell Dr.’s that I collapse at 2-3 pm with fatigue, dizziness, pain and more every day... they say...

Hello! I am so happy to have found this group. When I tell Dr.’s that I collaps...

•5 years ago

Does ADPKD always lead to ESRD (Kidney failure)?

I was told that half of all PKD patients will have kidney failure by 50 years of age with few having it at 74 years of age depending of the PKD1 or PKD2 gene....

I was told that half of all PKD patients will have kidney failure by 50 years of...

•5 years ago

Ceratine levels

What is serum ceratinine level of a person without pkd and a person with pkd, How does one know the progression of the disease?

What is serum ceratinine level of a person without pkd and a person with pkd, Ho...

•5 years ago

work

anybody else on that feel they need to take a back seat at work i work at a racecourse on the grounds team and help look after and maintain the racecourse...

anybody else on that feel they need to take a back seat at work i work at a rac...

•5 years ago

learning

hi folks my name is graham and i found out i had ADPKD when i was 25 i am now 39 i go every year to get my function test done and scans but over the past year...

hi folks my name is graham and i found out i had ADPKD when i was 25 i am now 39...

•5 years ago

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