adenomyosis pain after surgery

[Tarn1974]

I am still having severe pain after a full hysterectomy last June 2021

what can I do the pain is still there?

Please help

[Maceymae]

I wish I could help. I had/have endo stage 4. Hysterectomy done in stages. Still have bad period type pains. I have had a 8 ops. 2 since my last ovary removed. I had an mri with contrast and that showed frozen pelvis. That is most likely causing my pain. I am due in for another mri because the pain hasn't gone. Diverticulosis showed up on my ct recently. You could maybe look into both of those?

[endoTHENmesh]

So sorry you are still in pain. I had a hyst and bi-lateral ovariectomy years ago. I was put on hormone replacement bc i was only 31. The pain came back. I stopped the hormones and the pain became less. However there were still areas of endo embedded in my utero-sacral ligaments and my right round ligament. I saw an endo expert (now retired) who did a scope to check my pelvis and biwel. He removed those 3 ligaments and I have not had endo pain since.

I would caution that since you have had a hyst, caution should be taken re ligaments. Some of the ligaments may have been used to suspend your bladder, vagina and/or rectum. But it is possible there is still endo on the peritineum - which can be removed without issues. There are still plenty of hiding places for endo. Find a doc who knows that.

But first - stop taking hormones (if you are now) and give it 6 months. The only hormones you MUST have is a small dab of estrogen cream on the outside to keep your kady oarts from atrophying.

Endo is a life long fight. I have been in it for 50 years now. It is survivable. Best of luck...

[SRPI]

Do you have any pelvic floor PTs in your area? Sometimes they can help the pain with muscle release / myo-fascial treatment!