Botox injections for pudendal nerve pain

[Liz_2018]

Has anyone ever had botox injections for pudendal nerve pain and gotten relief. This is something that I haven't tried.

[Pinky2233]

Didn’t help me. I had it done 3 times with 3 different doctors. But that was me. Everyone is different. Sending you my support for a better day and the hope it works for you if you have it done!

[Liz_2018 in reply to Pinky2233]

Thanks for your reply. I was curious I heard of these injections but hadn't tried them. Tried everything else. I always thought botox was for wrinkles.

[Kreole in reply to Liz_2018]

I had six, One every six months and never worked for me.

[Liz_2018 in reply to Kreole]

Goodness I'm sorry.

[charlee4 in reply to Pinky2233]

Didn't help me, but I had it only once. I can't keep paying out of pocket for these things that have not worked for me.

[Liz_2018 in reply to charlee4]

I totally understand that. I've been trying everything with no success. The medtronic nerve stimulator implant and revision was the most expensive unsuccessful one. I can almost guarantee if it didn't work for you then it won't work for me either. I appreciate you letting me know.

[charlee4 in reply to Liz_2018]

I don't know whether it would work for you or not. I just know it didn't work for me. I don't want to discourage you. May we all find some peace

[anne77 in reply to Liz_2018]

Hi Liz, can you private message me as to who did the procedure and where you had the medtronic nerve stimulator installed? I have heard mixed reviews on this. THX, Anne

[lucyp in reply to anne77]

Hi,

I had Botox, I had some relief for a couple of months,nothing long lasting.

Regards lucy

[Liz_2018 in reply to lucyp]

Thank you for replying Lucy.

[Red1974 in reply to lucyp]

Where do you it done???

[lucyp in reply to Red1974]

I had it done in Bristoll with Dr Greenslade

[stubb in reply to anne77]

Hi Anne, its Ann here, I have had the medtronic stim inserted and after 18mnths of struggling to get any relief I had it removed in Sydney and had a Boston stim which is much more involved and better, put in. Unfortunately as yet I haven't had much relief from it so I've had 3 lots of Botox, which didn't help and I've just had a ketamine infusion done in Sydney but once again not much relief hope you have more luck than me.

[anne77 in reply to stubb]

Stubb (Ann), I'm so sorry to hear that. I appreciate you sharing, and hope that you (as well as all of us) can find relief in the near future!!

[Liz_2018 in reply to stubb]

Stubb what is ketamine infusion?

[stubb in reply to Liz_2018]

Hi Liz I didn't know either until my specialist recommended it so I looked it up on the internet and it was originally used as an anaesthetic in the early days and used now for pain relief when other treatments don't work. It is infused just under the skin over 7-10 days and starts off at 4mg for a few hours then gradually increased to 20 mg, It is like a drip but is run by a computer. It didn't seem to help me but now he has prescribed LORSPAN PATCHES and KETAMINE suppositories (to place into vagina) so hopefully I may get some relief. I still have a horrible feeling of something trying to push out from my rectum and a lot of pressure so I'm at a loss what else to do Ive seen just about all the specialists t o do with pelvic pain.

[Liz_2018 in reply to stubb]

Hi Stubb, I appreciate the information. I hope it gives you relief.

[saintonhigh in reply to Liz_2018]

BE CAREFUL WITH KETAMINE! I TRIED IT AND IT DIDN'T WORK BUT MADE ME VERY VERY SICK FOR AN ENTIRE WEEK. IT IS A HORSE TRANQUILIZER. I DON'T KNOW HOW IT'S ALLOWED TO BE PEDDLED!

[Liz_2018 in reply to saintonhigh]

Thank you for the warning. I've raised horses and cattle and have dogs as well for 30+ years and I've learned alot of medicine that's used for animals we use as well. The vets just charge a heck of a lot more money for it. Example tramadol my dog had arthritis pain and was prescribed tramadol which was going to be expensive I told my vet that I had tramadol at home that I had been on it but was taken off to try a different pain medication. He said yes and told me to just cut it in half. They're were other medication that I have used that was prescribed to our animals.

[Black_Cat1 in reply to stubb]

Ooooh, you must have been flying with that ket infusion 😊

[Liz_2018 in reply to anne77]

Hi anne77 I pm you yesterday did you not receive it

[VeroMom]

Hi Liz ! Your post sounds a lot like mine. Did you ever try Botox injections? I’m in terrible rectal pain. Thank you!!!

[Artsy74 in reply to VeroMom]

Hi. I have been reading this thread. I have terrible rectal pain also. Have you found any relief since your post?

[VeroMom in reply to Artsy74]

Hi there! Sorry to hear about your pain. ☹️ People have absolutely no idea how horrific this pain can be. So far, my only relief has been tramadol. I have tried gabapentin, Lyrica, amitryptiline, etc.., but tramadol is the only thing that takes the edge off. I tried to get a rx for Botox injections but got rejected twice. I am seeing a urogynecologist in September in case I may have any scar tissue that may be adding to my problem. Lmk what you decide to try. Best wishes! 🙏

[Artsy74 in reply to VeroMom]

Thanks for your reply. Yes, it is difficult to share even with the closest of friends the pain that you are going through. I am currently taking gabapentin - been on for years, and I take Celebrex because I have inflammation that affects my knees, hands etc and figure it can't hurt to keep inflammation levels down and also just started on suppositories of late with Valium/Baclofen/Ketamine to relax the pelvic floor. I am also doing PT with pelvic floor person, although I am about to try someone new even though they aren't on my insurance. New person sounds better credentialed for pelvic pain and does myofascial. I was turned down by insurance for Botox. Have been researching here to see if I want to go ahead and pay out of pocket for it, which is kinda of pricey. I also am very sensitive to many things (chemicals, etc) and don't want to make worse. Will stay in touch and hopefully if one of us finds help then can share. Best to you too!🌺😁

[VeroMom]

Hi Liz! Did you ever get the Botox injections? Thanks!

[Liz_2018 in reply to VeroMom]

Hi VeroMom no I haven't ever tried Botox injections. My rectal pain has eased up alot in the past couple months. I don't know if its because of the methadone they put me on. This medication has helped my pain where everything else I've been on never touched it. At least I'm not in tears all the time. But I still have pain just not much in the rectum only in the vagina, labia and clitoria area. I had a pain pump trial and I had 100% pain relief. The medication that was used is called Duladid ( hydromorphone) I am waiting on my permanent one to be implanted of course the insurance company is dragging their feet.

[VeroMom]

Thank you so much Liz! How much methadone do you take? Are you able to work? I am a teacher, but during lunch and planning pretty much sit and cry from pain. Where will your pain pun be implanted? Thanks again for your help! It’s nice to feel not so alone.

[Liz_2018]

I take 10 mg of methadone three times a day. The pain pump will be implanted on my side near my abdomen.

[VeroMom]

Thanks so much! Prayers for your journey 🙏

[Liz_2018 in reply to VeroMom]

Prayers to you as well. If you have any other questions please let me know.

[Pumpkins226]

I've had it once before (Botox) and I'm having it again tomorrow with Dr. Hibner. It reduces my pain by 40% but he's a highly skilled surgeon.

[Artsy74 in reply to Pumpkins226]

Am thinking about Botox. Dr. Hibner is my doc. Will have to pay out of pocket..Anyway, did you have any side effects from taking the botox? I am pretty sensitive to all sorts of things and haven't really found any testimonials about botox from patients having it.

[Pumpkins226 in reply to Artsy74]

I have Medicare and they covered it ALL. The office manger at Hibners office said most all insurances cover it now. I had no side effects at all. It made my nerve more tender for a day, so make sure you go home with some pain meds. The only negative effect I had was the last time I did it, I think he used a bit too much botox and I had a small amount of bladder leakage for about 3 weeks. It does help the pain. Not a huge amount but it takes the edge off. Make sure you ask for a steroid and nerve block at the same time of the injection. Tell him Jennifer Dean says hi, Ive been seeing him for a very long time. His surgery saved my life. Youre in good hands dont worry about a thing.

[Artsy74 in reply to Pumpkins226]

Thanks for your reply. I am not on medicare yet. I have a HMO and they already rejected the request for the procedure.

[Artsy74 in reply to Pumpkins226]

BTW, do you have a Medicare Supplement or straight Medicare, etc.?

[AuntieH in reply to Pumpkins226]

In what ways did your surgery with Dr Hibner help you? I am considering contacting him sometime in the future. Thanks!

[Pumpkins226]

Just FYI guys, I've done it ALL. So if you have any questions just ask. From nerve blocks to surgery to ketamine. Honestly the thing I have my eye in is something in trials right now called RTX.

[Lexi1221 in reply to Pumpkins226]

Just caught your blog. What is RTX?

[Artsy74 in reply to Pumpkins226]

Just got on this site. Doing some research. Trying to decide about doing botox injections. What is RTX? Just googled it and got nothing.

[brycesara in reply to Pumpkins226]

This was a year ago so don't know if you're still on the forum. Just had some questions about botox??