Great Pudendal Nueralgia resource!!

[Jobie18]

Hi everyone

A lovely lady on the forum gave me the name of a doctor/surgeon who specialises in Pudendal Nueralgia, unfortunately for me he is in the States but still a very interesting watch/listen too on this 2.5 hour interview on you tube, he also has a clinic in Poland. I believe you can do video appointments with him.

His name is Dr Micheal (linked video below) he talks through just about every procedure and situation regarding this condition a wealth of information!

I had never heard of using suppositories either for pain relief and hope this can help someone out there too.

youtu.be/_pY2aiAjirU?featur...(Not working as expected?)

[Mayanne]

I recommend this YouTube channel : ketamine and why it is a Unique Pain Reliever. I used it in suppository with two other ingredients. You need a prescription

[SouthernSally]

That's Dr Michael Hibner. He's very well known and I believe he does telehealth sessions and will give you his opinion based on your history and any radiology you provide him. Some people have had great success with him. Others not. He's very informative in his videos but I hear he can be different in person.

[Sammy2005 in reply to SouthernSally]

He has spoke to me through what's app never charged a penny I had half hour telephone consultation with Dr Eric Bautrant it cost €350.00 .

[SouthernSally in reply to Sammy2005]

That's great!

[Sammy2005 in reply to SouthernSally]

I found him very understanding compared to Dr Eric bautrant just my opinion he even offered to see me in Poland .I wasn't doubting what you said I've heard other people say this kind of stuff to ..

Take care you

Sam x

[SouthernSally in reply to Sammy2005]

Of course! I've heard some great things about him too. I just feel it's good to be informed. We want so much to find answers but at the same time it's good to tread lightly.

[Mayanne in reply to SouthernSally]

I sawed him in person and I never saw a Dr so kindly and helpful. We all know that pudendal neuralgia is a chronic problem so he doesn’t do miracles but if people can have back part of their life it is more than nothing . Me I am 70 to 75 better than I was before I saw him . For sure it depends of your problem and how long you have it.

[SouthernSally in reply to Mayanne]

Would you mind sharing a bit more about your issues and how he helped? If it's too personal and you are willing please DM me. Yes, I think the desire for a miracle isn't helpful, at least for me. 50% relief would be huge for me. Sometimes I can't even relate to pain scales like, rate your pain 1-10. 3-4 is probably the lowest I get so that's like a zero to me.

[Mayanne in reply to SouthernSally]

I was diagnosed PN but my Pt 4 years ago. I saw à neurologist who couldn’t do anything for me except made an appointment to a specialist at pain clinique. I had three nerf blocks and did nothing. The pain stilled there. My family Dr prescribed tramadol and didn’t get anything. He prescribed gabapentin and it worked at least a little. I saw a PT specialized in pelvic floor. The exercises help me a little as well but not enough. I still had big flare up . Last year we were in Florida my husband and I made research on YouTube and found Dr Hibner. All the other Dr always said they made surgery and the problem goes away. I don’t believe Dr without experience in PD saying that. So I made an appointment with Dr Hibner . He questioned me for 1/2 hours and examined my pelvic for an other 1/2 hours. The conclusion was that is a muscle who push on my pudendal nerf and it needs to be relax with Botox injections or the medication in suppository. A PT who works in his clinic examined my pelvic after him with the same conclusion. I choosed the medication first because the Botox injections must be with general anesthesia because it is too painful without it. After a month , because your should increase slowly the medication, I saw a big difference with my pain and for me I should say my pain is most of the time 70 to 75 less then what it was. I probably hurt myself but doing to much bicycling 4 years ago .

[Mayanne in reply to SouthernSally]

I forgot to tell you I am French Canadian so excuse my little English 🤷‍♀️

[SouthernSally in reply to Mayanne]

Your English is quite charming! I’m so happy Dr Hibner was able to help you. It’s beginning to look like my pain is possibly from stenosis of the spine affecting my pelvis. A lumbar block was the first to provide any relief, even though it was temporary. This is after 11 other injections over the course of a few years. I need to follow up ith my pain doctor and see a few spine neurosurgeons for a consult. In the future I just might do a telehealth session with Dr Hibner because research shows causation from the spine as a possibility but it’s a hard to find a practicing spine surgeon to tie it all together.

[SouthernSally in reply to Mayanne]

I forgot to mention a tip some may not be aware of. The YT video is over two hours but it has a transcript at the bottom. Not all videos do. If you follow along with the transcript you can access the portions that interest you and skim the rest. That is if you prefer not to watch the whole video.