Relieve at last : After 5 years i have... - Pelvic Pain Suppo...

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Relieve at last

willemine profile image
7 Replies

After 5 years i have relieve for at least 25 % till 50 % for a mounth long now . It started after 3 weeks when my PTNS treatment for overactive bladder doubled. I treat myself now ones a week because i am in a pilot i can insert the needle myself. I had severe PN pain round my tailbone in my perineum its a stabbing and burning pain can t sit only on my knees on a yoga bench. And had a neuropatic " trouser". Its life changing still i can t sit but i am up for 4,5 till 5 hours instead of 3 kan walk 2 miles instead of 1. Can read again can concentrate better and my sleep kwality is better. I also found a trail on internet were more than 60 procent of the persons got pelvic pain relieve from ptns treatment. You can surch on ; ptns pelvic pain to read about the trail. The pain was static for a very long time so i didn t expected the change but its a big gift and a big joy in life. PTNS is a small intervention so if its possible you can try it try it ! Its not as risky as a intern stimulator.

I look with confidence into the future the high pain who gave me depressions is over now and i can manage and cope !

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willemine profile image
willemine
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7 Replies
SuzyQ profile image
SuzyQ

Hi willemine; which country do you live in please? I searched for this treatment in the UK but couldn’t find it. I am pleased that you are finding it helpful though; it sounds very interesting.

Best wishes,

Suzy

willemine profile image
willemine in reply to SuzyQ

I googled for ptns and london and i got a hit ! there are hospitals that give this treatment for overactive bladder

SuzyQ profile image
SuzyQ in reply to willemine

Thank you willemine; I will have another search. Also, it might be worth me talking to the London Hospital that is treating me with my sacral neurostimulator. They may be able to advise a change of treatment.

Thank you again.

Suzy xx

kalecolbe12 profile image
kalecolbe12

What kind of medical professional does ptns treatments?urologist or pain doctor??and how did you get to do it yourself?can you give me all the details?thanks

willemine profile image
willemine in reply to kalecolbe12

Hi Kalecolbe Urologist gave it for overactive bladder. The run a pilot from the hospital so the nurses learn me how to insert the needle The pilot stops about 3 mounths. On google you can find a trail typ the words : ptns pelvic pain and you will find a resurch were also people got relieve from pelvic pain.

willemine profile image
willemine in reply to kalecolbe12

I have got my old high pain back dispides the treatment ptns i want to tell you all don t want to give you false hope

willemine profile image
willemine

The relieve is gone ik got my old high pain back 30 to 50 % more pain on a day still i use ptns but it doesn t help though i let you all know for not giving false hope.

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