For all of you who wanted to see me t... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,324 members5,619 posts

For all of you who wanted to see me the day I got married.

Debra13 profile image
23 Replies

Fellow sufferers,

Of course under my dress my legs are wide apart and you can’t see my pillow that I’m sitting on that I decorated for this day. If you all want to know what I’m reading my husband and I wrote each other love letters to read before we got married. As most of you know my nerve block wore off that night and I was vomiting from the pain being so horrible. I did manage to finish out the night followed by 3 days in bed. All worth it for the man I married. I love him with all my heart. He is the most understanding man when it comes to this horrible condition and has been by my side through everything. I couldn’t ask for a better half to spend the rest of my life with.

Written by
Debra13 profile image
Debra13
To view profiles and participate in discussions please or .
Read more about...
23 Replies
Heathwhit profile image
Heathwhit

My heart goes out to you love i think you are so brave to go through with your wedding feeling the way you do.I am old now and feel so much for you having to go through all this at your age.I wish you and your wonderful husband my best wishes for your life together.

Debra13 profile image
Debra13 in reply to Heathwhit

Thank you so much. I’m not that young. I’m 45. Lol. We waited 26 years for this special day. Lots of trial and tribulations but we finally beat the odds and made it down the isle. He truly is an amazing man and I’m very lucky to have him. 😂❤️😊 ThAnk you again and God bless you Debbie

Konagirl60 profile image
Konagirl60 in reply to Debra13

Debra, congratulations. I only saw this now. You are brave. Thank goodness your partner is a true friend. Only unconditional love would support a woman dealing with this disabling nerve conditon. I wish you the best medical care possible. Congratulations on your wedding. You are beautiful!

charlee4 profile image
charlee4

You were beautiful on your wedding day. You hide your pain well! I love, love your necklace! Thanks from giving us a glance into your special day. Many heartfelt blessings on your marriage. Fondly

Debra13 profile image
Debra13 in reply to charlee4

Thank you so much. The necklace was a gift from my parents on my 35th birthday. I never wore it before and thought it would be perfect for this day since it was something blue. Deb. ❤️

You do look beautiful Debra,I think your husband knew from the start what he was letting himself into,which to me must be REAL love.❤️

Like Heathwit,I'm no spring chicken anymore,so for someone so young to be suffering like you do,my heart goes out to you to.

But I sincerely wish you both all the happiness in the world.❤️💐

PS.Who knows one fine day,they will find a permanent solution to your problem.👍🍷

Debra13 profile image
Debra13 in reply to

I’m not that young guys. Ive been suffering since I’m 28. Im now going on 46 yeArs of age. But you did hit it on the head. It’s definitely true love. He is my missing piece to the Puzzle. Definitely the better half of me. Words can’t express the love I have for him. I literally can’t live without him. He truly Takes great care of me. He is the best part of me and keeps me fighting. Thank you so much for the beautiful words. 💕🤗😊 lots of hugs. Deb

pizon profile image
pizon

You were a beautiful bride!!!

Debra13 profile image
Debra13 in reply to pizon

Thank you so much. ❤️🌹🤗 Deb.

masa65 profile image
masa65

best wishes i glad you got the best man in the whole world who understands what you going through all the best for the future to you both ..

Debra13 profile image
Debra13 in reply to masa65

Thank you. 👍♥️😂Deb

Nikki1974 profile image
Nikki1974

Huge congratuations Debra13, so happy for you. Hopefully, with your wonderful husband by your side you can keep gaining strength and some peace from the pain xx

Debra13 profile image
Debra13 in reply to Nikki1974

Thank you Nikki. Much appreciated. Deb🤗👍🙏

McGraw profile image
McGraw

Wow so beautiful!! l don't know your story but thank you for sharing your special day. It's so nice to hear that you can try & have a normal life with chronic pelvic pain many blessings for your marriage. Carol xx

Debra13 profile image
Debra13 in reply to McGraw

Thank you carol. I don’t live a normal live I live a modified life. But I still consider it living. Compared to lying down every day like I use to be. I fight everyday and force myself to get out of bed. Even when my pain is a 10 plus. You have to. If you keep laying down and dwelling on the pain it consumes you completely. Since I’ve been doing this. I feel I’ve accepted the condition which makes it easier to live with. I try to control the pain the best I can daily. Hope that helps in a way. God bless Deb

Kimbilina profile image
Kimbilina

Hi it's Kim here. Haven't spoke for a while but wanted to say ' you look so beautiful!! You'd never know from looking at your picture that you are so ill ! Like me you keep fighting and fighting on hoping one day there will be a cure for this horrendous illness life has dealt you! I am so happy that you have now found the strength to marry your soul mate. You will have this wonderful day to look back on for the rest of your life!! God bless. Stay strong 😚😚💝

Debra13 profile image
Debra13 in reply to Kimbilina

Thank you Kim. Yes I wasn’t letting this condition stop me that day. I did pay for it after though. Was in bed for 3 days after it. Ugh. Couldn’t move. But we all know the deal. Thank you and keep fighting. Also get this condition out there. When ppl ask what I have I tell them as embarrassing as it may be. Only cause it educates others on the illness. So everyone don’t stop talking about it. Educate others who don’t know what it is. Even strangers. I do. You never know when that person may find the information useful for themselves or someone else they know who has it and is embarrassed to talk about it or even go for help. God bless you Kim. Keep fighting as I am for that cure someday. Deb 🤗👍xoxo

Delanna profile image
Delanna

Oh darling your picture brought me to happy tears.

Congrats to you both .a man who comprehends a womans pain is a keeper no doubt on that.

Sending love miles away .

Debra13 profile image
Debra13 in reply to Delanna

Thank you so much. He certainly is a keeper. I love him more than I can express in words. Yes, he completely understands about this horrible disease and I can only hope you all have or find someone like him. God bless you. Deb. Xoxo 🤗

Kimbilina profile image
Kimbilina

Hi it's me again 😉😄 yes people say to me 'how is it that you're still here if it was me I'd have given up ' and I say 'because I'm a fighter and even though things get hard sometimes, I fight on !!' Besides I need to be strong for everyone else. Which is definitely what you do.

Talking about keepers I know how much it means to have someone who understands and really cares about the pain we are feeling and I too am really lucky to have found my soulmate. I met him 20 years ago just 6 months before having a total hysterectomy after many, maaaaaany surgeries hoping to get rid of this horrendous illness. But hey ho surprise surprise it didn't work! He has been by my side through everything. I don't know what I would have done without him. He is the reason I fight on. Even though I couldn't give him children and my health wouldn't enable us to adopt so we are childless he has stayed by my side ! He is definitely a keeper.

I know that despite the illness you and your wonderful hubby will have a wonderful life together. Stay strong . Lots of hugs and kisses to you and your hubby. God bless 💝

Debra13 profile image
Debra13 in reply to Kimbilina

Hey kim,

You are like me. I too had a hysterectomy and couldn’t adopt for the pain is too great. Never to give him children but yet he still stands by my side through everything. There are some keepers out there. Truly. We got lucky. I’m happy for you too. Keep in touch ok. Deb

pelvicpain123 profile image
pelvicpain123

Congratulations. You look absolutely beautiful xx

Debra13 profile image
Debra13 in reply to pelvicpain123

Thank you. Xoxo Deb

You may also like...

I just got the stimulater I need advice from those who have the permanent or had a temporary one on the past.

Hello fellow sufferers, I’m reaching out to those fellow sufferers who have tried the...

Bad news for the nerve block I just went for and I feel like an idiot. Like I let you all down😔

doctor had read the article and my letter to him prior to this nerve block. I must let you all know...

To all my fellow suffers particularly the lady suffers men you as well for the recital burning. I have something that can take the edge off.

make sure you are not allergic because that will cause a bigger problem for you. But most ppl aren't

PID. (Pelvic Inflammatory Disease)

well, so I’m very confused and I’m scared cause I don’t want to get that again, it was painful! I’m...

Unknown anal chronic pain

English isn’t very well , please read through my description below , I beg you . One day , I...