Recent laproscopy results no endo..

[Bluehusky96]

Hello

I recently had the news I don't have endo which is what was expected.

I'm rather upset as I was hoping to get a diagnosis of something! I just really want answers.

Bit of background- I'm 26 and been pretty much signed off since February. The pains have been bad since last summer but have been present for several years. I'm now at a point where I can't walk properly, I can manage 10 minutes and then I'm in pain for the rest of the day. I have pain during sex (we try occasionally but it happens 90% of the time), it aches and stabs particularly the week leading up to my period and the week of. But I still have pains the other 2 weeks. I'm on contraception and have been since 17, during my teen years I had heavy periods but contraception has made this not an issue.

I've been told my pelvic region is clean and I'm being referred to the pain management centre. Does anyone have any experiences of this? I'm already on: paracetamol, naproxen, high dosage of gabapentin, oramorph and morphine tablets...but still can't function as a human being.

Also any suggestions of other conditions that meet these sort of symptoms- I don't want to self diagnose just interested in people's experiences. I've heard about pelvic congestion syndrome but then read that can be diagnosed in a laproscopy ?!

Thank you 💞

[kalecolbe12]

Join the Facebook pages for pelvic floor dysfunction and pudental neuralgia... I think you'll find some answers there . These two groups have helped me a lot with my pelvic pain.... I went to pelvic floor physical therapy for a year and a half which was helpful and that might be something that would help you assess what's going on. Pelvic floor physical therapy specialists are the best to see

[suzie44na]

Hi, I have these problems, but mine is because of Tarlov cysts on my spine. Most doctors and specialists say these cysts cause no problems but they do, very painful. There are only three specialists in the UK who treat these cysts. They show up on MRI scan, maybe ask your doctor to rule these out, just a thought as not many people know about them. Hope you get a diagnosis soon, take care.Suzie

[Desperateforrelief]

It could be adenomyosis, which is similar to endometriosis, but the endometrial tissue goes through the uterine walls instead of into the abdomen. I was told it is more painful than endometriosis, but I believe it is relative to where nerves located. When I was diagnosed they had to wait until after hysterectomy to tell. I had a hysterectomy at age 28, because, like you I could only stand 10 mins at a time. I had 3 kids under the age of 4. Too hard. I was heart broken, but two doctors at that time told me I'd be miserable until I had a hysterectomy. I was on birth control as well, but it didn't stop my pain. It did seem like pregnancies helped with pain, but short lived. Came right back worse. I was also getting ovarian cysts that caused pain at the same time. I'm sorry you're so miserable - just awful. Hang in there, praying you find the help you need!

I went to a couple of appointments where I was told the pain was in my head because they couldn't see the cause. Hang in there. There is help, you have to search for it.b

[Desperateforrelief in reply to Desperateforrelief]

P.S. I had the exact same symptoms you describe. Laying down 2 weeks out of month, but the 2 easier weeks pain on and off. I had very heavy periods, which turned out to be varicose veins to the uterus. Probably from pregnancy with adenomyosis. But who knows. I did feel better after hysterectomy, but then my ovaries which had an occasional cyst before went wacko, and pain on every other side for months. They had to remove my left ovary with a huge cyst, but had to call it elective surgery at the same time to CYA. I just love doctors. Ugh. I have 3 really great ones. But I have seen more "idiot doctors than great ones".

[Desperateforrelief]

I also meant to add - I totally understand your disappointment. That has happened to me so many times. It is easier to deal with the problem you know, then the one you can't find.

[cafebomaes]

hello, you have a fascial disorder so you should look for a physical therapist who knows how to do fascial manipulation and, even more importantly, who knows how to work with tecartherapy (look online). Believe me because I started in 2014 with these symptoms and only in 2020, February, I started to get better. Good luck.

[OrchidKoi15]

Sounds alot like pelvic floor dysfunction. I have been going through the same stuff and trying continuous birth control now as I dont want IUD. I am in pelvic floor therapy and see a pelvic rehab dr. Worth a try