I am new to this, I have a suspected mucosal prolapse (similar to rectal prolapse) in my bottom. The symptoms are horrible - a feeling of pressure inside my bottom and pudendal nerve pain all around my bottom. I am waiting for an ‘examination under anaesthetic’ for a confirmed diagnosis but in the meantime I am in pain and feeling desperate. I also have bowel urgency issues which I find very distressing.
Does anyone else have similar problems or advice please? Thank you
I have the rectal pain and burning and I did a lot of different things and pelvic floor physical therapy for a year and a half which helped... I also get the urgency sometimes ...anyway I ended up going on a nerve pain med which has helped a lot.... I didn't have the diagnostic for the nerve pain but I went to a colorectal doctor and he diagnosed me with Levator ani.... Which means my muscles and nerves are not behaving correctly... As far as I can see I don't have a prolapse so that's one thing but it's all under heading of pelvic floor dysfunction.... There is a Facebook group for it and it's very helpful for me just look in Facebook under pelvic floor dysunction support. And also you can go on pudental hope website and there's also a Facebook group for pudental neuralgia support
Thank you so much for your advice, I will have a look at what you suggested. Good luck with everything for you too
I have similar symptoms basically pain after stools which are always thin and urgency to go with tenesmus. Like nothing comes out after the first morning poop. The whole day I feel like there's something I need to expel. MRI says there's intussusception with moderate mucosal prolapse of the rectum. I will be meeting with the surgeon tomorrow. Diltiazem cream helps with the tenesmus and rectal fullness. It's driving me crazy, sometimes taking Magnesium oxide helps move everything out which gives and aah feeling of normalcy. I also have an appointment with a biofeedback therapist, I hear that it helps, but I have tried Kegel exercises but they don't do much. Some say mucopexy surgery works for the obstructive defecation, but I'm afraid surgery could make things worse.
Thank you for your reply. I’m now booked for an ‘examination under anaesthetic’ on 30th March to see what’s going on inside my rectum, but I haven’t got a date for my proctogram yet. I’ll look into the cream you recommended - thank you! Sorry to hear you have such problems, it’s hard to cope sometimes isn’t it.
Are u innthe UK what meds did u get pls did it help the urgency jx
No I'm in US, the urgency sill continues.
I just saw your post. I have prolapses, pudendal neuralgia, and I get rectal pain on and off. It's part of the nerve damage to my pudendal nerve. I have been getting radiofrequency ablation for the pudendal nerve and it reduced my pain exponentially. From 6-10 to 0-5. I think the prolapse is also adding to my pain and I also have obturator neuralgia and piriformis syndrome. So not exactly the same. I get botox shots as well to relax my pelvic floor and between the two (radiofrequency ablation/botox shots) I am much better.
Thank you very much for your reply. It sounds like you’ve got a comprehensive diagnosis and some treatment that works, I’m very glad for you. I wonder who diagnosed the pudendal nerve related pain for you, I’m having difficulty getting to speak to a doctor due to the long NHS waits. I’m seeing a colorectal surgeon privately for my prolapse and am waiting for an examination under anaesthetic and a proctogram to see exactly what’s going on. I also have horrible bowel urgency issues which may or may not be linked.I’m feeling really low with the prospect of more surgery (I’ve just had surgery for a vaginal prolapse) and incontinence problems which may not be possible to solve. A few months ago I could run 5 miles and had a great job, now I have to stay at home due to the urgency issues, and deal with the pain of the rectal prolapse.
I'm so sorry you're going through this. I was severely injured by transvaginal mesh for urinary incontinence. I have had 22 surgeries in the last 11 years to remove/repair damage done. Unfortunately, one of the removals injured my pudendal nerves. I know what it's like to be great one day, then knocked back into bed. I used a wheelchair for 2 years. The pudendal nerves work for the bladder, bowel and sexual functions. I have a neurogenic bladder. I also have reoccurred bowel, bladder and vaginal prolapse. No one wants to touch me, I have nothing left to work with to be able to correct my prolapses/dysfunction. I saw a PT for a year and a half. She told me at the last visit that I have gotten as far as I could get. I get pelvic floor botox shots quarterly. I am also getting radiofrequency ablation of my pudendal nerves. The radiofrequency ablation has made a humongous difference. I can now walk a mile or more. It sounds like your pudendal nerve is involved to me. I also get rectal pain, urgency, and my urethra is extremely painful at times. Since I have a neurogenic bladder I'm supposed to cath. I avoid it as much as possible. I can still feel my bladder, being neurogenic, I wouldn't think that would be the case. It has lost it's ability to squeeze. Cathing sets off my urethra, which was also "very damaged " according to the doctor. If you get severe pain in your bladder/bowels I recommend B&O's (belladonna and opium) as it is the only medication that relieves the pain/urgency. I am on Oxycodone, but it doesn't touch this pain. I am going to ask again for a pessary. My friend, also severely injured by mesh, convinced the doctor to let her try it. It is working for her. Her doctor and my doctor both tried to tell us our pain would go through the roof. That didn't happen with her. And it helped reduce some of the pain/uncomfortableness she was experiencing. I am in the USA, so can help with doctors in the UK.
Thank you for your reply. It sounds like you’ve been through a lot and are still going through it. Pudendal nerve pain is a horrible thing isn’t it. I’ve recently been put on Gabapentin and it seems to be helping. I’ve got a long way to go , with possible bowel surgery, it all seems overwhelming sometimes and I’m just trying to hang on. Thanks very much for all the information in your message
You're welcome. Yes it is horrible, but there is hope. There is much that can be done. Hang in there! I'm happy to hear gabapentin is working for you. I had terrible side effects and no relief from it.
Hi if you have a prolspse has your doctor suggested a pelvic floor repair ..or uou could try a kegal 8 as well as its for the vagina they do have probes for the Anus in May need tightening up...also take vid and collegan gor your pelvic floor good luck jx
Hi I have rectal prolapse also I also have ibs c so the constipation has caused it,its the pains that I get with it like sciatic type down my legs especially the front of them and in feet. I've tried to explain this to the bowel clinic I attend but it's the same thing just try not to get constipation and do pelvic floor exercises also it's becoming frustrating 😐
Thanks for your reply. I’m waiting for an ‘examination under anaesthetic’ to see if I have a prolapse, my IBS causes frequent stools not constipation, we’re all different aren’t we! I hope you get some help, and good luck with the pelvic floor exercises, I’m doing them too, to try to strengthen my anal sphincter muscle which is weak.
Thank you it is awful 😖 hope you get sorted soon x
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