51 and 2 fibroids

[dogsdogs]

51 and 2 large fibroids

I have no pain or symptoms but the gynaecologist has suggested I have the fibroids removed as they have been steadily growing. I have not been offered any other treatments? any suggestions?

[Beingfree]

Hi I’m 52 and my gynaecologist found a very large fibroid and a cluster making my uterus enlarged, it was suggested I had a hysterectomy, (the fibroids did cause me a full feeling and lots of pain monthly) so I had the hysterectomy last Monday, I had it done key hole and my goodness I feel fantastic , in a week...... so if you are going down that route please don’t be worried. Good luck

[Bluelady-sing in reply to Beingfree]

I might have to mine is submuciod what were yours.

How did the surgery go

[Beingfree in reply to Bluelady-sing]

My fibroid diagnoses didn’t specify whether the fibroids were submucoid or otherwise.

Surgery took 4hrs but it was key hole and I’m 8 weeks on back driving and riding my horse.

I feel fantastic.

[StIvesmaid]

I was referred to an oncology gynaecologist when I was 61 as my GP feared I had ovarian cancer - I had gone to see him will chronic feelings of nausea and pressure and some pains in my chest. He found a large lump and the tests began. It was fibroids - the largest 16 cm x 10 cm, enlarged uterus etc. Because of the size and location of the fibroids I wasn’t offered keyhole surgery. The consultant recommended TAH and BSO. If abdominal surgery is recommended for you and not keyhole don’t worry, my incision was well behaved and has healed nicely. Feel much better now! I had absolutely no idea I had fibroids ( I had done a sterling job ignoring my lump for a long time), no symptoms that one would normally associate with the condition like bleeding or pain. I have read on this forum and spoken to friends who have had fibroids shrunk with medication to avoid surgery and that may be something to discuss for you with your consultant and GP. It’s not clear from your post whether a hysterectomy has even been mentioned or whether you have had a scan/MRI as part of your diagnosis. If you have had an MRI that may be why surgery has been suggested. Good luck with whatever you decide to do x

[ayexzybaby in reply to StIvesmaid]

hi, pls how can it be shrunk with mdication can i get the names of the medication used by your friends. i haave 3 and am diabetic. i dont want surgery what can i do

[StIvesmaid in reply to ayexzybaby]

Sorry but I don’t know the name of the medication but I’m sure your gp will be able to help. Good luck x

[Allimacca]

Have you looked up fibroid embolisation? It’s a procedure where they go in through an artery and use tiny little beads (about the size of a grain of sand) to cut off the blood supply to the fibroids. They then shrink and die over a period of time.

I’m booked in for an embolisation next week. My understanding with my fibroids is that to have them surgically removed would cause a whole load of issues with internal scarring because they are quite vascular which is why I’m going down this route.

[Moon_maiden in reply to Allimacca]

Hi

Hope you don’t mind me asking, how did your treatment go?

Many thanks

[Allimacca in reply to Moon_maiden]

Hi

No, I don’t mind at all

So the procedure went well, I had 2 weeks off work afterwards to recover - the worst of the pain only lasted a few days but I was pretty tired for a week/10 days. I still get occasional pains but nothing worse than a bit of mild period pain. I’m going back in a few weeks for a scan to see how well it’s worked, but the one that I could feel has definitely reduced in size. In all it should take 9-12 months before they’ve shrink down to the smallest they’re going to be.

[Moon_maiden in reply to Allimacca]

Many thanks 😊, sounds promising as a treatment.

Recently had treatment for endometriosis, originally three fibroids had shown on scan, he thought too small, having done the lap, there are more, one he said large, with enlarged uterus, and I think they are causing the issues still. I’m looking at what treatments maybe suggested.

This might sound a strange question, did you have issues with eating and ever feel shaky, like it involved the physical nervous system with movement?

[Allimacca in reply to Moon_maiden]

I’m lucky that the doctor who did mine has done thousands of them so really knows what he’s doing (and then some!) That said, the location of one of mine is incredibly rare (he’s only seen 10 or so of them before) and embolisation might not work on it.

One thing to be aware of is embolisation can mess around with your chances to conceive so if you haven’t had kids, or aren’t done having them yet, then it’s just another thing to consider.

I never felt shaky or anything like that but I do have some gastric issues and occasionally feel sick etc for no apparent reason. I am reasonably active (when I’m not sat on my backside at work) and used to try and ignore any aches/pains/issues with movement it nothing I’d have put down to anything more than age/wear and tear.

[Moon_maiden]

What was the location? You had a good consultant by the sounds of it, seems a key factor in getting things sorted.

The GP’s automatically put me in peri-menopause or menopause without even asking, not started yet. I hadn’t realised this until later in the year. The consultant said it could be several years.