I experienced Pudendal Neuralgia pain for almost 2 years after an MVA into my pelvis, fracturing my sacrum. Tried everything, pain injections, lyrica, Gabapentin, Duloxetine (Cymbalta). It wasn't until I saw a Urogynecologist Specialist Surgeon, who tested me for nerve damage, it was negative, so he knew my pain was likely a result of the pelvic floor muscles acting on the nerve. He Botoxed several intravaginally, especially the Obturnator Internus, and I felt relief for the first time since the accident. I also did pelvic floor physiotherapy in conjunction, which he mandated, and am much better now. He said that I was like 90% of people who think they have pudendal nerve compression, but in reality don't--it's tight pelvic floor muscles acting on it, but not fully compressing it, so as to require surgery or other. Hope this helps others. Botox may be your answer too.
Botox injections helped when nothing ... - Pelvic Pain Suppo...
Botox injections helped when nothing else did
That’s very good news for you but should also be noted by others. Relaxing the pelvic floor muscles is so important in many cases. And you have obviously been lucky in finding a competent doctor. Congratulations!
what exercises did you do with phisio? Was it just stretches or strengthening exercises? I’m glad the Botox and relaxing the pelvic floor worked. I think a lot of cases are due to tight pelvic floor and we need to learn to relax but it’s easier said than done. I suffer a lot with anxiety which I think plays a huge part in my symptoms.
I have pelvic pain for 2 years now. How did doctor test for nerve damage? How many inheections of Botox?Where is your doctor?
Dr. Nucelio Lemos in Toronto, ON, Canada (He also practices in his native Brazil). The nerve testing involved pin pricks and sensation in saddle areas. I felt them all- only if you have numb areas, does it indicate nerve damage; otherwise it is the muscles. He injected about 200 units of Botox, 70 in OI, and less in 3-4 other muscles like iliococcogeous (sp?), levator ani, etc. The exercises done with pelvic floor therapist include cat/cow stretch, happy baby stretch, hip thruster/runner stretch, OI stretch (like pigeon stretch, but on back).
Thank you, I will check the stretches out. The ones given by my pelvic floor specialist were different and made me feel 100 times worse. I’ve stopped doing them and I’m only walking and swimming when I can to help with pain….i have similar symptoms pn and I’m currently on notriptiptyline and still waiting for the full affect to kick in…the good think about this medication is the minimal side affects and they really help with my sleep.
what symptoms did you have I am on a wait list to try the Botox for pelvic floor and oi muscles my sit bones are always sore I have pudendal neuralgia
Same-hurts to sit on left sit bone; radiating pain down buttock, also to perineum, groin, and labia region
thanks glad you have relief i have all those symptoms as well including lower back now
I am genuinely pleased to hear that you have finally found some relief; it's encouraging to know that Botox has worked for you. Unfortunately, my experience with Botox was not as positive, as it resulted in increased pain. I learned from one of the specialists I consulted that in some city hospitals, the injections may be administered by residents rather than the attending physician. This revelation was quite frustrating, as I believe patients should be informed and given the option to choose who performs such procedures.
Currently, I am exploring alternative therapies, including Tension and Trauma Release Exercises (TRE) and the use of a vibrating plate, both of which seem to provide some relief. Additionally, I am dealing with Persistent Genital Arousal Disorder (PGAD), for which traditional physical therapy has not yielded significant benefits.
I am considering surgery in Nantes, France, as a potential next step. However, for those contemplating this option, I would recommend exercising caution. The hospital is reportedly experiencing internal challenges, and there have been concerning reports regarding patient care, including instances where individuals have unfortunately passed away while waiting for treatment. This situation has raised significant concerns, especially given the hospital's recent focus on rebranding rather than addressing critical healthcare needs while complaining of lack of funds.
I sincerely wish you continued success in your journey toward better health.
Hi Crofem, I am in Toronto. I suffer from urethral pain, buttocks pain, labial pain. did you by any chance have urethral pain as well? How did you find Dr.Lemos’ bedside manner? I am considering asking for a referral but I read online that he can be quite rough on his patients…yells at them etc. The last think I need is to be demoralized while dealing with this. Wondering about your overall experience with him. Thku
Need diagnosis for my pelvic pain.
Vaginal suppositories 
Pudendal Neuralgia Question 
