How do you sleep at night?: I am new... - Pelvic Pain Suppo...

Pelvic Pain Support Network

19,715 members5,776 posts

How do you sleep at night?

sheweaves profile image
7 Replies

I am new here. I have been diagnosed with Pudendal Nerve Entrapment after a back surgery for stenosis that lasted 4 hours instead of one hour. I am currently renting a hospital bed but even with my knees raised and my head raised, I still have bad pain after standing up. How do you sleep at night? I cannot lie flat or on my side without terrible nerve pain. I just got home after ten days in the hospital where I got an overdose of steroids, but it took ten days for me to be able to even take a step. Now I am on Lyrica, Ibuprophen and Tylenol and I can walk around my house and around the block on a good day. I stand up almost all day and night and sleep very little. How do you sleep at night with PNE?

Written by
sheweaves profile image
sheweaves
To view profiles and participate in discussions please or .
Read more about...
7 Replies

I think the best advice I've ever had is to see a Physiotherapist.

I do believe you are American,if so try reading up on a lady called Stephanie Prendergast. I think you may be able to google,I'm not sure.

But she has some really good advice on all this PNE/ PN.

pieper profile image
pieper

talk to Dr. Dellon , the Dellon Institute. he does surgory for pne. i had it and it helped.

good luck

charlee4 profile image
charlee4

The only advise I have is to ask the doctor for something like a low dose of Ambien-generic. When you fall asleep does the pain wake you up? Have you tried certain teas that are suppose to help with sleep? What about a hot shower and meditation before sleep? Do you try and lie down with a guided meditation? You can find them online for free. Have you tried medical marijuana. It is legal in my state and, though I don't function well on it during the day-different strength, it usually relaxes my muscles and I go to sleep.

Same as you I stand most days. My pain is worse sitting and lying down.

Konagirl60 profile image
Konagirl60

I am a little confused. Are you saying the surgery for stenosis is what found the pudendal nerve entrapment? Do they know which branch of your pudendal nerve is being compressed?

It sounds like the rectal branch but it could be your inferior rectal nerve as well. Have you had any guided nerve blocks? They suggest three blocks one month apart and if that does not calm down the nerve(s) then surgery is recommended. Pills do NOT work for P.N.E.

Pre op I applied capsicum pain patches to my right buttock and anus. This went on for three and a half years. The patches absorbed leaking stool. As time progresses with no surgery, one becomes incontinent with stool. Are you? I avoided it for years by standing all day but eventually my knees wore out and I was lying down more or sitting in pain with pain patches on. ( they only work for 2 hours. )

I got the surgery too late but it made a big difference. My pain is now somewhat controlled with Nortriptyline, Hydroxizine HCl, legal THC oil, legal CBD oil and I would not sleep ever without a 7.5 mg Zopiclone sleeping pill.....P.N.E. woke me every night for three years. I urinated pain free BUT WHEN I WENT BACK TO LIE DOWN ON MY BED I WAS IN AGONY!!! It felt like someone was sticking a red hot poker up my anus and rectum! It HURT! It BURNED. It was TORTURE!

The surgery rid me of that......I suffered terrible life threatening uncontrolled nerve compression pain for 3.5 years. It was brutal. Doctors here were not believing me. They said I was intense because I had a personality’ disorder. NOT! A hairthin nerve was being compressed by overused juxtaposed ligaments. I am lucky to be alive. Good luck.

sheweaves profile image
sheweaves in reply toKonagirl60

Who did your surgery? I got PNE After stenosis surgery. I am looking for the best surgeon in the US for PNE

Konagirl60 profile image
Konagirl60 in reply tosheweaves

Dr. Stanley Antolak Jr. saved my life. He is retired though. I do not know who the best is? I sure hope you find him or her. This injury is not conducive to normal living....it is a big disability not being able of sit, lie down, sleep, work out, lift anything heavy etc. Have faith.

Lolarufus123 profile image
Lolarufus123

Ask your doctor for sleeping pills. Good luck

Not what you're looking for?

You may also like...

I have had enough. I can’t take it anymore. Just when things look a little better.

Hello everyone, I decided to post on here and I haven’t in a while. I was starting to battle...
Debra13 profile image

Hope at last

Hi well after five years of suffering with the most intense burning, agitation, painful genitalia,...

Pudendale nerve InterStim

Has anyone had a pudendale nerve InterStim? If so can you please tell me if it helped and how long...
Julieamb profile image

Extreme Penile Pain - Suspecting Pudendal Nerve Entrapment - Seeking Advice and Hope

Hello everyone, My name is David, I'm 24 and I live in LA. About six months or so, I developed a...
David23 profile image

don't know what to do next re pudendal nerve treatment

Hi all. I was diagnosed with pudendal neuralgia in june after having a period of 2 weeks of no pain...
sweetpea02 profile image

Moderation team

Alaine1 profile image
Alaine1Administrator
PPSN_TracyM profile image
PPSN_TracyMAdministrator
Tree_Tops profile image
Tree_TopsModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.