Pudendal nerve block - any successes?

[2977reader]

Pudendal nerve block - has anyone had one that has had a long-lasting effect that has not caused more pain? There seem to be only negative reports here. Thank you for any hope!

[Baileydog]

Hi I have suffered with puedendal neuralgia and it’s other problems it brings with it. I suffer from pelvic floor dysfunction. Bladder and bowel problems... the list goes on! My life changed dramatically. After three years of this I finally tried the nerve blocks.

I have them every six months or so. Iv had four. The last one being the most succesful. I can now sit a little better( although I try not to ) my bladder has settled and I don’t hVe as many flare ups of pain. It makes your pain worse for about a week or two but then it settles back down. It isn’t a cure. It’s pain management. Along with pelvic floor therapist, pregabalin and altering my sitting , I finally have less pain. They aren’t for everyone, but you don’t know if they will help you until you try.. good luck

Sandra

[2977reader in reply to Baileydog]

Thanks for that. Just weighing up the risks of the blocks. Do you live in the U.K? If so, do you mind me asking where you had your blocks done. Thanks for your time.

[nicetry]

Hi. I had a pudendal nerve block last year along with Botox in my bladder & pelvic floor. Helped a lot, but am overdue for another round.

[2977reader in reply to nicetry]

Are you in the U.K? If so, where did you have your treatment? Thanks so much.

[nicetry in reply to 2977reader]

No, sorry, I’m in the US.

[AuntieH in reply to nicetry]

Where do you get yours done?

[Taffy88]

I've suffered for over 3 years, and finally had this block after searching. But unfortunately for me it only worked for 1 hour. Everyone is different though.

[SunflowerGypsy1]

Yes I had those injection mainly on my left side. Why? Because after being in a car accident I learned I had a 11 to 1pm tear in my hip socket that was causing all the pain down there. I did injections for a month at twice a week. They served to calm down all the nerve roots so I could have hip repair surgery. Surgery was a success and no more vaginal pain or sudden twinges that use to double me over! I never in a million years would have guessed being rear ended as a passenger that this could have been related what so ever.

[Konagirl60 in reply to SunflowerGypsy1]

I’m glad you are much better now. We are lucky. We got good care.

[AuntieH in reply to SunflowerGypsy1]

That's wonderful! I have hip problems too. Where did you have your hip surgery done?

[willemine]

No no effects

[Konagirl60]

Yes, I have had two done properly.

The pudendal nerve blocks were done into the nerve root in my buttock ( supine position ) with fluoroscopy using both anaesthetic and steroid ( 50-60mg ) and they worked. I could sit pain free for 24 hours. This proved my pudendal nerve was the culprit.

I’ve had successful decompression surgery. Both my nerve blocks and surgery were done by Dr. Stanley Antolak in Minnesota.

[2977reader in reply to Konagirl60]

Hi, thanks for sharing that. Please could I ask you what your surgeon said about the risks / likelihood of the decompression surgery working? My specialist in the U.K seems sceptical of the surgery. Thanks so much

[Konagirl60 in reply to 2977reader]

The success rate is 70% and the sooner it’s done the better.

Your doctor could find out this information on the Net, or contact the French physician who performs decompression surgery in Nantes.

[2977reader in reply to Konagirl60]

Thanks for your response and so pleased it was so successful for you! Was your nerve entrapped or damaged? How long after you first experienced pudendal neuralgia did you have the injections and then the surgery? And finally, how bad was your pain before you decided to have the surgery? Thank you - your responses really help and give hope.

[Konagirl60 in reply to 2977reader]

The rear portion of my right pudendal nerve and right inferior rectal nerve were stuck between ligaments and onto fascia. It was like a vice grip squeezing them every time I sat. It started in January 2008.

After PT, I couldn’t lie down and rest or sleep anymore. I stood up all day for over a year until I started to fall down stairs or on bumps. I wore orthopaedic shoes and I still fell. My knees were hurt from all the standing. It was brutal! I knew by May 2008 what I needed and what was wrong.

I had proper nerve blocks done in Minnesota in 2009....18 months after this started. I was brushed off in Canada. I was given incorrect nerve blocks without guidance into my vagina when they needed to be into my buttock where the nerve root is. I did not have vaginal pain; I had electrocuting rectal pain!

The specialists misdiagnosed me on purpose to prevent a lawsuit. My entrapment was caused by a migrated titanium metal Filshie clip used in my tubal ligation surgery in 1998. They didn’t report the clip on my MRI report and instead said I had a nerve imbalance. Typical disrespect to women.

I had the surgery 3.5 years after the life threatening pain started. No medicine helped. I’m on long term disability because of medical neglect.

Had I had surgery in 2009 I’d be completely healed.

The pain was life threatening. I didn’t sleep for three years. I lost my sanity and I almost died from sleep deprivation. I knew I needed the surgery and no doctor would help me get it. I had to hired and pay a registered nurse consultant who advocate for me.

[2977reader in reply to Konagirl60]

Your experience has been horrendous - I do hope you are experiencing some respite from all your pain now. Thank you for continuing to share your hard-gained wisdom. It isn’t easy to know what is the right way forward with PN and all it brings.

[Konagirl60 in reply to 2977reader]

I’m way better but the flare ups are still bad enough to have me bedridden.

I want to sue and I cannot get a lawyer. This almost killed me. The doctors committed fraud. It’s obvious.

[Akabc123 in reply to Konagirl60]

Hello I had it done on October 23 and it increased my pain. It’s been close to two weeks. When does the nerve settle down. The doctor said he hit the nerve so it needs time. Did this happen to you

Thanks

[Konagirl60 in reply to Akabc123]

I’m not sure. Try taking Pascoflaire. It’s a natural anti-anxiety pill that works. You must stay calm if you can.

[Akabc123 in reply to Konagirl60]

Thanks

I’m going in for a colonoscopy and I’m afraid it will increase my pain

[Konagirl60 in reply to Akabc123]

Who suggested having this and why?

[Akabc123 in reply to Konagirl60]

The doctor they said I have polyps they saw through endoscopy

[Deannaheydt55]

I have had two pudendal nerve blocks with no relief. I have all the symptoms of pudendal neuralgia but no diagnosis for two years.

[Konagirl60 in reply to Deannaheydt55]

The blocks were likely not done correctly. Did they do them with guidance into the nerve root in your buttocks? Did they object both anesthetic and at least 40/60mg steroid?

[VictorV]

I’ve had about ten of them. Got 3 hours of relief from the anesthetic one time but otherwise nothing.

[hoopwhirl2007]

Hi, worked for one day and then numbness disappeared and pain returned so did not work for me.

[Wirral47]

I had two nerve blocks through the vagina for pudendal pain, done at Wythenshawe,Manchester pain clinic. They didn't wprk for me and I didn't go for the third. Since then I have developed Tarlov cysts in the same area and I think the two things are connected because I didn't have them before. I have tried all kinds of physio exercises but, sorry to say, nothing helps. Hope you find a solution but it won't be through the National Health. I am in constant pain and sitting down is like sitting on broken glass and has been for more than four years.