Update

[sddipiet]

healthunlocked.com/pelvicpa...

This is a link to my previous post. I just want everyone to know that I did decided to go see the out of network pelvic pain specialist. It was nice to get a fresh pair of eyes to evaluate the situation and I found it very diagnostic. Through the injection we found out that I not only have PN, but another nerve through my piriformis muscle that branches off to the pelvic floor. I also found out I have some urethra inflammation and have switched to a non acidic food diet. Additionally, my doctor talked about the mental aspect of our condition. when you have pain in a chronic state our subconscious mind will protect itself by generating more pain. Let me give an example, I associate sitting with pain. I have a fear that if I sit again I will hurt my tailbone and irritate all my nerves again and set myself up for a painful flare up. My mind will protect my body by generating additional pain if I do sit because I associate it with something harmful. We have to retrain our brains and change our narrative. I have been doing exposure therapy where I sit every day and focus on what hurts then focus on my feet, and I go back and forth (with mediation music in the back). I started at 3 minutes and now I am up to 25 (increasing every week). The nerve block only lasted a day, but I did my best during that time period to give my brain a reminder that it is "okay" to sit. If our mind is on our pain all the time we will be in pain all the time. Yes, I know this is easier said than done, but meditating and calming the nervous system down is an important part of my recovery. Side note, I am also taking CBD oil to calm the nervous system down.

[Baileydog]

That sounds so logic! I’m goibg to give it a try .

[Joolibee]

Thanks for the update. I would be interested to hear how you get on with the CBD oil.