Please can anyone out there who has successfully accessed pudendal nerve decompression surgery drop me a line. A competent private surgeon who does this would be just fine.
I meet all the Nantes criteria but am too ill with ME/CFS to travel abroad.
Can't type for long as ME fries brain if I do but PLEASE get in touch if you can help me with this agonising pain.
Thank you in advance
Sara
Hi Sara - Sorry to hear you are in pain - this is a long and horrible journey but there can be a good ending if you find the right docs and physical therapists. After 5 or 6 years I finally feel somewhat normal. I can sense when my PN is going to flare up and figured out how to calm everything down in a day or so. I recommend you take a look around this site for help: pudendalhope.info/ I also recommend reading this book " A Headache in the Pelvis". I think you can find it on Amazon. Good luck in your search to feel better!
Try contacting the bristolpainclinic@gmail.com. Attention Dr. Gareth Greenslade.
I tried looking for this in the UK a couple of years ago and couldn't find any surgeons that offered this so went to Nantes ( stood most of the way on the plane) last year for a diagnostic pudendal nerve block. This was negative as I was still had pain in my perenium for the duration of the block. They said I wasn't suitable for the op as my entrapment/issue with the nerve was in a different location from where they operate. I met all the Nantes criteria except for the positive nerve block. If you haven't already had one I would suggest you have a diagnostic pudendal nerve block first.
Pudendal nerve block
Pudendal nerve release surgery
Pudendal Nerve
Decompression surgery
