Pudendal nerve pain and cbd

[hoopwhirl2007]

Hi Pudendal nerve pain sufferers. Has anyone ever tried cbd oil to relieve pain? Did it help? Would be great to know if this does work. Thanks xx

[Pinky2233]

yes works great

[BlueLagoon007 in reply to Pinky2233]

What strength of CBD Oil did you use?

[Kenka]

Didn't work for me so worked with a physio which helped and homeopathy.

[hoopwhirl2007 in reply to Kenka]

What was involved with homeopathy? Also I am trying to do physio each day such as standing and lifting leg behind, lying in floor and doing side leg stretches and lying on floor doing bridge. I have been doing these for 2 weeks now and pain is worse! Which exercises did you do? I am so depressed ....7 years with this problem and still no sign of recovery. Xx

[Andilynn in reply to hoopwhirl2007]

I also find that any exercises, especially stretches involving legs or lower back, makes it way worse. Yoga is awful for me. I’ve had this for over four years and have only found that breathing exercises, not moving of muscles, helps at all. It’s frustrating.

[hoopwhirl2007 in reply to Andilynn]

Isn't it awful? Try explaining this to non sufferers is like banging your head on a brick wall!! A lady on this forum is going to try an osteopath so I checked this out and discovered that an osteopath could help?? I am going to book in to see a local lady who has been qualified for over 20 years in this field. This is one avenue I've not ventured. I was considering seeing a specialist in London but the cost is astronomical! Ok if it works but could be more money down the pan. However I've given up with NHS . They don't know about this problem and have no intention of learning about it so it looks like private is the only way to go xx

[Baileydog in reply to hoopwhirl2007]

hi, Iv been a suffer constantly for 8 years. If you read an archived list of mine.. I did tge specialist in London, internal physio, osteopath . Etc etc!!! There is a hospital in wythenshawe Manchester who specialise in this. Tgry have given me my life back. I’m on medication and have puedendal nerve injections twice a year. For mr amazing. I spent literally thousands of pounds travelling to London every two weeks to see the specialist( private) there isn’t one answer to puedendal nerve , you have to find what works for you. It will be a lot of things together tgat help and it’s no quick fix. Keep trying and I hope you find your relief

SandrA

[hoopwhirl2007 in reply to Baileydog]

Thank you Sandra for your post. It is so encouraging to read positive comments like yours which gives me hope. I am trying osteopath next week if she can get me an appointment, then if that doesn't work there's PT, then injections. I have now reached the conclusion that NHS is a no no and private is the only way. I have to be sensible though cos of costs. I am 67 years old, still working and have ms!! The good thing is that the pn has taken over my life and ms doesn't have a chance to come into it!! Xx

[Andilynn in reply to hoopwhirl2007]

I went, for seven months, to a physical therapist who specializes in pelvic floor dysfunction. She was very helpful and I’m not as bad as I was. Even though it’s not 24/7 anymore and I do have some good days, or partial good days, after a BM, I can be totally ruined. I blamed various foods for years, but dietitians and the PT disagree. I still think some foods make it worse (nuts,dairy,citrus, spicy foods), so I avoid them. It’s a very isolating problem, as you say. Non-sufferers have no clue. I have other health issues, but for some reason, nothing makes me feel as blue as when this hurts. I’m so grateful when it’s not hurting, even if it’s only part of a day.

I hope you get some help and relief with this problem.

[hoopwhirl2007 in reply to Andilynn]

I too started to wonder if it was the food I was eating??? I thought possibly it was nuts, citrus and spicy food?? I cut them out of my diet and I still have the pain. A BM never used to hurt but since I've been doing specific stretching exercises for the last 2 weeks, a BM stings like mad I had an internal exam at docs this week and she said all looked healthy there apart from an internal hemmoroud high up. She gave me suppositories for hem which has not alleviated the pain at all. So many ifs, buts, maybes and wonder Ifs attached to this damn pain xx

[Andilynn in reply to hoopwhirl2007]

Wouldn’t it be nice if it was just a food issue…take that out of the diet and presto…pain gone. I still think good is a bit of a factor because constipation makes it worse. I’m careful about any exercise that pulls on the muscles by the bum. Even sleeping in too tight of a fetal position can aggravate it. Sitting too long, long car rides, all bad for me. I walk for 30 minutes every evening and that is the extent of my exercise program. If the pain is activated by a recent BM, I skip the walking …it’s not worth it that day.

[hoopwhirl2007 in reply to Andilynn]

I was managing my pain quite well until I started doing these exercises recommended for pn. I wish to God I never did these exercises because the pain is the worst I've had since pn started 7 years ago. Xx

[Andilynn in reply to hoopwhirl2007]

I’m so sorry. Remind yourself, that you were better before the exercises and that things will calm down eventually and you’ll feel better again. Knowing that I feel better sometimes, is what gives me hope for better days. I know it’s chronic and will come and go.

[hoopwhirl2007 in reply to Andilynn]

Thank you so much xxx

[SouthernSally in reply to hoopwhirl2007]

Many folks with pelvic pain and other ailments go on low oxalate diets. Check out interviews with Sally Norton on YT and her website Sallyknorton.comFull disclosure, I have not tried it. I plan to do a more restrictive diet but first I'm taking a family vacation after which I'll start with no bread, sugar, or artificial sweeteners.

[hoopwhirl2007 in reply to SouthernSally]

I will check this out regarding my diet. I do eat bread on a daily basis, not white but whole meal and wonder if this is a problem for me? hank you very much for your help. Hope u you have a lovely holiday xxx

[SouthernSally in reply to hoopwhirl2007]

You need to do the research for yourself if you think you may have food related issues. Some folks say there can be danger in getting rid of oxalates too quickly and some don't believe in any of it. From what I've read I personally believe that sugar, sweeteners, and bread are not good for health. I also think whole wheat bread metabolizes as sugar, just like white bread. I'm looking at strict dietary changes to see if it helps. I've got nothing to lose.

[pizon in reply to hoopwhirl2007]

it is not much better here in the States ..I was misdiagnosed for over 2;yrs…yoga and meditation is what has helped me..but you are correct people just do not understand why you can’t travel or drive as long as they can people just do not realize how often they sit …please let me know how you get on with the osteopath…I have never heard of this for p/n…I also have had success working with an herbalist..I take valerian root and hops for the nerve pain

[hoopwhirl2007 in reply to pizon]

You are so right. People don't understand. Do you know, since I've had this problem my so called friends, bit by bit have stopped including me in social events. They cannot be bothered anymore. They couldn't have been good friends in the first place! When I start explaining PN to people, you see them getting bored and changing the subject. Does this herbal treatment have any side effects and is it readily available? Yes, I will let you know how I get on with osteopath xx

[pizon in reply to hoopwhirl2007]

the same with me..my family dosen’t want to understand that I am limited to certain activities even after going to the Dr.’s with me..I have had Dr.’s that don’t fully understand….I am blessed to have a husband that dose understand but it is only because he has a bad back and understands nerve pain..I just keep my trust in the Lord and get thru it..and yes your right they were never your friends ..you like me are better off with out them…yes I get my valerian root and hops from Amazon my herbalist tells me it is a nerve tonic…it truly helps me much more then any medications from the dr…..read the book “Healing Pelvic Pain” by Amy Stein I also have found the dvd Your Pace Yoga by Dustine Miller very helpful..this horrid condition is so individualized what helps one may not help the other I just know for 2 years I tried all the meds and I had horrible side effects so I take 2 capsules of each the valerian root and the Hops up to 3 times a day and it truly helps me …try it at bed time 🥱 it dose not make me sleepy during the day..please keep in touch

[hoopwhirl2007 in reply to pizon]

How great to have someone to talk to who fully understands the pain we are enduring. I am sure there are people out there who think I'm seeking attention???? I think it is because I look normal when standing and walking so unless I am limping or clutching my head and crying, they cannot see that I am in pain???? I also have ms which I was diagnosed with in 2009. I am very lucky because the ms gives me little to no trouble at all. I don't have time to think about the ms having this pn pain. I, too, have a partner who is my rock. He sees the pain I am in and he gets so frustrated wishing that he could take the pain away for me. He has attended every single medical appointment with me and I couldn't ask for more . Yes, I definitely will keep in touch. I'll let you know how I get on with the osteo on Saturday. Take care, keep smiling and enjoy every moment you are without pain. Xxx

[pizon in reply to hoopwhirl2007]

Stay strong

Good words

[pizon in reply to hoopwhirl2007]

look for me on face book I am under Annette pisa

[hoopwhirl2007 in reply to pizon]

I don't do FB but I will keep in touch on here xx

[pizon in reply to hoopwhirl2007]

ok..if you want my email is [e-mail]

[Whysodifficult in reply to pizon]

I drive for a living .. I bought a cushion shaped like a horse shoe so nothing under my lower spine but what helps most is some soft support behind my lower back .. x

[pizon in reply to Whysodifficult]

I am glad you have found a cushion that works for you..I have many cushions that I have gotten over the years..some days it helps some days it dose not…this horrid condition is so individual to each person..that is the beauty of this forum we can all help each other..the longer I suffer with this I personally find that the weather effects my pain level..can you please tell us the brand name of the cushion

[Whysodifficult in reply to pizon]

Thank you …my cushion is the same as yours today it didn’t work .. I can’t remember the name but it was made in china…

But I use a neck support you use when you need to sleep on a plane to support my middle to lower back…xx

We will keep trying but everyone’s pain is so different..x

[Chica1943 in reply to Whysodifficult]

I bought mine from Cushionyourassets.com. It was designed by a woman whose significant other has PN. I bought one. It’s a life saver when you have to sit. It’s made with a channel down the center( which can be adjusted for your personal anatomy). This way your pelvic floor never touches a hard surface

[hoopwhirl2007 in reply to Chica1943]

Unfortunately not available in the UK. This is what I wanted and found out only available in the State's.

[Jobie18 in reply to hoopwhirl2007]

Hi, I am so sorry to hear you have this problem too. (Pudendal Neuralgia) I have been suffering from this for the past 2 years, terrible nerve shocks up my bum and vagina and surrounding areas. I researched a load of so called Pudendal stretches etc and was advised by a so called "Pelvic Specialist" to do Pudendal Flossing but honestly the more I do these things the worse it gets. What I've learned is if you have a hyper tonic ie tight pelvis you shouldn't be doing kegal/kegel exercises, you should only be trying to relax the pelvis. Quite frustrating as this pretty much rules out exercise in that region all together. There's few videos on the tube you can watch. I see you posted a few months ago now and I'm new to the site. Any improvement since that last post? X

[Konagirl60]

I had successful decompression surgery albeit four years too late. My burning pain is all gone. My right pudendal nerve was pinched in three spots!

No stretches, PT, homeopathy, chiropractic, massage therapy helped me at all. No medications touched the pain either but they did sedate me cognitively for years.

I’m 12 years post op and CBD does not help my pudendal nerve pain if it gets inflamed from sitting too long, bending over my groin too much or of I lift too much in one day. It’s still highly sensitive to these positions.

THC in the form of a gummy helps for sleep. 2.5-5mg help me sleep.

[hoopwhirl2007]

This is really interesting. I am positive since doing daily stretching exercises, my pain has become the worst it every has been. I am seeing an osteopath on Saturday hoping that she can work some magic. What was actually involved in your homeopathy, this does interest me?

[Kenka in reply to hoopwhirl2007]

The homeopathy I take still now and it's a little round pillule. I don't know if you had radiotherapy, I did and the homeopathy helped get rid of the left over toxins in the pelvic area and the internal inflammation which has relieved pressure. The lady I see is in East Sussex, you could ask her. Pudendal pain is of course different with everyone depending on the reason it's there too, I tried pills, and, acupuncture, osteopath and exercise which aggravated it and thankfully found relief in the homeopath and physio specialising in the pelvic area.

[hoopwhirl2007 in reply to Kenka]

No I haven't had radiotherapy... That's never been offered me. I agree, everyone is different. You read so much about stretching exercises to release the tight pelvic floor as being the best way to relieve pain but after 2 weeks of doing these exrrci as es, I'm in agony. I'll check out your homeopathy which works for you. I'm so fed up with this but so glad there is this forum where at last people understand!! Xx

[hoopwhirl2007 in reply to Kenka]

What is this pillule and where can I get it? Xx

[pizon]

I didn’t have much luck with the cind oil it helped when I first started using it but wore off..I find that medicial marijuana has helped the most

[hoopwhirl2007 in reply to pizon]

Medical marijuana is not given here in the UK. We are so behind the times!

[Jobie18]

Cbd will probably help you sleep better but it won't help much with regards to chronic pain. For sleeping through the night though, I have found it to be really good x