Prolapsed Bladder

[1944Pitstop]

Hello ~ Have been told I have a prolapsed bladder... info and suggestions would be appreciated.

[Pinky2233]

If it is not too severe a PT’s suggested The Breather to strengthen everything

[stenosis49 in reply to Pinky2233]

Hi pinky2233, whats the breather and how do you use it

[stenosis49]

Hi1944pitstop, the medical term for this is cystocele, prolapsed bladder. usually uncomfortable and depending on the grade of which your prolapse falls into you may be offered a pessary a rubber ring which is placed inside to help alleviate the heavy feeling and discomfort , or surgery if its really bad and the pessary wont be of any use. Be very careful if you choose to have the surgery as they tend to use mesh for this I know I had this done back in 2013 and had to get it removed PAIN PAIN PAIN , nerve damage like so many thousands of women. try to opt for them to use your own tissue if you can. sorry for the long post

[1944Pitstop in reply to stenosis49]

Thanks. Trying to avoid surgery. Grade 2 ~ will try to keep it there. Curious about earlier reply about breather....

[cowberry in reply to 1944Pitstop]

At Grade 2 there is still hope! Kegels, Neuman procedure, ring pessaries. Good luck Pitstop

[sushke]

Hi 1944Pitstop,

I had the same. I purchased a Kegal and tried to fix the problem through exercises each night - but sadly to no avail. In the early stages, this might work but mine was a Grade 3-4 Bladder Prolapse and the consultant said that I needed to have a hysterectomy. I went into shock. Because I was initially reluctant to have the op. I was offered the chance of pessaries... but at 63 yrs of age, even tho' I am a healthy, active person, I realised it wasn't going to get any better as I got older. Apparently, unbekownst to me, my womb had also dropped and this had caused my bladder to prolapse.

I had the op. in April 2018 and am so glad I went ahead. I was in hosp. for 24 hrs and then home. Slept a lot for the first week, I wasn't in pain., I was just tired, but all was fine. You have to take it easy for the first 6 -8 weeks, and then you are back to normal without that awful feeling and pressure down below. I had heard of the mesh that has been used in the past, but was assured they don't do that now. Am in the UK, it may be different if you are in the US.

I suppose your next step is dependent on how bad the prolapse is. Your consultant will guide you as to your options.

Hope the above is of help.

Su

[1944Pitstop in reply to sushke]

Thanks so much...

[cowberry in reply to 1944Pitstop]

So sorry about your problem ... please read below for any hints from Sushkme and myself and also other people on this site regularly discuss POP pelvic prolapse

[Mae123 in reply to sushke]

Hi, I also have what you had. But also a rectocele. I am seeing a gynecologist in September and will probably have to opt for surgery. I do not want to have the mesh, but I think they use this in Oxford where I am going Which authority were you with. Thanks. Glad everything is ok with you now.

[sushke in reply to Mae123]

Sorry to hear about your probs. Mae123. I hope the surgery does the trick. I had a hysterectomy plus an anterior repair. When I expressed my concerns having read about mesh, I was reassured that it wasn't used, but maybe I misunderstood, and as you say, it differs in certain parts of the country. I am in Wiltshire and as mentioned to Pitstop, it is a relief to be back to normal. Am so glad I went ahead with it. I am still suffering from stress incontinence if I try to jog, or jump up and down. But it was like that way before the prolapse anyway. At least my bladder is no longer over active at night: am not getting up 4 times a night to pee. Since the op. I've been lazy and need to focus more on my pelvic floor exercises, but other than that - no probs. and I wish you and Pitstop all the best. Thanks for your message Mae.

[cowberry in reply to Mae123]

Dr Simon Jackson at Oxford by any chance?

[cowberry in reply to sushke]

Hi Sue, any information on what doctor treated you and in what hospital did you have the procedure.

You are one of the lucky ones, most ops involving mesh... particularly in the past have lead to complications.

Maybe they are using a better type of mesh or their operating techniques are more evolved through trial and error.

[sushke in reply to cowberry]

Hi Cowberry, as mentioned above, I was worried about the mesh as I'd read too many unhappy stories, and I was reassured that they wouldn't use mesh as part of my treatment. I had a hysterectomy and anterior repair. Sorry that I cannot help you further. I know nothing about the mesh treatment: what they used to use or what they use these days.

[cowberry in reply to sushke]

Oh thank you for your information, I am trying to find a hospital consultant who would undertake a repair job using native tissue for my cystocele, I think an anterior repair is what I would need, like yourself.

But I still can;t be persuaded that a hysterectomy is best for me even though one consultant has already advised of this, I was hoping to conserve my uterus as having a hysterectomy is such a big thing to go through( although I am 58 ). Though I may change my mind eventually as I feel the problem large womb is helping to push all my other organs like my bladder downwards.

But the fact that your op appears to be successful without mesh gives some of us girls hope.

Most of the stories I have heard about mesh have been grim and give little hope especially for us mature ladies, indeed even with a ring pessary in place my situation with POP will get increasingly worse with time and eventually I will have to settle for an operation.

Did you have the operation in Swindon Wiltshire, What hospital could you recommend as I live in the westcountry. You sound as if you had a competent doctor to do your operation. I am just relived someone found an operation that worked for them and hope Pitstop does not go down the mesh route like so many others before.

I hope you keep making progress, as 63 is still quite young to be troubled with these gynao problems which hold us woman back so much.

I have totally lost my confidence at 58 years old because of the prolapse preventing me getting on with my life.

Any info on what hospital you used would be great!!

[sushke in reply to cowberry]

When a hysterectomy was initially suggested, as mentioned, I sort of went into shock. Immediate reaction was ..no I don't think so, thank you very much. I wanted to stay intact and it sounded so drastic. I explained to her that my husband, older than myself, is having serious health probs. and for me to be out of action for any length of time would not be good. The consultants reaction was 'all the more reason to get it done now, esp. whilst you are still young'. She explained that my recovery would be far quicker and stronger the younger I was.

I went away, researched heaps, and as i don't know anyone that has had a hytserectomy (and as strange as it may seem), I asked women acquaintances on fb, if anyone had a hysterectomy. Five people responded and they were all good news stories. Some had it 30 years ago, others more recently. All had the op. for various reasons, some quite serious, and all said 'Go for it, you won't regret it'.

With everything I'd read, and with the explanation from each lady who so kindly shared her story and experience, I decided enough was enough. I contacted the consultant and asked if I could go ahead asap. These ladies were obviously dotted around the country: Scotland, Yorkshire, Devon, Dorset, and one from the USA. So lots of different hospitals. As it is, I live near Salisbury. Hope that is of help.

Best Wishes,

Su

[cowberry in reply to sushke]

Thanks x

[cowberry]

Sorry I meant sushke not Sue x

Thanks for all your advice

[cowberry in reply to cowberry]

Thanks x

[Butch12]

Hi it’s my first time on here I had a prolapse operation 3wks ago I had a prolapsed vaginal walls pushed back a bladder put back ueturus lift and anal lift shortly after the operation I was in excruciating pain in my bottom and in my vagina the doctor gave me a steroid injection in my virgina still didn’t tell me what it was only when I googled the symptom I now now I have purdenal neuralgia can anyone tell me if they are suffering the same thing and does it aventualy go I don’t think I can stand much more of this Cronic pain I was a fit healthy 62 year old working full time and can’t see a light at the end of the tunnel thank you

[Smollyholly in reply to Butch12]

Hi I had a cystocele repair which was fine then a rectocele/enterocele repair 11 months later and pain was excruciating I am 17 months post op and have chronic pain now I could not sit and painful to poop Ive had a nerve block injection which helped but only lasted 12 hours Where did you have your operation?

[Butch12]

Sunderland royal

[cowberry in reply to Butch12]

Its a long shot but Ive heard Dr Marc Possover Zurich is the leader in corrective surgery but it would obviously cost a bit privately Hope this helps

[cowberry]

Dr Marc Possover in Zurich for treatment of failed cystocele repairs and other surgeries.

[Lolarufus123]

I would recommend you see a female physio and try to rectify this prolapse with exercise. My sister had surgery for a prolapse 5 years ago. Now she is disabled and in chronic pain. If you absolutely need the surgery I wish you the best of luck.