Pudendal nerve block with Dr Baranowski in London?

[2977reader]

After two months of pudendal neuralgia, I am considering the nerve block injections as the condition is seriously curtailing what I can do. Has anyone had these injections with Dr Baranowski, in London? Thank you.

[Jenuk32]

Hello I haven’t but would love to hear how you get in? I’m from Birmingham and currently going through process of being diagnosed with this after an injury to my sitting bone and don’t know where to start x

[Pelviccrusader]

I have a new suggestion-a lot of my pudendal pain is from heavy metal poisoning. Even if that is not the case with you, high dose vitamin c can make a big difference. 4-8 grams a day. You can get transdermal patch at patchmd.com. Will just treat symptoms if you have underlying conditions, but less pain is better.

*Admin Edit

There is no evidence to suggest or support the idea that heavy metal poisoning is responsible for any pelvic pain condition other than abdominal pain from acute ingestion. There would in most cases be other symptoms present beforehand such as vomiting, headaches, fatigue

[Jenuk32 in reply to Pelviccrusader]

That’s interesting about the vitamin c what does that actually do then? I have been taking b vitamin 5 complex and omega 3 fish oil. As supposed to be good for muscles and nerve healing ? I’ll give anything a go! Ha!

[Pelviccrusader in reply to Jenuk32]

The b vitamins are fine. How much vitamin C helps will depend on what exactly is making your nerves unhappy. Your response will probably not be as dramatic as mine since mercury is an oxidizing agent and vitamin C is a reducing agent. So it is a perfect match. Nevertheless, even if you just have pinched nerves, that will likely induce oxidative stress because the nerve do not have adequate blood supply. Vitamin C should help this as well. Not much to lose. Better than decompression surgery!

[JH19 in reply to Pelviccrusader]

hi - how did you find out your metal poisoning was causing the pain?

[Pelviccrusader in reply to JH19]

The pain levels went down only when in high dose C. I decided to look into it more thoroughly after I learned that all animals on the planet with the exception of bats and humans make vitamin C and do not have to take it as a supplement. Not only that, they make 10 to 20 g a day. That made me feel a lot better about taking this level of vitamin C over an extended period of time. I found that not only did my sitting pain get better, but many tight muscles around my body became more loose and comfortable. My pudendal nerve was is the epicenter simply because I did a lot of bike riding so it was the first nerve to act up. I feel sharper mentally as well; again I just think the nerves are a little bit happier with oxidative stress alleviated.

* Admin Edit

There is no evidence that vitamin C helps nerve pain or any type

[lucyp in reply to Pelviccrusader]

I had nerve blocks in London with Andrew Baranoski, if I had my time again would not have it done. The injections gave me further problems and having a diagnosis as far as I know London offers no other treatment other than pain management.

For a few people they do help but personally I don,t know of any.

Lucy

[2977reader in reply to lucyp]

Hi, thanks for your reply. Could I ask if you had the injection at the nerve root in the buttock? Did the first nerve block cause you more problem? Thank you

[lucyp in reply to 2977reader]

Hi,

Sorry for delay in reply. Yes I had injections through buttock which was ultrasound and ct guided. I had a total of five and each one gave me increasing muscle spasm which took me years to resolve. Please feel free to ask me anything you are concerned about.

Lucy

[2977reader in reply to lucyp]

Hi Lucy, thanks for the information. Were the muscle spasms worse than the PN symptoms? Sometimes the symptoms become so painful, cannot concentrate on anything - work, everything is difficult, can feel myself sinking! Do you find anything in particular works for you beyond the injections? Thanks so much

[lucyp in reply to 2977reader]

No the spasm was,nt worse it was just more pain to manage this time at the buttock site. The whole area by this time was so hypersensitive that a huge input like the injection caused long term spam. Many years later I tried acupuncture even these tiny needles caused spasm so you can imagine the difference with a large injection.

I finally after improvement after many,many interventions and therapies, with David Mc Coids monster walk. Unfortunately I have passed this on to many other people and it does,nt seem to have had much effect, which just goes to show how complex this ghastly condition is.

Regards lucy

[2977reader in reply to lucyp]

Hi Lucy, have ordered the elastics for the monster walk that you advised. Please could you write what technique you used to perform it - wondered if you made any adjustments. There seem to be a few diffferent techniques on YouTube. Thanks so much.

[lucyp in reply to 2977reader]

Hi,

I started monster walk using the weakest bands and walked side ways a few steps the returned. You will get resistance and gradually I increased level of band and number of stretches. Hope this makes sense. I cannot emphasise enough for you to start slowly and gently and work up slowly.

Regards Lucy

[Ailiesonkerr in reply to lucyp]

Hi Lucy I was wondering what other problems the injections gave you? I am due next week to have first pudenal nerve injection and symptoms eased off a bit just now so not sure if to go ahead with it or not. Thanks

[lucyp in reply to Ailiesonkerr]

Hi,

It was really the mlong term buttock muscle spasm that was the big side effect. I think looking back, psychologically it was not a good experience as I had the travel the procedure the optimism of hoping for improvement which did,nt happen. As you probably know the mental input also drives the vicious cycle of pain so this was,nt a very good time at all.

I wish you well with what you decide.

Lucy

[Ailiesonkerr in reply to lucyp]

Thank you so much for your reply. Do you think in hindsight you would probably not have gone through with the nerve block? I guess when you are grasping at a solution you think it is the right one, as the thought of having to continue to put "up" with the pain is also overwhelming. Best regards Ailieson

[lucyp in reply to Ailiesonkerr]

No I would definitely not gone through with nerve blocks ,but hindsight is a difficult one. There are a small number of people who do benefit from blocks, I guess someone has to be in that number. I really don,t want to sway you one way or another, all I can do is reiterate how my experience was.

Lucy

[2977reader in reply to Ailiesonkerr]

Please could you report back on the injection? Like you, so difficult to make the decision to go ahead with it. Thank you

[JH19 in reply to Pelviccrusader]

Interesting! I just watched this at the weekend, struck some chords with me. And is relevant to your point youtu.be/QdpJzHks_Iw(Not working as expected?)

[Alaine1 Administrator in reply to Pelviccrusader]

Hi,

Just to add that taking more vitamin or mineral of any type is not recommended unless suggested by a medical professional especially for some chronic health conditions such as IBD, chronic malabsorption proven and under the care of a medical team not self diagnosed. Sometimes taking more of one will have negative consequences for other vitamins and minerals. It can also have potentially serious consequences for DNA as highlighted by scientists at Leicester University.

independent.co.uk/news/too-...

In some cases it is simply dangerous to do this eg Vitamin A for instance.

Just to add there is no evidence that vitamin C helps nerve pain

[Jenuk32 in reply to Pelviccrusader]

I’ve had no scan of yet docs don’t seem to want to do one 😢 but I had an injury where I jumped onto my right sitting bone I think I damaged the muscle there and also the nerves there they don’t rest I’ve had to take amitriptaline to calm them I’m not sure if nerve is trapped or not but it’s a ring of tingles from anus to vagina entrance and throbbing sometimes. Currently seeing physio and waiting for urologist gynaecologist.ill try some vitamin c

[Bluetime]

Did you go ahead with the treatment?

[kalecolbe12]

You may also want to consider Botox and pelvic floor physical therapy

[Hidden]

I had a series of nerve blocks, none of which helped with my symptoms - pins and needles and extreme sensitivity to touch in vulval/anal/inner thighs. Amitriptyline and pregabalin helped, and eventually symptoms reduced a lot after about 3 years. I still have pelvic floor muscle tightness and spasm and some soreness. Only a few people on this site seem to find nerve blocks effective. Lots of people find a women's health PT who does internal treatment useful. Not sure if your current physiotherapist doors this but it could be worth seeing one in case tight muscles are a part of the problem. In my case, it started as nerve pain but then muscles started to.dysfunction due to the pain. This is relatively common so my PT says. I've not read anyone on this site saying vitamin C helped apart from pelvic crusader above. I just read the research article posted above which would personally make me wary of this. The other thing which helps a lot of people is relaxation and stress reduction. I fully appreciate though that that is not easy when you're in pain and don't know why.

Best wishes and good luck

[aafia_azhar]

Hello I really hope you can help me.

I am due to have pudendal nerve block with Dr Baronowski in London for my pudendal neuralgia.

I am really scared and don't want to have worsening of my pain any further

Can you please let me know how was ur experience?

I will really appreciate your help.

Thanks a bit

[emunah1 in reply to aafia_azhar]

Dear Aafia I was wondering how you are seeing him, I recently enquired and was told he is no longer practising privately, is it under the NHS you are seeing him? Thank you