Pudendal nerve damage

[Janebee]

Hi has anybody used a tens machine for pudendal nerve damage and knows where to place the electros and if anybody can tell me if they have used anything else that has helped with the pain

[chillijava]

hi

i have used a tens for back pain before but never for pudendal nerve pain, so i cant help you with this one but pain meds are the mainstay for pne

andreax

[Janebee in reply to chillijava]

Hi I am on amitrptyline it is not working now any suggestions

[chillijava in reply to Janebee]

it does take a while to get relief, and it wont work well until you get to that level that is best for you, also maybe you will need a cocktail of pain meds, most of us do, so please see your gp or pain doctor to help you

andreax

[Janebee in reply to chillijava]

Thanks so much

[trevormorgan]

Mindfulness techniques, meditation, is helpful. Most drugs seem to deaden the brain and repress creativity for me but not for others. Mindfulness has been an additional tool to help. It also helps to get life into a focus

[Janebee in reply to trevormorgan]

Hi I already tried that Many Thanks

[trevormorgan in reply to Janebee]

Your mind is stronger than you give it credit. Tried for how long? There are no magic bullet solutions and endurance in confronting this is essential. We are all different and what works for some does not for others. All pain meds have cede effects for me but they are a great help for others. I have not tried a tens machine but will now.

Stay strong and focus on the far horizon and your goals in life beyond ...

[Janebee in reply to trevormorgan]

Thanks so much for your reply it means a lot

[Janebee in reply to trevormorgan]

Hi I tried mindfulness for 9 months I am now a member of uncommon knowledge and I have been buying downloads from them I have quite a few downloads this is hypnosis hope this will help

[Hidden]

Hi. I have one and have tried it with a little success. I have seen a pelvic pain physio l, their advice was to use the four electrodes around L2-3 on my lower back, to interrupt potential signals from the pudendal nerve. I think it is hard for me to advise you, ideally you need a medical professional to advise you, but no harm can come to you if you experiment I guess. One word of warning - my physio said don't use the Pulse setting - that can cause the muscles to contract which is what you don't want. You want the 'buzzing' only, to interrupt the pain. Hope that helps! A.

[Janebee in reply to Hidden]

Hi thanks so much for your help

[Dcleary in reply to Hidden]

Hi, I was reading through and scanning responses on anything regarding pelvic pain and its relationship with the back.I have been seeing a pain management doctor whose specialty is the spine. After telling him about seeing things on a forum about this relationship, and he has never heard of that before. I also have severe stinging from the botttom of my left foot radiatingup to the pelvic area. None of this was going on until I had a partial hysterectomy a little over three years ago. So, he has ordered an MRI next Wed. to ilook again. II have had so many tests in the past three years I'm afraid of nothing showing up. I have been from a to z with doctors and tests and the Mayo Clinic as the last one about two and a half years ago. Does anyone know if messages are archived in this forum? I remember a couple of months back seeing something in relation to your info regarding a connection with the back and pelvic pain. I hope this is making sense. Thanks for any help.

[2cv1964]

Hi there. Yes I was given a prescription after my Decompression Surgery. It was placed on lower back.. unfortunately it did not provide any relief. Acupuncture did for a while. Take great care of yourself. I take Rivotril Clonzapan which does help a lot! As your Doctor to tell you exactly where to place the pads and also about medication. lots of luck and goodwill.

[Janebee]

Hi everyone I am just new to this sight I am 70 yrs old and I am not clued up in this modern technology I don't even know if I am using it properly it is just try and error if anybody can give me any advise on this it would be most appreciated

[lala93]

Hey Janebee.

My physio lent me her tens machine and placed it on my sacrifice illaic joints. Just above my bum crack. So imagine if your bum crack (sorry for graphic words) is the middle you place them beside it just above the line. Then two more inner thighs quite close to vagina on the closer to the bottom of your thigh. It helped me when I had bad pain but sometimes it could make me tense up but it definitely helped when I was experiencing bad pain. 😊

[Janebee in reply to lala93]

Hi thanks so much for your reply I haven't been on the sight for some time as I have been in so much pain and I am still waiting on a appointment for the pain clinic that's been over 3 months I have been waiting e tens machine that I have got has only got two electrodes on it and it is supposed to be for pelvic pain and the place it is showing you to put them dose not do anything for the pain thanks again for your information I really appreciate it

[lala93 in reply to Janebee]

Hey janbee. That is okay, sorry to hear you are in bad pain. Hopefully your pain will start settling down soon. Are you placing the pads near the inner thigh, closer to the beggining of the bum. Because you are in a lot of pain you will need a higher setting (I'm sure you already know this information but worth a shot). Keep trying the tens machine because my physio explained to me that the vibrations it sends to your body provides your brain with normal signals so your body learns to understand when you receive a feeling from that body part you don't need to cause pain. It's all about teaching your body normal signals because at the moment your signals are all over the place. I would keep trying!

[Janebee in reply to lala93]

Hi thanks so much for your information in the instructions it tells you to please the pads at each side of your navel and I am not getting any relief from that so I am going to try it where you put yours so that is on each thigh at the back closer to your bum so just tell me if I have got that right Thanks so much x

[lala93 in reply to Janebee]

Hey Janbee. Oh really! I wouldn't think to put it there. How I applied the pads each night ( physio told me to use it for half an hour each night even if I didn't have any pain) I would look in the mirror, sitting on the ground and open my legs, bending my knees. The area of skin Where it changes from the inner thigh to bum that's where I placed them. If I was experiencing pain I would have it on a higher level. Try to get it as close to the areas you get paid. Because the pudendal nerve runs through your pelvis and I can get a sore lower back I was also told you put it on my sacro illiac, maybe try that area too. Your meant to put it on a setting level that you feel the buzzing for the first few minutes and then eventually it eases down otherwise you have it too High.

[Janebee in reply to lala93]

Hi thanks so much for your help it really means a lot to me this pain is driving me crazy as soon as I get up in the morning and sit down it starts I have no pain lying down so to me it seems to be pressure that's causing it I have been treated for that many different things from getting my bladder stretched UTI Thrush hormone defishency and it has been going on for nearly 3 yrs I am nearly reaching breaking point I have bought 4 different cushions to see if it would help with the pressure and not one have helped the last one I bought cost me £200 and it was meant to be for pelvic pain and then I bought a acupuncture machine and a Tens machine I am fed up waisting money and nothing works I will certainly try the position you have showed me Thanks. Janebee x

[lala93 in reply to Janebee]

Hey janbee. I am glad to help. Yes definitely a pressure thing, sitting puts pressure on the nerve so it plays up. I find a really hard seat is bad but a really comfortable couch is good for me. Haven't tried a cushion yet but you would have to try and figure out how to sit without upsetting the PN nerve. The other things I would suggest is going to see a physio for some pain relief mechanisms. The pain specialist should help you also. If you experience bad pain everyday, a trick of mine is lidocaine cream. Basically it's a numbing cream. So it blocks the pain signials to your brain meaning no pain. If your pain is in a certain area, put a bit of that cream on it and the relief lasts hours. You can get it from a chemist, is around $30-40 for a small tube but you only need a little bit another tick is heat packs as it relaxes the muscles! Hope these help. X

[Janebee in reply to lala93]

Hi lala93 I use lidocaine and I am down to 1/2 tube I have got to set mine from Sri Lanca as I can't seem to get in the Uk I am waiting on a order coming and I use vagicool ice packs but like everything else it only lasts a short time I am going to the dentist just now as I have a abscess in my mouth I have been up the whole night it would be wonderfull if you could get a day pain freeThanks again for your help

[lala93 in reply to Janebee]

Hi janebee. Sorry to hear about your abscess that must be incredibly painful. I had never heard of vagicool, so I looked it up, all though the relief wouldn't last long at least there is options. The pain specialist should be able to prescribe something strong to give you relief. Good luck with everything! Xx

[Janebee in reply to lala93]

Hi lala93 thanks for your support I tried the tens machine where you told me to put the electrodes and while it was on it definitely helped with the pain so that is a step forward I dident get any relief putting on the place where the instructions should me to put them hopefully it will keep working that was the first time I tried them there Thanks again Janebee x

[Janebee in reply to lala93]

Hi lala93 I got my vagicool from Amazon you also get the disposable covers to put on them I also wrap a piece of kitchen roll round it as it is really cold against your skin hope this helps all my love Janebee

[lala93 in reply to Janebee]

Hello. Oh awesome, thank you!

[Janebee in reply to lala93]

Hi lala93 you are welcome glad to help xx

[Hidden in reply to Janebee]

Agree lidocaine cream or gel is not something we can get in the UK. There are some bite/sting creams that have it, 2% only. How do you purchase it from Sr Lanka (website) and what strength? A.

[Janebee in reply to Hidden]

Hi I go onto eBay and order I got my last order from the UK and I am sure I got it from a chemist from the UK if I can find it I will let you know you have got to fill in a very small form and they ask you what you are using it for I just said waxing and I got it. Janebee

[Janebee in reply to Hidden]

Hi if you go onto google and type lidocaine gel uk you will get quite a few chemists. One of the chemists is

Www. Chemistdirect .co.uk the have got the 5% one. Janebee x

[Hidden in reply to Janebee]

Thanks. I'll try that. Do you have to say why you want it? I remember getting denied Lidocaine gel on a UK site some time ago...? Andy

[Janebee in reply to Hidden]

Yes it asks you what you want it for and the first time I said for pelvic pain and I was refused it so the second time I said it was for waxing and I got it you can also get it for tattoos. Janebee. Xx

[Chica1943 in reply to Janebee]

I have found the best cushion is my theraseat. It has a pretty long oval cutout ( has a cover on it tho). I take mine everywhereThe other thing is just reminding myself that I cannot sit for as long periods of time as I used to be able to

[Janebee in reply to Chica1943]

Hi Chica1935

I have got the Theraseat I had send to USA for it I find it to thin for it relieve any pressure on the pelvic floor what works for one may not work for another I sent away for another cushion and it arrived yesterday so I will keep you updated on how I get on many Thanks for your information I really appreciate it Janebee

[Chica1943]

Please let me know name of new one you got. I hope that it works for you.

[Janebee in reply to Chica1943]

Hi chica1943

Just checked the name it's Gel Hemorrihoid normal neu that's all I can see for the name of cushion and the company is Bonniemed co that is everything I can see on the instructions I will go onto my pitches and see where I got it from and I will set back to you the cushion is firm and higher than a normal cushion I will also let you know if it gives any f g of you. Janebee

[Janebee in reply to Janebee]

Hi Chica 1943

Sorry about the last text I sent you it was all mixed up don't know what happened checked

All my love Janebeemy purchase history I got it from Amazon and it is a orthopedic and surgery cushion hope this helps you

[Janebee in reply to Janebee]

Hi don't know what this iPad is doing I will need to get my daughter to have a look at it I got it from Amazon it's a orthopedic cushion and surgery cushion hope you can read this email if you dident get the name just text me back. Janebee

[Janebee in reply to Janebee]

Hi chica1943

I went onto Amazon and saved the picture and details I don't know how to send them when my daughter comes home from work I will get her to do it.This is the cheapest cushion I have bought and so far it seems to be alright hope this helps you Janebee x

[Janebee in reply to Chica1943]

Go into Amazon and search for bonmedico® orthopaedic surgical ring / donut pillow with innovative gel cushion for relief of haemorrhoids (piles) and coccyx pain and discomfort, suitable for wheelchair, car seat, home, office or travel, in black

[Janebee in reply to Janebee]

Hi Chica1934

My daughter sent the last email it wouldn't let her send the picture for some reason hope this helps that was some of the details of the cushion Janebee x

[Chica1943 in reply to Janebee]

Thank you.

[Chica1943 in reply to Janebee]

Jane bee. I just looked at the cushion on Amazon. It looks like it might keep tailbone from touching a surface, but the valley cutout doesn't look as tho it is long enough to keep perineal area off a surface. That's where I get in trouble.... when I would sit on a solid surface for a short amount of time, I would begin with PN pain the next day. What is your opinion on this?

[Smollyholly in reply to Chica1943]

Hi I just use a neck cushion from TKMax which works fine It can be bent to the desired shape

[Janebee]

Hi Chic1943 so far it is the best cushion I have bought I have only been using it 2 days and find it quite good who knows it might not last and you know what works for me might not work for someone else I bought it as a last resort in cushions as I have spent so much money on cushions that don't work I will keep you updated on it and let you know how it is. Janebee x

[Janebee in reply to Janebee]

Hi Chic1943 update on cushion it was great the first couple of days and now it is as bad as ever I thought I had got one that worked for me disappointed Janebee xx

[Janebee]

Hi my heart goes out to you this pain takes over your life I am on 900mg of pregablin and 100 amytriptilin and like you it only takes the edge off it I go back to the hospital in November and see what they come up with I have had this for over 3yrs and I find it very hard to pass urine so I had the camera into my bladder so she said She needs to get to the bottom why I find it hard to pass urine so I will see what happens. Janebee

[Dcleary]

Hi, I have been off for awhile and just read your post. I can't believe it. I'm hoping that this is the answer no one ever mentioned. I've seen so many doctors and specialists and Mayo Clinic a dozen times. It just shows how much they don't know. I'm so thankful I came back to this site. I was really going to read up on Parkinson's since both of my brothers have it. It's so weird they have different types of Parkinson's. Thank you SO much. I need to reread your message again...forgot what I read other than the info pertaining to me!!haha

[Dcleary]

Hi, again....can you please explain what your problem was and procedure if possible. I don't know what the H word is. Also, can you relate anything in my message where I explained my situation. I always thought that I had one major pain issue since it was all rolling together. I was almost at the point of telling all these docs at the Mayo Clinic they were liars. Hehehe

They said I had TWO chronic pain issues!! Thanks for any info. Also, I saw a psysio for a period of time.

[Dcleary]

I just realized that this was written 2 years ago. I sure thought I had been on here since then. But, if you happen to see this, hopefully, I will be more attentive to the site. I will Google search it and maybe can find out something. I hope you are doing well.