pelvic dysfunction

[Karen1954]

has anyone tried the Anderson-wise protocol in Santa Rosa? I’ve tried everything and I mean everything over the last 9 years and I’m LOST!!!!! I hurt so bad even with a pain pump!!!! This is my last resort besides ending it!!!!!!

[kalecolbe12]

Hi Karen I've had this for 4 years and I've seen your posts and we've actually spoke to each other on the pelvic floor dysfunction group so I am now leading quite a normal life. I did a year and a half of pelvic floor physical therapy I also did 6 months of talk therapy and I felt like I was having a nervous breakdown with the pain and with everything so I ended up going on Cymbalta 30 mg nerve pain medication along with 200 mg Gabapentin at night and a muscle relaxer if I need it which isn't very often anymore. I think the Prudential nerve has to have something to do with this or something because the nerve pain medication has helped enormously and since I'm 69 I don't care about coming off I'll probably just stay on it I was just wondering if you've tried any nerve pain meds and or anxiety medication ...also just trying to remember what else you've tried?

[Karen1954 in reply to kalecolbe12]

hi!!!! I do know we have talked quite a few times!!!!! I have tried everything u have tried and more with absolutely no luck!!!!! I did a diverting colostomy over a year ago to help but it has made me worse as my sphincter goes crazy all the time like I have to poop!!!! It is all day and everyday from the time I get up until I go to bed!!! Just did Botox again for the third time cuz my Colo said I was the worst case he had ever seen!!!! He didn’t think it would get better!!! I’ve tried all the nerve meds with no help. I did try another stimulator in January with some relief but after my pulse was changed by the rep it didn’t work as well so after having three trials for the pain pump I had it implanted two weeks ago. I also got my personal med remote where I can put bullouses of meds into my system. I did quite a few on Saturday but it was too much!!!!! I think my baclofen med needs to be upped cuz when it was injected into my spine it seemed to help the insidious pressure I feel from the sphincter and hemorrhoid I have! My Colo won’t band or incise my hemorrhoid as he said it will hurt even more!!!!! The pressure I feel is HORRIFIC as I feel EVERYTHING is falling out my ass!!!! I’m on my heating pad all the time!!! I have NO life at all!!!! About a month ago after Botox I was just a bit better where I could watch my grandkids play basketball and bowl!!!! Then bam it turned super painful!!!! I have been pushing and pushing through my life and I honestly can’t do it anymore!!!!! I’m mentally and physically and emotionally DONE!!!!!!! My Colo suggested I see another doctor for a fresh perspective but I’m afraid at this point!!!!! Every time I have done something to help myself it turns out awful!!! This all started with a rectal exam back in 2015 where I felt a pop!!! Then the headache in the pelvis started and has gotten worse!!! I used a supplement for my ibs in 2019 and that caused me to have sooooooo much stool pass at once it caused burning and fissures! I then had LIS surgery which did help a little! I’ve asked my doctor to do another one to relax the sphincter but I don’t think he’ll do it but I don’t know why!!!! I’ve tried numerous injections and stimulators with no help!!!!! I’ve been to Stanford and 9 gi and 5 colorectal doctors and my doctor now is the best I’ve ever had!!! I’ve seen numerous pain doctors too!!! My current doctor in Napa is one of the best in the country so I’m in good hands but yet my pain pump isn’t helping!!!! Just fyi I’m 68! My Napa doctor thinks this will work but at this point I don’t know!!! I miss my grandkids and kids to the core of my being!!!! My heart breaks everyday!!!! I know I have a lot of time on my hands which makes it worse but the pain is EXCRUCIATING beyond belief!!!! I want to go to Lowe’s and buy plants and garden!!!! I want my life back!!!! Sometimes I feel like I’m being punished but for what I don’t know!!!! I talk to three therapists right now and they r trying their best but I’m still hurting and depressed!!!! I feel like I’m living in a nightmare!!!! I’ve thought of suicide on numerous occasions but couldn’t do that to my family or my fur babies who r with me all the time!!!! I would be selfish to do that but good hod I HURT!!!! I’ve been thinking of going to the wise Anderson clinic in Petaluma but it’s $4350 and with my luck it wouldn’t work. They do have a home version of this for $3250 but again not sure as I’m better with one on one stuff!!! I don’t know what to do at this point!!!! I’m SO LOST it is unbelievable!!!!! The depression is overwhelming!!!!! I don’t know what to do!!!! Do u have any suggestions? If u ever feel like talking I would love that!!! I’m sorry this is so long but wanted to give u the most updated version I can remember!!!! I have tried everything but a nerve reset which dr Corey hunter does in New York!!! I’m not sure I could make it to New York!!! Well thank u for reading this long tale of woe but unfortunately it is my life!!!!

[kalecolbe12 in reply to Karen1954]

Wow you really have tried everything!!! What is a nerve reset? My only other suggestion is trying an antidepressant as it might help pain too because it helped me

[Karen1954 in reply to kalecolbe12]

I HAVE been through EVERYTHING!!!! A nerve reset is where they use embryo cells to replace some of the normal cells so like restarting life with new cells!!! Look up ainsworth institute in New York and look up nerve reset!!! I can’t make it to New York and it would cost me a chunk of money but not sure it would work but I wish I could try!!!! I’m still not sure about the clinic in Petaluma!!!! I’m on an antidepressant but it doesn’t help much!!!!! Like I said I don’t know what to do!!!!!! I’m SO lost and beyond devastated and depressed!!!!! If u think of anything to try please let me know!!!! I always enjoy talking to u!!!! Thank u for caring!!!! I’m alone all the time which is hard but that’s my life!!!! My psychiatrist says go out and live your life and I told her u have NO idea how bad this hurts!!! If she understood she might change her tune!!!! Anyway I hope I hear from u again!!! Please stay in touch cuz u understand my pain!!!! Not many people get this crap!!!! It’s not a life to live!!!! Take care!!!!!!!!

[kalecolbe12 in reply to Karen1954]

Do you want to give me your email so we can talk more???

[Karen1954 in reply to kalecolbe12]

of course!!!!! Thank u!!!! [e-mail]. I look forward to it!!!!

[Agnessa]

hi Karen.

I’m having a pelvic pain for 2 years now. I visited so many doctors, most of them had no idea what is going on with me, often feeling abandoned. I was in so much pain, lost 12 pounds in 2 months, literally lost hope that my life will be normal again. Finally a year ago I was diagnosed with pelvic floor dysfunction due to muscle spasm. The life changed after I read the  book by Dr Wise and Dr Anderson “A headache in the pelvis”. This book is a “bible” for patients who suffers from pelvic floor muscle dysfunction. 

I contacted Dr Wise via email and he called me back immediately. In a month I went to his clinic in California for 3 days, it was March 2022, where I met Dr Wise and Physical therapist Tim. They helped so many people! The clinic is organized for group of 10 people who had similar symptoms and struggles. I was taught his method called Wise-Anderson protocol and for the last 14 months I’m following this protocol at home every single day. I believe in his method now. I started feeling better in about 2-3 months of following the protocol. And a year later my life is almost normal again. I can travel again and enjoy some activities that could not do before. My pain is not so intense and my symptoms are improving. The sitting pain is still there but much much less intense. My rectal pain is almost gone. You can contact Dr Wise and just talk to him. 

Hope you will feel better very soon! Good luck!

[Hidden in reply to Agnessa]

I just spoke to Dr. Wise yesterday. He was so gracious and kind to give me the time he did. I am planning to go to his clinic next month. He actually recommended I do the at home first for 30 days, so that I'd be better prepared with questions, etc., when I come to the clinic, which I thought was very smart. I'm super hopeful. Sounds like you are very happy with the results, Agnessa! Can I ask, how much time are you investing every day in the EPR? 4 hours seems impossible. 2 hours seems impossible. Curious the good and bad so I am eyes wide open going in!

[Agnessa in reply to Hidden]

Hello. I’m trying to do 1- 1.5 hours daily but if I have a chance to do it twice a day, I feel it’s helping me more. Also, I learned that massages, sauna, warm baths, everything that helps to relax your mind and muscles help as well. My other advice- don’t get upset or panic if you have a flair up or you have a bad day. It will get better, you just need to have patience and trust.

If you have more questions, don’t hesitate to ask.

Good luck to you!

[Karen1954 in reply to Agnessa]

what do u have to do during those couple of hours? I talked to my pain doctor and told her about this and she asked what do they do that regular pelvic therapists don’t do? I’ve seen at least 5 pelvic therapists!!!! I’ve seen 7 GI and 5 colorectal doctors and urogynecologist and 5 pain doctors! U name it and I’ve seen them or done it!!!! Hoping my pain pump kicks in soon! We just need to find the right meds and dosing!!!! I’m still thinking about the wise Anderson protocol!!!! Thank u for being there for me!!!! I greatly appreciate it!!! U have NO idea!!!! Thank u for everything!

[Karen1954 in reply to Agnessa]

Hi Olga!!!! Thank u for answering again!!!! What do u have to do during that 1.5 hour? My pain doc asked what do these therapists do that is different than a regular pelvic floor therapist? It’s a LOT of money to spend and I need results!!! I thought about doing the home version but not sure as I prefer one on one!!!! My pain doctor asks for me to give the pain pump a try and hoping to get my meds regulated!!! I’ve just been pushing through appointments and my grandkids basketball games and it is HARD!!!! This is the most AWFUL pain I’ve EVER felt in my life and I’ve had a LOT!!!!! I’m ready to take a knife and cut out my ass!!!!!!!! What else had u tried before? I can’t really go anywhere or do anything!!!! I want to play with my grandkids and do fun things but can’t!!!!! I hope u r still doing well!!! How is that working for u? Thank u so very much for taking the time out of your life to help me!!! That means SO much to me!!!! Thank u for EVERYTHING!!!!!🥰🥰

[Agnessa in reply to Karen1954]

hi Karen.

The goal of the Wise-Anderson Protocol For Pelvic Floor Dysfunction Is To Train Patients To Resolve Their Own Symptoms.

During the 1x1 appointments with Tim (physical therapist) you will get a map of your trigger points and instructions how to release them using the internal trigger points wand (a device specifically designed for this and FDA approved). Tim does the exam and teach you how to release those painful nuts internally and externally. He also shows you the stretches/ exercises and explains the order of all those steps. You will do them at your home daily followed by the relaxation sessions. You will not need to go to see other physical therapist if you understand how to do them yourself. Plus no other therapist can feel your pain, so you can control your sessions yourself and you reduce the dependency on professional help. 

The cost of the program  doesn’t sound like a small amount of money, but I spent three times more on doctors who told me I have to live with this pain for the rest of my life, and didn’t do anything to help me out. So, I personally think it was the best decision ever to invest into this program because it gave me a hope that I can return to my normal life without drugs, surgeries, injections, the hope that I almost lost. You can check their website (pelvicpainhelp.com), there are tons of videos, articles and information about what symptoms they are treating, what this method all about and about the science behind it. 

[Karen1954 in reply to Agnessa]

Hi Olga!!!!!! Thank u for all the information!!!! It sounds like we all have trigger points on the outside and I didn’t know either!!!! My last pt was suppose to be the best around and she couldn’t help!!!! I’ve seen like 5-6! I’m still thinking of going but have to figure out finances!!!! Right now my internal sphincter is going crazy cuz of my colostomy!!!!! I didn’t know this could happen after the surgery and my doctor doesn’t think much will change if I reverse it!!!! I’m not sure if the home version would help! What do u think? How did your problem start? I wish I’d never had that stupid rectal exam where I felt a pop!!!!!! Not sure what happened but that’s when the headache started!!!!! I just want to slice my muscles!!!!! I’ve been pushing through my pain for SO long and I’m worn out!!!!! I can’t wait to hear from u!!! U r my lifeline and I’m so grateful for u!!!!! Thank u!!!!

[Karen1954 in reply to Agnessa]

Hi!!!! Today has been AWFUL and I’m seriously thinking of going to the clinic!!! Did u ever feel like u had a baseball up your butt? My levator muscle is going absolutely crazy and I can’t take it!!! My pain doctor is upping my muscle relaxer and pain meds in my pain pump and adding another med to quiet down my rectum!!!! This pain is crazy!!!! I’m not sure how one person is suppose to handle this!!!! I can’t take it!!! If my pain pump doesn’t help I’ll be going to the clinic! I just wonder what they do that regular therapists don’t do? I feel like I’m being ripped apart with a volcano blowing up in my butt!!! I’ve never felt such pain!!!! U have given me so much great info!!! I just want to feel normal! Can u go out and do things now? Enjoy your life? That’s what I want!!!!! I hope I get that someday!!! Thank u!!!! Talk to u soon!!!!

[Karen1954 in reply to Agnessa]

Hi!!!! What problems did u have? Did u have levator ani or pelvic floor spasms? My internal sphincter is also going crazy like I have to poo all the time!!!!!!!! As u know yesterday was HORRIFIC and today isn’t much better!!!! I ass is just POUNDING!!!! I can sit with pain but it hurts way more when I stand and walk!!!! I’m doing meditation and mindfulness but nothing works!!! I’m going to call dr wise today!!! I’ve talked to him before and was super nice!!! My pain doctor got me in sooner for my pump refills and going to up my meds and add a new one that’s suppose to help the nerves in the pelvic floor!!!!! I’ve been praying to god for years but don’t think he’s listening!!! I’m SO very happy for u!!!! I can’t believe u r going to sit on a plane for three hours!!!! I think it’s amazing how u turned your painful life around!!! I’m sure u told me but how long did it take for u to get better after u got home and did u feel any relief while u were at the clinic!!!! I’ve been looking into sola therapy but only done in Southern California, Oregon and Washington right now and costs $1500 for nine sessions! I’d have to pay for my flights and lodging and food but I’m not sure I could even fly at this point. I’m going to see a physical therapist tomorrow to see if she can help release the spasm!!! Of course last time it hurt more after I had it!!!!! We will see!! If the pump refill doesn’t help or if my therapist can’t release the spasm I will be going to the clinic!!! I CANNOT live like this!!!! Of course my thoughts have turned very dark as anyone with this pain might think and it would be so easy right now with my pump and all of my Percocet that I haven’t used since I am using the pump!!! I couldn’t hurt my family like that but it definitely has crossed my mind!!! Thank u for being a lifeline for me!!! U have helped me more than u know!!!! This health issue is the worst pain I have ever felt in my life!!!!! There is NOTHING like it!!!!! Again thank u Olga for being there for me!!!!💕❤️💝💕❤️💝❤️💝💝💕🤬💝🙏🙏🙏

[Karen1954 in reply to Karen1954]

Hi Olga!!! Did u get my last reply? I’m not sure how I should reply!!! lol. Another messed up day!!!! Going Thursday for my pump refill and praying it helps!!! My perineum is now becoming involved with this pain so it’s ALL over down there so not sure about anything anymore!!!! I’m going to call dr wise today!!! I can’t take much more!!!! I’m SO surprised that nothing has worked and I’ve tried EVERYTHING!!!!! I’m losing my mind and so r my doctors!!! I’m very surprised that ganglion block of impar didn’t work!!!!!! This is all too much anymore!!!! I’m sorry to complain today but I know u understand!!!!! I’m sure u r doing great!!!! When do u go to Europe? Thank u for listening!!!!!!!💕💝❤️🥰

[Karen1954 in reply to Agnessa]

I just wrote a response but don’t think u got it so I’ll write again!!!! U have given me hope where I thought all hope was gone!!!! I’ve got so many questions!!!!!! How long were the clinic days and how fast did it take to work? Where did u stay? Was the clinic 3 or 5 days? I have talked to dr wise a couple of times but never took the plunge!!!! I have been thinking of going there again since nothing has worked!!! I’ve had EVERYTHING there is to try and help even doing a diverting colostomy but that didn’t help!!! I’ve now got an implanted pain pump which is not working like the trial did!!!! I tried a baclofen injection and it seemed to help all the pelvic pressure!!!! It’s not enough so I’m still in pain. This is the most AWFUL pain I’ve EVER experienced and I can’t do ANYTHING!!!! I miss my kids and grandkids and my heart is beyond broken!!!! I’ve been through SO much I can’t tell u!!!! The only thing I haven’t tried is a nerve reset!!!! I’d just like to know what happened during the clinic days! What did u learn? I can’t believe how much better u feel!!! It’s AMAZING!!! U have given me hope!!!! I was just looking into the wise Anderson protocol again that’s why I put the question out there!!! Thank god u replied!!!! May I ask how old u r? I’ve been SO depressed and sad that suicide has definitely crossed my mind but I won’t do it!!! It would hurt my family too much but I’m tired of sitting on my heating pad everyday all day!!! If u would prefer to send things to my personal email it is mandykl1234@yahoo. Com or u can still send it through healthunlocked! I’m SO looking forward to hearing from u!!!! I just want to hear your thoughts!!!! I pray u answer real soon!!! I’m going to talk to my husband about going!!! It’s going to be hard to be away from him and my fur babies but I need to get healthy!!! Thank u Agnessa!!! U made my day !!! Maybe u r my light at the end of the tunnel!!!! Once again thank u and hopefully I’ll hear from u soon!!!! 💝🙏💝🙏💝🙏💝🙏💝

[Agnessa in reply to Karen1954]

Karen, I sent you email to your personal email address. Let me know if you have more questions.

[Karen1954 in reply to Agnessa]

hi!!!!!! Thank u so much for answering my questions!!! U really helped me!!! If I could stay in the same place as the clinic that would be great!!!! Do u all meet at the clinic and have group sessions or is it one on one? I have read the book and couldn’t find it as I was going to read again so just bought it again!!! I have no problems sitting! My problem is walking and standing! I feel like my entire pelvic floor is falling out!!!! When reading about levator ani it says sitting is hard but I can do that!!! I started with this after a rectal exam with an anuscope and then used a stupid supplement for my ibs that caused SO much stool to pass all at once that I then got fissures and the HORRIFIC burning started! Then I had a hysterectomy and my levator ani came back!!!! It has not stopped!!! Last year I got a colostomy hoping my burning would stop!!!! Nope!!!!!! I have tried EVERYTHING but a nerve reset!!!! I’ve had every injection and stimulators and ketamine infusion and u name it but nothing has worked. I did a pain pump trial and it seemed to help so had it implanted but it hasn’t been the same!!! I still have horrendous pain and feel like I’m sitting on a baseball!!!! I have a hemorrhoid but my doctor doesn’t want to band it or cut it out cuz I will hurt more!!! I think that’s what is causing the pressure!!!! I’ve been PUSHING through my life for years and I’m done!!! I miss my kids and grandkids more than u can know!!! I’m seriously thinking about going to the clinic. Luckily it’s about an hour and a half away!!!! I hope u can wear comfortable clothes to the clinic!!! How long is the clinic time during the day and how long do u have to spend when u get home? Did u get ANY relief before u left the clinic? How long after u started the home exercises did u get relief? I’m SO glad u responded cuz I wanted to know the real truth about what u learned!!!! I so appreciate u sending me the email!!! I’m SO grateful to u!!!! Thank u!!!! Once again CANT wait to hear from u!!! Where do u live?

[Agnessa]

hi Karen. Sent you email with some more detailed answers about the clinic. Good luck!

[Karen1954]

Thank u!!!!! U r an angel!!!!!!!