Botox

[kalecolbe12]

Hello folks... I'm still trying to get some response as to people who have had Botox for pelvic floor spasm/ tight pelvic floor muscles....one-time or multiple times and if it has helped them or not ....thanks

[Suzydeans]

Hi

I’ve had pelvic pain for years now and amongst other things had Botox injection. For me, no use unfortunately. I take Pregabalin which really helps me. May be a thought though for you. Good luck

[CMFCharlotte]

I had botox for my obturator internus muscles and got no relief from it except for the brief time the lidocaine was effective.

[Painfulbutt]

Botox did not help me. I get sone relief from gabapentin but it causes fatigue. Better to be tired than in pain.

[Chocolatemom]

I have- in the U.S.- at St. Joseph's in Phoenix, which supposedly had a "good" reputation". Well the HEAD doctor does ( Dr. Hibner). Long story short I had the procedure twice with the

"younger" doctor- Dr. Castellanos a Dr. In his late 30s.and supposedly is also good.

BIG MISTAKE. First time Fall of 2018- No improvement- which honestly, can happen often, so I rolled the dice again this July. Stupid, stupid, stupid. Woke up in pain and where as my everyday pain had been a manageable 5/6 during flares (that I treat with meds from pain management) I have been in a living hell of daily pain from 8-10. Have had to Increase pain meds and agressively pursue multiple avenues of physical therapy.

To be fair though, they warn you this is a possibility, and I read on other boards that many have success. I think this is both the case of the individual patient and skill of doctor. Buyer beware.

[Aryah in reply to Chocolatemom]

I had a good experience with castellanos. The Botox didn’t work for me in terms of reducing my pain, but I thought he was a great doctor. I see Hibner now, only because I’m so treatment resistant.

[kalecolbe12]

Wow !!!i live in phx and of course i know of dr hibner....but my colorectal does it....I am so worried about it but I also have manageable pain so I really don't know what to do.i have had this for ten months and in pt ...also had two weeks recently of no pain and normalcy but had a bad flare recently also ...stress seems to flare it ...also I think gluten...the flare was so bad that I thought yeah I'm getting the botox but then since I've had a lot of normal weeks I don't know what to do I have to think lately on this ....by the way which other pain sites have you checked into this is the only one I know of

[Chocolatemom in reply to kalecolbe12]

Well, there's a site called "PudendalHope.com" with lots of info, list of drs, forum , etc. Peoplevthere are extremely educated. I WILL say Castellanis was Excellent at performing my decompression surgery and has a great bed-side manner and of course Hibner is supposed to be THE BEST ( I should have gone to him in retrospect- the wait was longer). Everyone/ the operatiin at St. Joe's is top nitch from administrative to fellow's etc, I just think response to Botox is highly personalized AND if you're going to get it there go to Hibner!

[kalecolbe12 in reply to Chocolatemom]

He isn't on my ins and my colorectal doc does it all the time although I know he is famous for it...but thanks