I have a history of endometriosis and 18 months ago I was diagnosed by a endo specialist with adenomyosis. The pain has been almost constant as I bleed for three weeks out of every month. To date the zoladex is the only treatment that has stopped periods and the severe pain that causes me to be sick and pass out but runs out early so the excellent pelvic pain specialist I see at a London hospital changed it to every three weeks which worked well for the pain. The zoladex now seems to have stopped working and I've been bleeding non stop and in pain daily having to take morphine SR tablets and liquid for breakthrough pain. I also take gabapentin, amitryptline, for nerve pain/pain memory, use a TENS unit for the severe back pain I get during my period but can't use it on my pelvic area. I'm seeing the urologists next week as pelvic pain specialist has given a provisional diagnosis of painful bladder syndrome/IC but the pain is different and although the medications I'm on haven't helped the pain or frequent urination the pain isn't as severe and feels completely different. I'm also seeing the pelvic pain specialist again next week because of the pain and the bleeding is too much and I'm struggling to cope.
Has anyone any other suggestions to help with the pain as the pain management consultant isn't very helpful and although I'm due to see the specialist nurse in the clinic in two weeks timefor help I'm not feeling too optimistic especially as I've tried all the treatments for endo/adenomyosis so there is nothing left to try and I really 'want' a hysterectomy but consultant not keen as I will still probably have some nerve related pain and she wants me to be able to have children in the future which isn't an option because of the pain with period and heavy and prolonged periods which leave me exhausted, feeling unwell all the time and frustrated. Also has anyone heard of or experienced zoladex not working anymore after being on it for just over a year. Any help and advice gratefully received