Flare Ups

[airplane]

Does anyone go through periods of time that are worse than others? I think the drs refer to them as flare ups.

How much does emotions affect your pain and motivation to move? I know we are all emotional over what is going on in our bodies but I am talking about outside, uncontrollable emotions. Like a disagreement with someone, worry about money, worry on how to get up and drag yourself to the drs office, things like that. I try not to think about outside things but sometimes it is hard not too.

Any suggestions or comments would be greatly appreciated. Thank you. N

[Joolibee]

I think the connection between mind and body is fascinating. I read a book a few years ago, about the impact of brain chemicals on how we feel physically. Can’t find it now, but it was called something like ‘nerves on fire’. One thing I remember is that the chemicals that are produced when we are anxious are the same as when we are in pain, so it’s important to try to minimise negative emotions. It’s difficult to be absolutely certain, but I do think that when I’ve been organised enough to practice 10 minutes meditation a day, my pain levels have reduced overall. I also find that very gentle yoga, especially concentrating on my breathing, helps with the pain.

[Hidden in reply to Joolibee]

I think your spot on there Joolibee,I do believe the chemical your talking about is Adrenaline it acts as Excitement,or fear something like that,but it is the same chemical. Also if possible exercise is good for the brain,a doctor once told my 11yr old son,who was terrified of starting senior school ,to exercise,he gave him six exercises to do and he said fit in body fit in mind,and it worked,he then went on to take up Boxing,and has never feared nothing since,he's 47yrs old now,and still training. So yes I think your spot on.

[Hidden]

Hi there,I agree with Joolibee,but just to add to that. Oh my god an argument with my hubby or anyone,can put my pain through the roof.

I also do the worrying thing,like I'm going to see a Physiotherapist tomorrow for the second time,and I just said to my hubby,shall I put it off,he replied no we're going. If I'm seeing a doctor,I have it all worked out what I'm going to say,but I get there and it all comes out wrong. Then I get home annoyed with myself,because I never asked this or that. And the pain gets worse.

Sometimes I've said to my hubby,I don't want to talk,because I want to try and calm my body down,then the pain eases off a bit.

Wish I could wave a magic wand and make everyone pain free.🤔

[Joolibee in reply to Hidden]

Hi Gemini, I read a tip one time, about writing down everything you want to say to a healthcare professional and taking your notes with you to the appointment. I tried it and I do think it helps. I even had a doctor say to me that if I find any useful research information, I could take it in to show her, so she would be better informed. I’ve been having physio for nearly three years now. I’ve found a Physiotherapist I feel comfortable with and I no longer feel stressed about going. Good luck for tomorrow.

[Hidden in reply to Joolibee]

I've found a GP,who will accept any information I can give her..But I've also been told off for looking for information,I think that was because I knew more than him 😂😂. I've also took notes,and been told " we only have ten minutes ". I took notes to one consultant and I just scribbled it and crossed stuff out,and he took it off me to read himself,so now I'm sure to write neatly.😂. But to be serious I think we tend to get worked up over nothing,because we're so anxious to get it right,and feel better.

[airplane in reply to Hidden]

Hi Gemini71

Thank you for your comments. I think you are right about the brain chemistry especially if you are suffering chronic pain. I think the brain can only process so much before it goes into overdrive.

A paramedic once told me to run my health like a business. He said to have a file with copies of every test that i have had and by who or whom. Drs tend to want to see reports and don’t have the time or real interest in our story, which is sort of sad. Talking about the magic wand, sometimes I wish I could wave one over a dr and give him or her my pain for just one day and see how fast they are desperate for help. It is not to be spiteful but just to show them just how real this pain really is. Of course I would reverse it, because I wouldn’t wish this on anyone.

I have found when I can just show the drs that I am really trying by showing them CT reports that they probably have seen but have just brushed over it, reminds them again that there is a real medical problem and then I have to say very little. I too have gone in with a list and was blown off quickly. Drs don’t like it if you know more about your condition than they do. I find drs are far behind in understanding the true importance of the Pelvic Floor and that imbalances, tears or nerve problems are so important for strong core balance. Sometimes they are open to learning but more times they are more interested in prescribing medications for a quick fix which to me just complicates the problem more.

I have tried so many meds like a lot of members on this site with no improvement. Drs think sometimes you are being difficult and the meds should work. Everyone is so different and I find medicine to be mor generic. Just my opinion.

I so appreciate everyone’s input because I feel so alone sometimes and that there is no hope for me.

Thank you for your support.

Nancy

[Hidden in reply to airplane]

Hey,don't ever feel alone ever,you can bend my ear anytime. What you have just wrote above,I could have written that myself.

If I had a pound for every person I've said " I wish you could have one day in my body" I would be a millionaire.

Back to being alone,I also know the feeling of no one seems to care,and I've sure been in some dark places,but try not to give up hope. Take care

Norma.👍

[airplane in reply to Hidden]

Thank you Norma for your very kind and sincere words.

I have been in a flare up for 10 days now. You gave me hope and strength to keep going and I will. 👍😊

[Hidden in reply to airplane]

Great here anytime,never be alone,we can't always put anything right,but we can be someone to talk to,who understand dam pain.

You take good care of yourself,for the time being. No stressing.

[airplane in reply to Hidden]

No stressing. Hard to do sometimes but I know that it does increase the pain, so no stressing is my new motto. N

[Hidden in reply to airplane]

Go on you tube and find some meditation that you like,it's worth giving it a go. Not always easy to meditate,but I do know people who have benefited from it.

[airplane in reply to Hidden]

I agree. Meditation can work. I need to meditate all day long to really get pain relief. Lol. I will search out some tube meditation shows and give that a try. Thank you for your suggestion. N

[Hidden in reply to airplane]

Meditation is far from easy. Me personally can never see the point,because although while concentrating to listen while doing it makes you feel quite relaxed. Once you get on with your daily life,your back to feeling pain. I once had Hypnotherapy and during each session I felt great,the plan was to be able to just put yourself in that state of mind myself,whenever I wish to. I could never get the hang of it. My mind starts to wander. There is a chap on you tube who talks you through meditation,and it's alright to let your mind wander,just bring it back to the music,which is lovely,but how the hell do you stay in that frame of mind.

[airplane in reply to Hidden]

Gemini77 I couldn’t have said it better myself. I’d like to find a “natural” state of mind that works all day long. I think that is like asking to win the biggest lottery in the world. It’s not going to happen. Lol. N