I am on here as I am losing hope. This is so so so tiring. I cannot cope and feel suicidal. I am begging doctors for help, they won't listen. I have pudendal neuralgia, I have done pelvic floor physical therapy to no avail. I cannot put pressure on my abdomen and have left sided vulval swelling. I cannot live swollen anymore because its driving me crazy. I need respite, I officially fele like i've lost it mentally.
I went to a private clinic which revealed two pudendal veins in line with my symptom that are not pumping back to the heart properly. I cannot sleep on these veins or put any pressure otherwise i almost faint but the doctor said these are "not significant" on the report and said not accountable for my symptoms. I disputed with him, I said that is in line with my symptoms. He said, the vains aren't that bad for the seriousness your experiencing. I felt physically sick that he said that.
Gynecology have ignored me when i said pudendal neuralgia, and have booked me in for a hysteroscopy. I dont mind having a hysterosocopy but I am going mad i feel so much pressure on my lower abdomen. It literally feels like im sitting on a lump in my belly on the lower left. MRI is clear.
A recent finding of 15 cysts on my right and 10 cysts on my left. My left ovary is excruitatingly painful along with my left swelling. I cannot work out where the source of pain is except the vains which is my gut feeling. Gynacologist tried to label me with pcos, except I have no symptoms of pcos, and my cysts are extremely painful and dragging and stabbing.
I cannot stand, walk or sit because of my abdominal and pudendal pain. My abdomen is putting pressure on my prosterior forchette.
Does anyone have any similar experience?
I feel like I am losing hope of having any quality of life. I am 26, I got ill when I was 21. I feel like they stole my dignity and this is inhumane. I cannot even wear clothes.