I'm thinking of purchasing an online stretching course called Dynamic contraction technique. Has anyone tried this or heard of anyone who has had success with it? It sounds promising but as we all know we will try anything to rid ourselves of this awful pain.
Dynamic Contraction Technique for mal... - Pelvic Pain Suppo...
Dynamic Contraction Technique for male pelvic pain
Is this the one by David Mcoid?
I am in a male pelvic pain group on Facebook and a few of the guys in there have said it's worked for them. You have to be committed though.
What is your pain group? I'd be interested in joining.
It's called
"Men suffering with chronic pelvic pain syndrome (CPPS)"
I have had a fair bit of contact with David, he is a good guy, who has spent many years with pelvic pain,had many many interventions and has come through with physical techniques. He has developed the programme with another expert, it does require a lot of time commitment, but if I had my time again I would go down this route rather than the conventional intrusive ones offered by the medical community. By the way I am female and had a lot of improvement with David before he developed this technique.
Please let me know if I can help.
Regards,
Lucyp
That sounds very positive. One thing I do need to add is that the medical community are made up of members from the allied professions including nurses, physiotherapists and psychologists. These professionals especially in the U.K. cannot prescribe with the exception of nurses who can with a lot of advanced training become nurse practitioners. The bulk of the nursing profession can’t prescribe. These professionals even for those of us who have to often have surgery to manage our condition(myself included for my conditions) can still gain an awful lot from these professionals. These professionals don’t recommend surgery unless they genuinely believe that it is needed. Physiotherapy for instance will rarely recommend surgery as a first measure. Even when surgery is recommended by a doctor physiotherapists are often key in rehabilitation of muscle groups that the patient doesn’t think of being affected. I had to have rehabilitation from a physiotherapist as my abdominal muscles had become weak due to pelvic pain which caused additional pain in my back which worsened the pelvic pain and the back condition I have - a vicious cycle. The patient isn’t passive in this process. If they aren’t sure about a course of treatment including surgery a doctor has recommended it is down to the patient to either ask the doctor to go through the rationale for surgery again or ask for a second, third and fourth opinion. If the patient has ideas /hopes of their own then don’t be shy share them with the doctor. The doctor should be open to discuss them and say whether this is a possibility or not. Sorry for jumping in but I did need to clarify this point and stick up for the medical profession a bit (yes I had to wait 15+ years to be diagnosed with my medical
Conditions and I’ve had and still got dreadful GPs and have had to put up with two awful consultants. Thankfully I am now well looked after by my consultants so tend to leave the GPs to get on with it. There are lots we can do and advocating well for ourselves is one of them.
As someone who actually is a medical professional I take on board your comments. However having endured many years of this dreadful condition I would say as many people become desperate with this terrible pain it does lead to grasping at straws. The five nerve injections I had in London under top consultant made me worse for several years before I could get on top of the induced spasm. Physiotherapist was not available under NHS so paid a fortune privately, and made very little progress. Surgery also not available on NHS so paid again very little improvement. I did get some NHS treatment at Bristo under Dr Greenslade who was excellent but any some improvement I got from Botox or spinal blocks were very short lived but he is a great guy.
So I repeat if I had my time gain, hindsight being a wonderful thing I would not undertake many intrusive interventions, but go down the more holistic route.
Regards lucyp
I am also a patient who as I’ve said previously has had terrible treatment and still does when I see my GPs. I’ve also had to pay out of pocket privately for two different types of physiotherapy which in central London was almost £100 a session each!. It wasn’t curative for my medical conditions but helped the overly tight pelvic floor muscles and rehabilitate. For me the money was well spent. It hasn’t cured my endometriosis, adenomyosis or IC but has helped remove an additional layer of pain. Surgery even if needed is something rarely used without physiotherapy, psychological support etc. This is something that has been addressed by various meetings I have attended from well respected medical professionals. There are too many patients thinking surgery is a quick fix whilst not asking enough questions beforehand eg will this surgery cure me? If it’s successful how long will the effects last? My response was in the generalisation of medical professionals offering intrusive procedures. Fortunately after suffering with no medical diagnosis for 15+ years I’m under a fantastic team of specialists which I researched and told the GPs to refer me to. The treatments aren’t risk free but for me it is the best I can hope for in addition to me paying out of pocket for the physiotherapists and hopefully starting CBT which I can’t get on the NHS. But for me I don’t begrudge paying as it’s a direction the NHS is taking unfortunately.
Did you purchase the online course?
Not yet but i am leaning towards purchasing it. Compared to the money i've already spent on everything else the cost of the course is a drop in the bucket. My biggest concern is flaring things up because it takes so long to calm it down compared to whatever i've done to flare it.
Have you given DCT a go yet?
Not yet, I was making progress on my own until recently when I started having bowel problems that have pretty much screwed everything up. Waiting to see doc but takes forever to get an appointment.
Oh no what happened? May I ask how you were making progress?
(I’ve just started David’s program 🤞)
I do a lot of stretching ,rolling on balls and foam rollers, sit on ice packs, use a cushion to sit on where ever I go, pelvic floor therapy, i've learned to do my own pelvic floor therapy which I'm so sick of doing but it's the only way to keep things at bay, avoid activities that I know flare me, avoid foods and drink that flare me. It's gotten me to a point of not being house bound but I still have bad days and my life has changed considerably. I used to be very active, a happy go lucky funny guy i was a hard worker. I retired early thank god because there was no way I could continue (I was a UPS driver) but I had so many plans for retirement and those all got thrown out the window. I live a pretty sedentary life now, boring as hell and my wife is getting bored with me I can tell so the future on that front is blurry at best but my options are limited. I just can't believe that doctors can't do something that can treat this or at least kill the pain. Let me know if you find any improvement with David's course it looks promising but I'm holding off for a bit because I'm trying a new doctor and I want to see if he can help me first. Good luck with it, I hope it works for you.
I feel for you I really do. It’s devastating and life changing for all of us, that’s for sure. I’ve got the full works and am affected everywhere. Each day is a battle. I wish you well and hope that your stretches continue to help keep things under control and that your relationship will be strong enough to survive this. Nobody but the people on this forum understand the pain, anxiety and despair. So we’ll help each other as best we can.
Ruby, it's now 3 months in, has the program helped at all? I am considering trying it.
A few years back David McCoid was practising and recommending another similar type of physical therapy. After much thought and research I went to someone in London who was experienced and qualified in it. I went to see the therapist a number of times and did all of the exercises I was taught. The result was a major flare up and increased pain for about a year. It may work for some people, but it didn't for me. I think increased pain is a sign that something isn't right. But what do I know?
I ended up purchasing the original course from David and it has been a godsend for me. It really does take commitment and dedication though. You can't just do it here and there. I am at the point now where I can pick and choose which exercises and stretches I need to do to keep the nerve free. I also began seeing a chiropractor that specializes in freeing up adhesions in your facia which helped tremendously.